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Author Topic: Ignorant things people have said to you  (Read 464183 times)
d-man
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« Reply #800 on: September 07, 2009, 10:41:09 PM »

this woman told me that it was dialysis that was going to kill me and that if I went to a doctor that understood how life energy work instead of a nephrologist I would get better, because the problem was not my kidneys really it was the dialysis that made me sick   ??? :urcrazy;

I really hate the "you are too young to be sick" and the "what did you do" just makes me want to fight!!  :Kit n Stik;
« Last Edit: September 07, 2009, 10:44:20 PM by d-man » Logged
Chris
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« Reply #801 on: September 07, 2009, 10:52:52 PM »

Wish I could remember what my oral surgeon said last wek that was really ignorant about kidney's and the pancreas. It was something so dumbfoundedly stupid coming from a surgeon who went to medical school too. I should have wrote it down at the time.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
twirl
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« Reply #802 on: September 08, 2009, 02:54:23 AM »

I left my thermos cup at home and I asked for an empty styofoam cup -
the tech told me she could not give me an empty cup it had to have ice or water in it
fine, give me a cup of water and I can pour it on the flour  :stressed;
I never got the cup  >:(
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kitkatz
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« Reply #803 on: September 08, 2009, 06:26:59 AM »

My own dear mother asked me on Sunday if I was still doing dialysis.  :rofl; :rofl; :rofl;
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Take it one day, one hour, one minute, one second at a time.

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« Reply #804 on: September 08, 2009, 07:06:58 AM »

Quote
My own dear mother asked me on Sunday if I was still doing dialysis.  :rofl; :rofl; :rofl;

Oh dear, she does not get the whole dialysis thing, huh?  :urcrazy;

Or did you sneak in a transplant when know one was looking.  :o

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
koutsounel
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« Reply #805 on: September 08, 2009, 08:20:46 AM »

I was asked what the initial problem that lead to dialysis was... I replied "congenital nephrotic syndrome" - then the doctor said "when did he first get it?"..... this was at an A&E when my son was 12 months old and the hydroceles needed repair due to PD fluid leaking downwards...  and this was a senior pediatric doctor... then they checked for relapse of nephrotic syndrome!!!!
Do you need to be a doctor to understand that you can't possibly have a kidney condition without kidneys???

We also have issues when people ask for urine samples.... (is it that complicated? no kidneys means no urine, surely you learn that when you train to be a nurse...)
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And no resident will say: “I am sick.”
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girliekick
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« Reply #806 on: September 10, 2009, 04:44:55 PM »


I really hate the "you are too young to be sick" and the "what did you do" just makes me want to fight!!  :Kit n Stik;

Also "too young to be sick"
And I hate it when someone older than me says "Just wait till your old" I mean wouldn't it be rude of me to say "Just wait till your sick"   ?????

Girl
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-Christmas '03 get news of esrd
-June '08 start hemo
-Thanksgiving '08 pd surg
-Feb '09 Stop hemo and manual exchanges
... start cycler
Setp 3 '09 On UNOS list (27th b day)
Dec 09 peritonitis
Loretta
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« Reply #807 on: September 10, 2009, 10:52:56 PM »

My chiropractor talks about healing my kidneys every time I see him.  He wants me to take some sort of pill that he thinks will make my kidneys better.  He said that if I didn't have any kidney function I would be going to dialysis more than three times a week.  (I have had one kidney removed and the other one is so small they couldn't find it on an ultra sound. I have told the chiropractor several times.)
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Des
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« Reply #808 on: September 10, 2009, 11:11:04 PM »

My husband (the dear) received a call for a free massage. He arranged it as a surprise for me last night.
The lady arrived at our house and she actually sells a Ozone bubble bath thingy with a machine that "clears" the air.

She started off with a questionare to establish existing diseases and problems. My kidney problems was mentioned and she said ..:" My dear, you should have contacted me a year ago already... I would have fixed your kidneys up for you but now we can at least reverse the damage"

OH! now that got my feathers ruffled........... Now I have found another cure (besides sauna's :)) have a Ozone bubble bath people!!

needless to say, I sent her packing VERY quickly.

Oh just by the way it treats Aids as well.........
She knocked on the wrong door.... we ain't no idiots  :)
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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« Reply #809 on: September 11, 2009, 03:02:42 PM »

She started off with a questionare to establish existing diseases and problems. My kidney problems was mentioned and she said ..:" My dear, you should have contacted me a year ago already... I would have fixed your kidneys up for you but now we can at least reverse the damage"

OH! now that got my feathers ruffled........... Now I have found another cure (besides sauna's :)) have a Ozone bubble bath people!!

needless to say, I sent her packing VERY quickly.

