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Author Topic: rant  (Read 2565 times)
jonn r
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my little girl maiah

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« on: January 10, 2008, 05:29:43 AM »
so i just need to bitch a little....hmmm lets see were to start....ok....I WANT A DAMM KIDNEY...i am broke i cant afford to get to dialysis and eat see my kid who lives an hour away...i hate to take all of my pills....i feel like crap most days.....i guess i will stop there....




EDITED: Moved to proper section "General Discussion":  Bajanne, Moderator
« Last Edit: January 10, 2008, 08:33:05 AM by bajanne2000 » Logged
boxman55
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« Reply #1 on: January 10, 2008, 05:52:03 AM »
john r, hang in there, I know it isn't easy wish I could offer some help. Are you on the transplant list?...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
jonn r
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my little girl maiah

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« Reply #2 on: January 10, 2008, 07:26:32 AM »
Quote from: boxman55 on January 10, 2008, 05:52:03 AM
john r, hang in there, I know it isn't easy wish I could offer some help. Are you on the transplant list?...Boxman

yeah i am on two lists....i am #3 on one of them ...just never seems to get any closer
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #3 on: January 10, 2008, 08:35:02 AM »
Jonn R, I feel your pain.  I too find myself in a position I never thought i would be in.  But I know that things will work out.  some time later, you will be looking back at this time and it will be only a memory.
I am glad that we have somewhere where we can rant when we need to and know that they are people who understand totally.
Keep on keeping on!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
jonn r
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« Reply #4 on: January 10, 2008, 08:53:32 AM »
thanks everyone for the smiles.....you know its just hard to go from a 40+ a year job to 11,000 a year with 1200 a month worth of bills....it really is a shame that the gov makes it so hard to live.....to top it all off dhs lo ward my food stamps to 99 from 107 because my SS went up...you have to be kidding like i am getting rich here...and the sad part is they want you to eat rice and pasta on stamps but come on i am on dialysis those things retain  up water......funny dont you think
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Psim
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« Reply #5 on: January 10, 2008, 10:09:23 AM »
Quote from: jonn r on January 10, 2008, 08:53:32 AM
come on i am on dialysis those things retain  up water......funny dont you think

Yeah, funny in that laugh-to-keep-from-screaming way. I hope that kidney comes through for you soon, and lasts a good long time. And in the meantime, keep ranting, keep pushing, keep on.
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jbeany
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« Reply #6 on: January 10, 2008, 11:31:47 AM »
 :banghead; :banghead; :banghead;

Hope you get that call soon!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
goofynina
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« Reply #7 on: January 10, 2008, 03:33:24 PM »
John, you are singing my song my friend, just remember, you are not alone, you have many friends here that are going through the same things that you are and we can relate to your feelings.  One day at a time my friend, your day will come, afterall, you are #3, that is a good thing :)   :bandance;
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....and i think to myself, what a wonderful world....

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rookiegirl
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« Reply #8 on: January 10, 2008, 04:23:43 PM »
Quote from: jonn r on January 10, 2008, 07:26:32 AM
Quote from: boxman55 on January 10, 2008, 05:52:03 AM
john r, hang in there, I know it isn't easy wish I could offer some help. Are you on the transplant list?...Boxman

yeah i am on two lists....i am #3 on one of them ...just never seems to get any closer

WOW! #3 and listed in 2 locations.  I'm still trying to get on the list.  I pray your wait will not be too long.  As for finance.  This is one of my biggest fear, especially after attending the 1st transplant education session.  I'm still working full time 8-5 and I've been thinking about staying home, but afraid to loose my health benefits and income.  I know we can survive off my husband's income alone, but I'm afraid of the "What If's".  You never know when un-expected event will occur.

Best of luck to you.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
kellyt
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« Reply #9 on: January 22, 2008, 06:34:27 PM »
How are you doing John?  Feeling better?    :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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