Ignorant things people have said to you

[kitkatz]

What an outfit and I do not have it yet, after all this time?!  Oh yes, it was the one with those needles and tape attached to my arm three days a week! I have had that outfit!

[KT0930]

What an outfit and I do not have it yet, after all this time?! Oh yes, it was the one with those needles and tape attached to my arm three days a week! I have had that outfit!

Kit, maybe you should wear that costume to a social function sometime, that MIGHT shut them up!

[KICKSTART]

One of my favourites ..i have several..is my perfectly healthy best friend telling me ..oh you dont know how tired i am , another is ..you are so lucky not to have to go to work. The last one she likes to say alot is ..oh im so broke , i got this bill and that bill to pay , like my bills are free! She has a partner so 2 full time wages coming in , free mobile phone and free use of a car (all paid for including petrol) You just cant win with some folk!

[paddbear0000]

One of my favourites ..i have several..is my perfectly healthy best friend telling me ..oh you dont know how tired i am , another is ..you are so lucky not to have to go to work. The last one she likes to say alot is ..oh im so broke , i got this bill and that bill to pay , like my bills are free! She has a partner so 2 full time wages coming in , free mobile phone and free use of a car (all paid for including petrol) You just cant win with some folk!

We must have the same friend! She's constantly complaining about being broke, yet her job pays for everything--car, car insurance, cell phone, gas, satellite radio! And she and her husband work full-time, with high salaries, and spend money like it's going out of style! I don't want to hear about your stupid house alarm and cable bills! If you can't afford 'em, don't get 'em! Try paying my medical bills, then you can whine about it. 

[CW]

I was wondering if there is a costume or a button I am supposed to be wearing?

Kit, I can't believe you've been on dialysis all this time and don't have your uniform yet. I've been told the hat is quite stylish, and the shoes aren't that hard to walk in. I'm surprised your centre hooks you up without it.

  

You are all crazy! and I love it 

[meadowlandsnj]

I keep getting "You don't look like you are on dialysis."  Gee, thanks.  What is that supposed to look like?  Is there a costume?  A dress code, maybe?

I get that one all the time!! Someone said to me a few weeks ago "You don't look like you're sick, maybe it's just a stage you're going through"  WHAT??? A stage? 
Even my doctor tells me I look good.  He told me I had nice healthy color the other day again.  What am I supposed to look like on dialysis?? 

Donna

[oleboy]

  My NEPH filled out the paper work so I could obtain a Handi-cap sticker so I would not have to walk very far because of my fatguie, I don't drive hardly anymore because of it. My wife pulls in I slowly drag my weak body out, an walk towards the store only to hear an elderly woman scream out her window at me those are for people that really need them A**hole!   I just waved.







EDITED: Fixed smiley tag error-kitkatz,moderator

[Steve-0]

People say to me all the time "Wow, you look great!"  Especially when they haven't seen me in a long time.

That's because over the past year, since my return to dialysis, I've lost over 20 pounds.  (I've lost 120 since my largest size, too.  A lot of that lost in my trials with illness.)

It just cracks me up that I've been losing weight because I'm freakin' sick, and people think I look "good".  Kind of a messed up culture.

~Steve

[kitkatz]

If someone asks me why I look so tired, I would love to give them an "I am sick" button.

[Gramapat]

I had someone ask me how often I had to go to the dialysis center and for how long.  I told her 3 days a week and I was on for 3 hours each time.  She said "Oh - well, that's not bad.  At least it's not like it's some big major thing."  We were on the phone and I just wish she could have seen my face.  I was so shocked I don't think I spoke for a full 2 to 3 minutes after she said that.   

[KT0930]

I had someone ask me how often I had to go to the dialysis center and for how long.  I told her 3 days a week and I was on for 3 hours each time.  She said "Oh - well, that's not bad.  At least it's not like it's some big major thing."   We were on the phone and I just wish she could have seen my face.  I was so shocked I don't think I spoke for a full 2 to 3 minutes after she said that.   

WTF?

[kidney4traci]

It just cracks me up that I've been losing weight because I'm freakin' sick, and people think I look "good".  Kind of a messed up culture.

I got that too, I lost like four dress sizes, but hhheeelllooo, I am really sick here!  But people think that And know that I have stabilized they say I don't look sick.... kk I think you should make that shirt for us all. 


Edited: Fixed quote tag - okarol/admin

[Kitsune]

I was wondering if there is a costume or a button I am supposed to be wearing? Or am I supposed to look like hell all of the time?

Oh yeah, didn't you know? We're all supposed to be sick, constantly vomiting, helpless little creatures whose entire lives revolve around dialysis,  or if we're not there, we're supposed to be lying in bed waiting for death to call upon us, or don't you watch Lifetime?

[skyedogrocks]

Rob's mother pissed me off last Sunday.  We had dinner at her house, along with his siser and her family.  After dinner, Rob went into the family room and took a nap.  She turns to me and says, "Every time he comes here he takes a nap.  It would be nice for him not to nap once in a while."  I said, you try having diabetes and kidney failure, then do dialysis 5 days a week, work full time M-F waking up at 5, come home at 4 and in bed at 10 or 11.  She mumbled something and went to do the dishes.  PUUUULEASE! 

[cherpep]

Skyedogrocks,

Next time he can make it easier on his mom & just take his nap at home.  How happy would she be then?

[NolaGail]

My husband (who has decided to divorce me after 24 years of marriage and CKD) keeps telling me that I don't look sick.  What he is specifically looking for I don't know.   I also think he is trying to stall until I get my transplant.  I have a living donor    I keep telling him that this is only another form of treatment, but. . .

NolaGail

[Sunny]

NolaGail,
He's leaving you aftr 24 years?
What a jerk. You're probably better off without him. Just don't let him leave you high and dry financially.
I'm glad you don't look sick. More power to you.

[lola]

Today we went to the transplant clinic to find out about getting Otto a fistula and he ran into someone he know's and when we explaind why he was there the guy say's "well at least you have Dialysis I hear it's not so bad" WTF!!!!!!!

[okarol]

Today we went to the transplant clinic to find out about getting Otto a fistula and he ran into someone he know's and when we explaind why he was there the guy say's "well at least you have Dialysis I hear it's not so bad" WTF!!!!!!!

Yeah, not so bad as:
Going before a firing squad
Getting kicked in the nuts 3 times a week
Being chased by blood sucking beasts through the gates of hell
Losing your entire family to the plague
Getting swallowed by a whale

See lola, you just need to put things in perspective! 

[lola]

OH silly me I guess DIALYSIS isn't so bad Thanks (hehehe)

[twirl]

just today I was telling my social worker and the director of the unit about this web site
the director said,"Why would anyone hate dialysis?"
Gee, I don't know........1. needles
                                 2. sore bottom
                                 3. blood
                                 4. vomit 
                                 5. cramps
                                 6. scales
                                 7. thirst
                                 8. diarrhea
                                 9. lab results
                                 10. directors of units

[okarol]

    

[Chris]

And that's when I push them into a chair and tape them down to be stuck and have to sit there for 3 to 5 hours. Then tell them you can't move much due to the needles.

[BigSteve]

And you have to do it for three days a week for the rest of your life unless someone loves you enough to
give you a kidney or the right person dies. Your director deserves a kick in the ass for asinine statements
like that.

[Chris]

How about print these replies and show it to them