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Author Topic: Ignorant things people have said to you  (Read 464337 times)
RenalSurvivorDotCA
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« Reply #1250 on: January 18, 2012, 09:32:57 AM »
Quote from: Rain on January 18, 2012, 04:52:13 AM
Not sure how I was to react to this one.  I was at in center and I am one of the 2 self care patients.   They sat me in a different area then usual so I didn't recognize the people.  I was setting up my needles and tapes and getting the machine ready, and myself ready to needle. when the guy next to me asks if I'm a nurse.  I said no but I'm self care.  HE said  oh but that's the nurse job why would you want to take their job away from them.

Really really..

Apparently that guy doesn't realize that the nurse gets paid the same whether she (or he) does 5 patients or 3 patients that shift.  Really, the more patients who are self-care, the easier the nurse's job is.  Wow...
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Bajanne
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« Reply #1251 on: January 22, 2012, 06:00:55 AM »
Isn't it sad that this thread started in 2005 by LifeOnHold (who has since passed on) is still so alive and active?  Why is that?  The ignorance that we have to face (even from the medical people) is astounding!!  It seems this thread will last as long as we have an IHD!  They keep the ignorance coming!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
CebuShan
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« Reply #1252 on: January 22, 2012, 11:58:35 AM »
Quote from: Bajanne on January 22, 2012, 06:00:55 AM
Isn't it sad that this thread started in 2005 by LifeOnHold (who has since passed on) is still so alive and active?  Why is that?  The ignorance that we have to face (even from the medical people) is astounding!!  It seems this thread will last as long as we have an IHD!  They keep the ignorance coming!
  That is so sad but true.
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
bleija
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« Reply #1253 on: January 22, 2012, 02:10:16 PM »
the sad part is that ppl will continue to say ignorant and stupid things... and be clueless about dialysis even though its been around for how long now
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gothiclovemonkey
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« Reply #1254 on: January 22, 2012, 04:17:59 PM »
heck, its like that for many diseases and disorders... look at mental illness, or even aids... stupid people will always be around. its sad.
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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chook
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« Reply #1255 on: January 22, 2012, 05:44:45 PM »
The old saying 'ignorance is bliss' is so true. (I wish I was ignorant about some diseases and treatments that I know too much about.)
How lucky some people are to be healthy and ignorant.
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Diagnosed PKD 1967, age 8
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Commenced APD July 2010
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"To strive, to seek, to find...and not to yield!"
CebuShan
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« Reply #1256 on: January 22, 2012, 06:27:54 PM »
One of my biggest regrets is that when I was healthy and ignorant, I didn't fully appreciate it.
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
cassandra
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« Reply #1257 on: January 23, 2012, 02:45:15 AM »
stop regretting, just a waist of time. Just be happy you've once had a timet that you were healty and could be ignorant. So many people didn't even have that.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
big777bill
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« Reply #1258 on: January 23, 2012, 05:32:34 AM »
  I had a liver transplant on 3/22/2005 and when people would ask me about it you would be amazed at how many of them said to me "how long were you on dialysis before you got your liver?"  :o
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
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 Using new NxStage S High-Flow cycler 3/04/2014
Riverwhispering
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« Reply #1259 on: January 23, 2012, 08:08:22 AM »
I gotta say that before I found out i had CKD I had no clue about it.  I didn't know what dialysis was, not even a hint.   :shy;

Soooooo I just let it slide when people say ignorant things about it.   But thanks to you all now I have some good comebacks to say if it should arise  :rofl;
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gothiclovemonkey
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« Reply #1260 on: January 23, 2012, 02:29:49 PM »
heh so this weekend i hung out with a friend, who had fixed me a rather large mountain dew, i did drink all of it. then she said want some more, I said no thanks im on that silly fluid restriction. to which she said, "Oh yeah! Do you want some water?"   ???
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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CebuShan
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« Reply #1261 on: January 23, 2012, 05:53:01 PM »
Quote from: gothiclovemonkey on January 23, 2012, 02:29:49 PM
heh so this weekend i hung out with a friend, who had fixed me a rather large mountain dew, i did drink all of it. then she said want some more, I said no thanks im on that silly fluid restriction. to which she said, "Oh yeah! Do you want some water?"   ???
   :rofl;   :rofl;  Because Mountain Dew isn't fluid!!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
Riverwhispering
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« Reply #1262 on: January 23, 2012, 06:24:13 PM »
Goth that's too funny  :rofl; :rofl;
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It's only one step from the Jungle to the Zoo
Subeat
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« Reply #1263 on: January 24, 2012, 11:20:26 AM »
My husband's brother had a mild heart attack last week...no worries, he is fine and discharged now.  But when he was first admitted, there was some concern about his kidney function.  He told my husband that he probably wouldn't be discharged until he got a kidney transplant.  Now, he knows all about my kidney problems...did he honestly think it was that easy to get a kidney?
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Brightsky69
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« Reply #1264 on: January 25, 2012, 07:35:34 AM »
Subeat - Wouldn't that be nice....a kidney transplant on order whenever you needed it. I'll take two please!  ;D
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
amanda100wilson
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« Reply #1265 on: January 25, 2012, 07:44:25 AM »
Quote
Subeat - Wouldn't that be nice....a kidney transplant on order whenever you needed it. I'll take two please!

