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Author Topic: Another Phone Call  (Read 31303 times)
KT0930
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« Reply #175 on: February 13, 2008, 05:46:00 AM »

About a year ago I went to pick my son up from school, and the secretary was telling me about a girl who had just told her, "You won't believe this, but the doctor told me yesterday I have strep throat. That's the third time this year!" You know if it was yesterday she had not been on antibiotics for 24 hours yet!!  :banghead;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
rookiegirl
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« Reply #176 on: February 16, 2008, 06:19:05 PM »

KT,

Sorry, I'm just now catching up with your thread.  I'm so happy for your success transplant.  I pray all stays well.  You are truly blessed.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Sunny
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Sunny

« Reply #177 on: February 16, 2008, 06:51:34 PM »

Mmmmm! Mexican food sounds good.
Glad you are finally able to get out. Hope things continue to go well for you.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
KT0930
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« Reply #178 on: February 17, 2008, 10:29:14 AM »

Started working from home this week. What a relief to finally have something to do! They've passed a lot of my responsibilities on to other people, so I just hope they give me enough work to keep me busy!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #179 on: February 17, 2008, 11:20:31 AM »

Go Girl !  :yahoo;  :clap;  :yahoo;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #180 on: February 17, 2008, 11:30:23 AM »

 :bandance; Keep dancing!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KT0930
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« Reply #181 on: March 11, 2008, 08:12:16 PM »

I'm putting this in my cubicle when I go back to work!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
kidney4traci
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« Reply #182 on: March 11, 2008, 08:30:52 PM »

I love that!  It is so perfect!!!!  I am so happy to hear when you are well.  When do you go back to work?  Are you still workingat home a little? 
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
okarol
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« Reply #183 on: March 11, 2008, 11:30:12 PM »

 :2thumbsup; You look great heheheh!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KT0930
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« Reply #184 on: April 10, 2008, 02:39:30 PM »

Quick update:

Yesterday was my three month anniversary! I had a clinic visit on Tuesday, and everything looks great. I don't have to go back for clinic OR labs for a month WOO-HOO!

Creatnine is hanging out between 0.7 and 0.9; phosphorous and potassium and magnesium are getting closer to the normal range, but I still have to drink a diet coke or two day and have a handful of nuts with it (gee, darn!). I'm still a bit anemic, but my last transplant, it took nearly six months for that to get back to normal.

Took my son to the zoo on Tuesday afternoon, and aside from my feet hurting (6 hours), I didn't feel any ill effects from it. I also asked about getting a cat, and my coordinator said to wait three more months, and to wear a mask and gloves when dealing with the litter box, but it's not a problem  :yahoo; I think that's the best news I've gotten since January 9!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
willieandwinnie
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« Reply #185 on: April 10, 2008, 02:54:43 PM »

KT, I'm so happy for you.  :yahoo; Cat and all. I sure wish Len would start feeling better. He stays so tired all the time. That's another rant. Keep doing what your doing and have patience with getting a kitten. Don't want to take any chances. Take Care.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kidney4traci
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« Reply #186 on: April 10, 2008, 03:02:50 PM »

 :yahoo; I am happy for you too!!!!!!!!!!!!  Way to go!!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
angela515
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i am awesome.

« Reply #187 on: April 10, 2008, 03:29:40 PM »

 :yahoo;

So happy for you hun!!!!
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Sluff
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« Reply #188 on: April 10, 2008, 03:31:44 PM »

 :2thumbsup;
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cambonesegirl
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« Reply #189 on: April 10, 2008, 04:06:17 PM »

Quick update:

Yesterday was my three month anniversary! I had a clinic visit on Tuesday, and everything looks great. I don't have to go back for clinic OR labs for a month WOO-HOO!

Creatnine is hanging out between 0.7 and 0.9; phosphorous and potassium and magnesium are getting closer to the normal range, but I still have to drink a diet coke or two day and have a handful of nuts with it (gee, darn!). I'm still a bit anemic, but my last transplant, it took nearly six months for that to get back to normal.


KT are you going to get a biopsy on your new kidney soon? I know mine will be done three months after transplant.

I know you were on peritoneal dialysis so I don't know how your diet restrictions were, but it's so weird now after transplant that my phosphorus is low and they're telling me to eat all the foods I haven't been able to indulge in-in years to get my phosphorus up, I'm actually on pills for it. I still don't drink as much as I could be. I'm not drinking anything with caffeine for a while until I can get my bladder under control, because you know, caffeine is a diuretic and it'll make me go every 5 minutes. I'm still going every hour or more often if I drink more.

