Ignorant things people have said to you

[gothiclovemonkey]

i got a ... strange compliment? i think? the other day, a lady said i look really good for being on dialysis...
Yes, its a compliment im sure, but its still kind of annoying, am i supposed to give up and not try anymore just because i have illness??
i admit on D days i dont try and half the time i wear my pajamas lol but on off days? really?

[MommyChick]

People must think that Dialysis isn't for the younger people.. (I'm 29) & if I had a penny for every time I was told ... I'm to young for dialysis or I'm to pretty to be on dialysis ... OR ... I look good for being on dialysis I would be RICH!!
 
The best is when someone tells me they know I will get a kidney this year or in past years ... its been 7 yrs later & where is this kidney???

[AnnieB]

were they volunteering? Maybe you should have the paperwork handy just in case.....

[Riki]

People must think that Dialysis isn't for the younger people.. (I'm 29) & if I had a penny for every time I was told ... I'm to young for dialysis or I'm to pretty to be on dialysis ... OR ... I look good for being on dialysis I would be RICH!!
 
The best is when someone tells me they know I will get a kidney this year or in past years ... its been 7 yrs later & where is this kidney???

That goes along with all the 'Really? You don't look sick" comments I get.. but that also goes with the "you're not really blind cuz you can still see" comments I get as well   

[Emerson Burick]

The worst thing that anyone has said to me was right after I was diagnosed and I was still in the hospital. My father's wife insisted that I had to repent to Jesus right away because I didn't have time to hesitate.

I always wanted someone to bring up religion being the cause of my kidney failure just so that I could point out that I must have had ticked off God in precisely the same way as my brother, mother, grandfather, and great-grandfather. That's not a personal punishment from a modern deity, that's a curse from a Greek tragedy.

Instead, I'll have to save my wrath for those who thank God/Jesus for getting them a transplant but fail to blame God/Jesus for needing it in the first place.

[cassandra]

I always wanted someone to bring up religion being the cause of my kidney failure just so that I could point out that I must have had ticked off God in precisely the same way as my brother, mother, grandfather, and great-grandfather. That's not a personal punishment from a modern deity, that's a curse from a Greek tragedy.

Instead, I'll have to save my wrath for those who thank God/Jesus for getting them a transplant but fail to blame God/Jesus for needing it in the first place.

Love it    I had the preparation-nurse just before I received my dad's kidney, say that I should have prayed more, I never could respond to her, as I went under. Coward, I'm sure she was counting


       

[Rerun]

Well, I'm thankful. 

I do think that I was a real shit to other kids when I was young.  Maybe that is why my kidneys failed.  It has made me closer to God because I want the promise of eternity without sickness.  I'm claiming it now.

     

[ceb3370]

when a taxi driver saw my arm, where the veins are getting larger. he told me.

"Are you injured? are your arms broken? are you skateboardigng?"

well of course i don't want to narrate my situation, (we had a long ride)..

 i just did say yes, and i said "better stop skateboarding now"..

and then i had a quite journey.

[MommyChick]

the other day as I'm waiting for them to call me back to be put on dialysis.. another dialysis patients asks.. why I'm still on dialysis?     its kind of hard to stop D without a kidney!

[Riki]

the other day as I'm waiting for them to call me back to be put on dialysis.. another dialysis patients asks.. why I'm still on dialysis?     its kind of hard to stop D without a kidney!

That was a stupid question..

I kinda like fooling with other patients that don't know me that well.  I wait for the right question.. has to be "how long have you been doing this?"   I say, "twenty years." They just look at me funny.  It's true, I started dialysis in 1991, but if they're not specific, I won't answer specifically.

Then there's the question, "how long have you been coming here?"  The unit has only been open since September, so I'm honest when I answer their question too..

I'm a jerk.. *LOL*

[MommyChick]

the other day as I'm waiting for them to call me back to be put on dialysis.. another dialysis patients asks.. why I'm still on dialysis?     its kind of hard to stop D without a kidney!

That was a stupid question..

I kinda like fooling with other patients that don't know me that well.  I wait for the right question.. has to be "how long have you been doing this?"   I say, "twenty years." They just look at me funny.  It's true, I started dialysis in 1991, but if they're not specific, I won't answer specifically.

Then there's the question, "how long have you been coming here?"  The unit has only been open since September, so I'm honest when I answer their question too..

I'm a jerk.. *LOL*

That is pretty funny though... I got another one...
On Wednesday I was on the machine & this guy aside of me over heard me talking to the nurse about the transplant list.. he then asks me.. don't they just have a place where they keep spare kidneys & can hand them out?
It was so hard for me to hold back laughing, but I explained it all to him & he was very surprised by it all! he though once you get on the list you get a kidney right away.
I wish it was that easy!!!   