Well, they obviously are if you watch House. :bow;





EDITED: Quote error corrected - Bajanne, Moderator
« Last Edit: January 27, 2012, 09:27:48 AM by Bajanne » Logged
ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
billybags
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« Reply #1266 on: January 25, 2012, 10:56:05 AM »
I wont be greedy, one will do. Thank you. Will it come by post or Currier.
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CebuShan
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« Reply #1267 on: January 25, 2012, 01:38:19 PM »
As long as it doesn't come C.O.D.!   :rofl;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
CebuShan
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« Reply #1268 on: February 12, 2012, 10:56:55 AM »
I heard a good one today. Blue Cross/Blue Shield of Tennessee sent me a new information package with a listing of 24 hour info tapes you can listen to. Out of curiosity, I listened to the one regarding dialysis. They mentioned pd and hemo. Then went on to state "Neither one is painful". Really?! Just how long has the person that wrote this been on D?! Lol!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
amanda100wilson
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« Reply #1269 on: February 12, 2012, 11:21:40 AM »
More to the point, have they actually EVEN done dialysis?
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
galvo
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« Reply #1270 on: February 12, 2012, 03:50:55 PM »
Ha!
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Galvo
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« Reply #1271 on: February 12, 2012, 04:50:12 PM »
I had someone ask me if my liver had failed after I previous told them it was my kidneys. Lol. Shows they care I guess. HAHA
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The only reason I attend dialysis is for the tea and the biscuits!

Dialysis wasn't the end, it was just the beginning!

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tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #1272 on: February 17, 2012, 05:37:43 PM »
Quote from: Bajanne on January 22, 2012, 06:00:55 AM
Isn't it sad that this thread started in 2005 by LifeOnHold (who has since passed on) is still so alive and active?  Why is that?  The ignorance that we have to face (even from the medical people) is astounding!!  It seems this thread will last as long as we have an IHD!  They keep the ignorance coming!

I restarted it with another thread called "whats the dumbest thing someone has said to you" and got an email from the narrator asking if they could "combined" the two threads (mine and this one) so I said GO ahead!!   :2thumbsup;
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Annig83
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« Reply #1273 on: March 12, 2012, 10:36:46 PM »
This is a little off topic but in some way it runs along the same lines... it's just been bothering me and wanted to get some feedback.
My boyfriend has been the sweetest, kindest and understanding person in the 4 years we've been together.  His family has been so...how should I put this?  Insensitive...not there.... clueless on how they affect his life (if any and at all...just a glimpse... we had a son together a year ago... his mother has seen her grandchild once... his brother and sister...never call and when they do they need money, or something...anyway) His father passed away 2 years ago, and it's affected him and his brother a lot, since they were actually very close... however, today...this I feel is true ignorance....

My boyfriend texted his brother to wish him happy birthday.  His brother response was "Let me ask you a question, is it wrong that all I wanted was for Dad to call and wish me a happy birthday, even though he's not here anymore?"  My boyfriend responded " No, sometimes I wish he would call too, or that I could pick up the phone and call him anytime I wanted.  I just wanted to text you and let you know I was thinking about you on your birthday".  His brother's response?? "Yeah, well you're not the call I was waiting for..."
To top it all off... we were going finally go see his sister a few weeks ago, and I had become seriously sick with the flu, so we couldn't make it... now she's not talking to my boyfriend because she feels "I did it on purpose... oh, and I use my ESRD as an excuse!"  WHAT!??? Not once have you visited us!!!

My boyfriend was in tears, and I couldn't even comfort him because he was so angry and upset.  I haven't had anyone be directly ignorant to me lately about D, or ESRD, but this threw me for a loop!  Oh my goodness I want to call his brother and sister and smack them through the phone.... is that possible?!   :Kit n Stik;
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
big777bill
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« Reply #1274 on: March 13, 2012, 04:07:58 AM »
I believe they're working on an I-Phone app that will do that. :bandance; :rofl;
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
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