Happy Three Months! :yahoo;
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KT0930
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« Reply #190 on: April 14, 2008, 04:17:08 AM »

KT are you going to get a biopsy on your new kidney soon? I know mine will be done three months after transplant.

I know you were on peritoneal dialysis so I don't know how your diet restrictions were, but it's so weird now after transplant that my phosphorus is low and they're telling me to eat all the foods I haven't been able to indulge in-in years to get my phosphorus up, I'm actually on pills for it. I still don't drink as much as I could be. I'm not drinking anything with caffeine for a while until I can get my bladder under control, because you know, caffeine is a diuretic and it'll make me go every 5 minutes. I'm still going every hour or more often if I drink more.

Happy Three Months! :yahoo;

No one has mentioned a biopsy to me, and I'm not going to question it! I hate them, and I have heard from Karol and others that it can be risky to the kidney...with this being my third, I'm not taking any chances!

it's not unusual for phosphorous, potassium and magnesium to be low for a bit following a transplant. You're so used to restricting those foods, and the kidney suddenly swoops in and starts taking it out faster than you can put it in. I was on supplements for all three following my second and third transplants. I was taken off them about a month and a half ago because they were upsetting my stomach, and though my levels still aren't in the "normal" range, they're getting there.

As for the fluid intake, I bought a couple of really nice Camelback bottles (similar to the Nalgene bottles that were popular a couple of years ago), one in 32 oz size and one in 24 oz. I ALWAYS have one with me, and am going to start keeping one on my desk at work. It makes it easy to be sure I'm getting my minimum daily amount of water, and they're fairly easy to carry. I have found them at Sports Authority and Dick's Sporting Goods.

Best of luck with your's, and I hope your bladder is doing better!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
2_DallasCowboys
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« Reply #191 on: April 14, 2008, 05:35:40 AM »

Hi,

So, so great to read that you are doing and feeling
so well. :yahoo;

I love the cartoon you plan to bring back to work with
you :rofl; :rofl;

Enjoy those "phos foods" and post a pic of the kitty when
you bring he/she home!

Anne
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KT0930
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« Reply #192 on: May 04, 2008, 06:58:58 PM »

My hematocrit is finally normal. It was 36.4 on Thursday of this week!  :yahoo; I'm not cold, tired, or having trouble breathing...what an amazing feeling!!!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
monrein
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Might as well smile

« Reply #193 on: May 04, 2008, 07:22:14 PM »

I got so excited for you reading this update.  They only did biopsies on my kidney when I began to have trouble with it and that took about 20 years.  Ultrasounds were routine.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
KT0930
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« Reply #194 on: January 10, 2009, 09:10:34 AM »

*ONE YEAR ANNIVERSARY UPDATE*

Yesterday was the one year anniversary of my transplant, and everything is still going great! Creatnine has not been above .9 since the week of surgery, and people who have met me since would never suspect I had ever been sick. Things are just the way they should be. :)

We're going camping next weekend with my son's scout pack, and it'll be about the fourth or fifth time I've been camping since the surgery - I was on PD, so camping wasn't an option. We've been to Orlando and not had to rent an electric scooter for me in order to make it through the day; been able to stay out at night and not worry about getting home in time to connect to the cycler; and as part of my celebration yesterday I got to have a chocolate wave (big hunk of chocolate cake with chocolate chips melted on instead of icing and vanilla ice cream) at Red Lobster.

I have clinic on Monday, so we'll see how labs look, but since they're checked every month, I'm not expecting any surprises. As for ultrasounds and biopsies, no one has mentioned them to me, so I guess my team is much like Monrein's, they don't do them unless lab values seem to warrant it.

I hope everyone is feeling well and all who are waiting get their call very soon!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
okarol
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« Reply #195 on: January 10, 2009, 09:13:18 AM »

 :yahoo; Happy Kidneyversary KT!!  :yahoo;

 :bandance; I am so happy to hear you're doing well - may you have many more years of health!  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #196 on: January 10, 2009, 09:25:21 AM »

Great news KT!  Glad life is moving forward and you are doing so well.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willieandwinnie
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« Reply #197 on: January 10, 2009, 09:30:26 AM »

 :2thumbsup; So wonderful to hear KT. Thanks for keeping us updated.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kitkatz
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« Reply #198 on: January 10, 2009, 10:09:05 AM »

Hurray for KT and the new kidney!   :cheer: :cheer: :flower; :flower; :cheer: :cheer:
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Take it one day, one hour, one minute, one second at a time.

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I can fly!!!

« Reply #199 on: January 10, 2009, 12:34:52 PM »

 :bandance; :bandance; :birthday; :yahoo; :yahoo;
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