[Riki]

Oh yeah... if only.. it's amazing how ignorant people can be about the whole process.. it's no wonder there's a shortage of donors, if they think there's a stockpile somewhere...

[chook]

Recently while I was in Sydney to support my sister and her hubby when he gave her one of his kidneys (and they are both recovering amazingly well!) I was speaking to a lady who was asking how it all happened. When I said they'd both undergone surgery the same morning, she was astounded: "So the doctors just took out one of his kidneys and put it straight in to your sister?", she asked. Yep, there's that cupboard thing looming again. What was this lady thinkinh? That they would tape him up and store it for a few days on a cupboard somewhere before passing it on ?!

[Cowdog]

Numerious times I've been asked, "You still have to go do that dialysis stuff?" Answer "Yes".
Then from the real lulus (and there are a lot of them out there) get "How much longer are you going to have to do that?" Standard answer now after getting sick of this particular question "Doc says I can quit whenever I want to." Then I quickly add "I'll die in about 2 weeks but I don't have to go if I don't want to."
Get the shocked face from them and they move on.

[PaDude]

Okay, here's the one that caught me of guard.  When i told my primary physician i had chosen to go on PD his comment was "Oh, I thought that was only for people who were gettting a transplant in the near future". All i could think of was Homer Simpson "Doh".

[Riki]

doctors are just as stupid as anyone else... trust me, I've seen many different ones since 1991...

The best was the time I was in the ER with a throat infection, and Mom and I both could hear the 2 doctors arguing over who was going to take me.. they'd seen on my chart that I was on dialysis and neither wanted me.. Mom ducked her head out the door and told them that i had a throat infection, and that seemed to calm them down..

being a kid on dialysis in this province was a pain in the neck.. but then, I was the only one, so that could have been the problem.... *G*

[kit78]

I've been at the same Dialysis center for 7 months now and to this day they STILL ask me if I am a diabetic!  I'm not going to answer them any more.  Plus, a friend commented that I must drink a lot of water.  No, I told her before I am limited to 4 cups a day so I only do ice.  Why do people ask questions if they don't listen in the first place?

[Riki]

Sometimes you have to keep telling them until it sinks in.. It took years for my Dad to figure out that what he thinks is healthy is great for him, but is not for me

[gothiclovemonkey]

my family still struggles with some of that as well. My dad is usually really good about asking me what i can have, if hes cooking dinner for us. Noone else really does, and they make the worse things i could possibly have LOL And the fluid is like a huge issue with everyone.
my guess is they just dont fully understand the consequences... so its not always on their minds like it is ours...
And, then, there are folks like my brother, who just dont care. His words, "I dont care about a fluid restriction, if i am thirsty, i will drink, and deal with the cramps and whatnot." HA! good luck with that, if you ever have to deal with it! ya jackass!

[cattlekid]

I get the "are you diabetic" from everyone in the health care field.  I want it tattooed on my forehead "I AM NOT DIABETIC!!"   

My latest aggravation is about the transplant list.  I get "I don't know why you haven't gotten a kidney yet" and "Where are you on the list?"  I don't know why I haven't gotten a kidney yet, your guess is as good as mine.  Guess I'm not praying hard enough to the kidney gods.     

[okarol]

I think I posted this before. When people ask, is Jenna on the list, I say, "There's a list?"

[WishIKnew]

After my transplant, "Now how long will this kidney last?"

WishIKnew

[kitkatz]

The dialysis tech last year who told me " Drink a lot of fluid to help your cold go away."  I laughed.

[Simon Dog]

doctors are just as stupid as anyone else... trust me, I've seen many different ones since 1991...

I was recently in the hospital and encountered MDs who:

- Didn't understand the term "residual function" when used in a renal context
- Did not understand why I was transfusion adverse, and actually said "I didn't know that" when I mentioned antibody sensitization
- Were not aware that home hemodialysis exists

[Desert Dancer]

I was recently in the hospital and encountered MDs who:
- Didn't understand the term "residual function" when used in a renal context
- Did not understand why I was transfusion adverse, and actually said "I didn't know that" when I mentioned antibody sensitization
- Were not aware that home hemodialysis exists

Then there are doctors who seem to have never heard of the field of genetics and refuse - refuse! - to believe others in your family have/had the same disease. Really? I mean, did you sleep through every one of your biology classes?

I get the "are you diabetic" from everyone in the health care field.  I want it tattooed on my forehead "I AM NOT DIABETIC!!"   

I am so with you on this. I've had docs order blood sugar tests even after being told REPEATEDLY that I'm not diabetic.