Ignorant things people have said to you

[UkrainianTracksuit]

Sometimes it's just frustrating. You can't understand this disease until you have it. Even people who genuinely care and try to understand can never truly get it. I work 10+ hour days.  To be able to do that I basically come home every night and go straight to bed. I rarely miss work, and when I do it's because I'm at a doctors. Every single day I feel sick and tired. Every. Single. Day.

I completely understand where you are coming from concerning being sick and tired every day at work.  Every day and not missing work too!  A big kudos to you though.     Also, I become frustrated with those who “skip work” when they’ve stayed out too late.  Being young, co-workers in the past automatically thought this was also the reason I looked physically sick.  “You didn’t sleep much last night?”  “Hard night out?”  Working in government at the time with 2 hour lunch meetings and able to pick our own office hours, I felt I could hide the tiredness with being annoyingly chipper and lots of concealer.  It didn’t work.     It didn’t work especially on the days of meltdown nausea.  Finally, after all the comments of “No, I’ve been sleeping well!  I’ve been going to sleep at 9 PM!”, I decided to just spill the beans.  Once I said that I had kidney failure, they stopped with the ignorant comments but kept on with the “You look tired.” statements.

The issue has followed me back into the world of academia.  We have many different guest lecturers coming in.  During a lecture by a very respected economist, I kept yawning.  He noticed every yawn.  I was interested in what he had to say but I just wasn’t feeling very good that day.  When he picked up his papers to leave (me, sitting there in the front row like the geek I am), he said to me very abruptly, “Sorry for wasting your time.”  I wanted to chase him down the hall yelling “You don’t understanddd!”   

[KatieV]

I have been on dialysis (for the second time) since October 2011 with NxStage....  Since the end of February of this year, I've been doing Nocturnal NxStage....

Last week I received a questionaire from my *INSURANCE COMPANY* asking if the treatment on 5/1/2013 with the Hortense and Louis Rubin Dialysis Center was due to an accident or injury!

I am a combination of laughing and pissed.  They'll be getting a call in a few minutes to "sort it out".   

[JasonEb]

I'm disappointed when I see Renal Patients agreeing with ignorant assholes.

Even a broken clock is right twice a day.

I agree with ignorant assholes all the time, if they are right.

I also pointed out that I didn't agree with all, nor did I agree in the method with which they expressed themselves, plus I agree with parts of your post.  It's not an all-or-nothing world.  I'm not "with you or against" you or them, merely sharing my observations of the post that you put forth for public consumption.  I have no stake in your game.

Remember, this was UNIT SPECIFIC.

That's how my unit operated, so that's what rules they had to follow.

Well, I'd love to be at your unit, then.  The perks sound pretty good (granted, you never state anything about the important thing...you know, the actual quality of care).  The majority of your challenge (not all, but a good part of it) is basically just asking your peers to do without some of the modern comforts that they normally have.  Actually, you're not even asking that.  You are asking them to have only a limited amount of options of modern comforts/entertainment.

You also sound just like them in that it seemed as a "pity me" activity.

And not only have I been in your position (which seemed to be your constant disqualifier for those who disagreed with your stance) and feel that way, but it seems I have 25-plus years of life experience that you don't to support my observation.  By your formula, I could use the argument that your position is "ignorant" and you are being an "asshole", even though that's not how I actually feel.  I feel you are a teenager, angry at your situation (which is quite understandable), and transposing that anger onto others, whether they deserve it or not (and make no mistake, I do believe a few of those posters deserved it, just not all).

Again...Disappointed.
 

"We must accept finite disappointment, but never lose infinite hope." ~Martin Luther King, Jr.

[Simon Dog]

ignorant assholes

The term for such a person is "ignoranus"

[CalamityEC]

For reasons which I'm not completely understanding, I still haven't managed to get my appointment to get my skin graft so I can start dialysis treatment.  So, I'm "functioning" at 11%.  My boyfriend (who is a great guy) works 5 overnights a week. He doesn't get that our two forms of "I'm tired" are completely different and legit.  Or rather, he didn't get.  He's realizing as I have fewer days of feeling like myself that my complaints have more merit than his (we've only been dating a few months, though we've known each other over a decade).

I had a former co-worker inform me that kidneys aren't that important (Yes. Yes there were *facepalms* involved following that conversation).

[cassandra]

     


     


Hopeless, and you can't 'educate' everybody all the time either.

Take care,Cas

[cdwbrooklyn]

Calamity, you should of told her to give up both of hers and see how well she function without them.  Idiot!!! 

[Swamp Gator]

I am dializing in cernter. Out head nurse who has had her position for almost 20 years now was harping on me abnout my weight gain for the upteenth time and about my need to restrict my fluid intake... I calmly said to her, you seem to forget that I have Gastroperisis (sp?) ... Her reply... So, you have gastroperisis, what's that have to do with anything?

If anyone should know and understand it should be her! I had to patiently explain to her what it was and how it effects my weight. Than I had to spend the next five minutes arguing with her about how much fluids to remove from me.

That has to take the prize for ignorant things I have been told by someone who should KNOW.

[UkrainianTracksuit]

I was asked the following the question from a weightlifter today.  Naturally, as a whole, they are not the epitome of intelligence but I was shocked.

“If a baby or a kid donated a kidney to you, will they grow back a replacement kidney?”

 

[NDXUFan]

Oh Geez! Makes you want to scream.  I love it when the medical profession assumes you are diabetic because you have kidney failure.  I think I had to tell every medical professional that came into my room this last surgery that I am NOT diabetic!  One nurse even said well "most of our kidney failure patients ARE diabetics, too."     I just laugh now.  What else are you going to do?
One nurse's assistant even asked me, when I had asked for a cup of tea, "Can you have tea?" You would think I would know what I can and cannot have especially in the hospital where they watch you all of the time.

Assuming makes an ass out you and me.

[CalamityEC]

Calamity, you should of told her to give up both of hers and see how well she function without them.  Idiot!!! 

I was considering it.  But, based on really effed up things she said to the kids in our after school program made me realize it made more sense for me to offer up my brain to her...

[Deanne]

I'm on the transplant list, waiting for a deceased donor. Several people have asked me when my surgery is scheduled. Let me look into my crystal ball....

[galvo]

I'm on the transplant list, waiting for a deceased donor. Several people have asked me when my surgery is scheduled. Let me look into my crystal ball....

That takes the cake!

[okarol]

I'm on the transplant list, waiting for a deceased donor. Several people have asked me when my surgery is scheduled. Let me look into my crystal ball....

 

[Riki]

I'm on the transplant list, waiting for a deceased donor. Several people have asked me when my surgery is scheduled. Let me look into my crystal ball....

I'm not even on the list, and people ask me that question

[iKAZ3D]

I'm on the transplant list, waiting for a deceased donor. Several people have asked me when my surgery is scheduled. Let me look into my crystal ball....

I'm not even on the list, and people ask me that question

That's sad. Utterly.

[amanda100wilson]

When you talk to your average person about kidney transplants, their attitude generally suggests that they think it's like shopping for groceries.  You need it, you get it.

[iKAZ3D]

When you talk to your average person about kidney transplants, their attitude generally suggests that they think it's like shopping for groceries.  You need it, you get it.

When you talk to your average person about kidney transplants, their attitude generally suggests that they think it's like shopping for groceries.  You need it, you get it.

 

[CalamityEC]

When you talk to your average person about kidney transplants, their attitude generally suggests that they think it's like shopping for groceries.  You need it, you get it.

Or "Wait. Haven't you already had a transplant? Why do you need another one?"

I like living.  Don't you? Yeah, that's what I thought."

[CebuShan]

I'm on the transplant list, waiting for a deceased donor. Several people have asked me when my surgery is scheduled. Let me look into my crystal ball....

Maybe they think it's a DIY thing! Pick the donor you want to kill!
            

[Simon Dog]

BEK Transplant used to sell kidneys online for $70K installed, service performed in Shanghai.

[jeannea]

Shanghai? That donor was probably recently deceased. From some "mysterious accident."

[Simon Dog]

Shanghai? That donor was probably recently deceased. From some "mysterious accident."

Nope.  The web site was quite open about the fact that organs came from "executed prisoners".  The website has been shut down since China cracked down on overt organ trafficking.  It looked legit - had a price list (discount for buying a liver and kidney at the same time), $5K surcharge for Type O, listed the immunosuppresents used and their source country; and had bios on the surgeons.

[Mr Pink]

A good friend of mine who knows I have kidney failure and require dialysis asked me how my kidneys were going. Well... err... they're cactus, hence the term kidney failure and need for dialysis. She's a lovely girl, but not the sharpest tool in the shed, bless her.

[MooseMom]

"...they're cactus."   

Mine are prunes.