Oh just by the way it treats Aids as well.........
She knocked on the wrong door.... we ain't no idiots  :)
:rofl; :rofl; :rofl; :rofl; :rofl;

My neph ran into me at the hospital getting my blood drawn 2 weeks after transplant.  His exact words:
"So do you miss dialysis?"  umm...no, I can't say I do.....   "Good, because they already gave your spot away!"  umm....cool?!?
OR the person that asked my mom how long it would be until we knew my transplant was good (like when you have cancer and go into remission).  my mom's response?  "Never..."
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Hanify
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« Reply #810 on: September 11, 2009, 06:20:11 PM »

That the term Indian Giver is actually supportive of Indian people and means the opposite of what you think it does. lol
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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« Reply #811 on: September 11, 2009, 07:20:22 PM »

Quote
That the term Indian Giver is actually supportive of Indian people and means the opposite of what you think it does. lol

 :rofl; :rofl; :rofl; :rofl;

Oh Hanify. You are too funny!

 :clap; :clap; :clap;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
BigSky
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« Reply #812 on: September 11, 2009, 07:52:06 PM »

That the term Indian Giver is actually supportive of Indian people and means the opposite of what you think it does. lol

Actually it shows your ignorance to the other definition to this word and your ignorance in how it can apply in this country.


« Last Edit: September 11, 2009, 08:00:55 PM by BigSky » Logged
Jean
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« Reply #813 on: September 11, 2009, 11:48:22 PM »

Feeling a little grouchy Big Sky????
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okarol
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« Reply #814 on: September 12, 2009, 12:05:05 AM »

Stay on the topic please.

"Dialysis: General Discussion - Ignorant things people have said to you"

okarol/admin
« Last Edit: September 12, 2009, 12:06:19 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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Jean
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« Reply #815 on: September 12, 2009, 12:18:09 AM »

While talking to a friend the other day about the man who had the wrong kidney removed, she said, " now he has to go on continuous dialysis" I said, why? She said, he has no kidneys!!!! What could be the difference in having no kidneys or two that dont work?
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« Reply #816 on: September 12, 2009, 04:11:38 AM »

but didn't one of the kidneys work and they got the wrong one?
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dwcrawford
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Getting the heck out of town.

« Reply #817 on: September 12, 2009, 04:43:22 AM »

Jean, sorry, I do love you but that makes perfect sense to me.   lol.....
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Chris
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« Reply #818 on: September 12, 2009, 10:52:18 AM »

I went to a GI doc Thursday because he had been doing test from one of my hospital stays. I asked a couple questions about previous test result concerns I had and quoted what he told me then. He goes through my chart and can't find the test results and then says they we're normal. His eyes and facial expression show he didn't find them and that it was a complete 180 from what he told me before. So he tells me that he can send me to the city for further testing since he has no further input (No thank's I'll talk to my transplant hospital myself!) and then ask if I need any prescriptions. Heck, you never wrote a prescription for me in the first place and why now when your telling me I don't need to see you unless there are problems. I felt like saying sure, give me some oxycotin, vicodin, norco, etc, I think I can find a buyer and make a few bucks!  :banghead;  :Kit n Stik; And the idiot can't read my chart right! Still only thought I had a kidney transplant and yet my chart and copy of my med listings have kidney and pancreas transplant, so quit asking me about insulin and blood sugar throughout the day  :Kit n Stik; :Kit n Stik;

I'm not going back to him!
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
dwcrawford
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Getting the heck out of town.

« Reply #819 on: September 12, 2009, 10:55:35 AM »

Damn Chris, That downright scary.  Good decision not to go back to him.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
YLGuy
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« Reply #820 on: September 12, 2009, 12:28:39 PM »

OH! now that got my feathers ruffled........... Now I have found another cure (besides sauna's :)) have a Ozone bubble bath people!!

What if I brought the Ozone Bubble Bath into the sauna? 
Think about it
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Chris
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« Reply #821 on: September 12, 2009, 08:01:20 PM »

OH! now that got my feathers ruffled........... Now I have found another cure (besides sauna's :)) have a Ozone bubble bath people!!

What if I brought the Ozone Bubble Bath into the sauna? 
Think about it

Don't forget the magnets there Marc  :2thumbsup;  :rofl;
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
aharris2
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Volcan Pacaya, Guatemala

« Reply #822 on: September 13, 2009, 11:15:32 AM »

"You look like you feel really bad today", said to my brother at Panera shortly after a quick trip outside to lose his breakfast.

A. No he didn't look like he was feeling really bad.
B. What does one say to that - I am, thanks for noticing. I'm not, but thanks for letting me know I look like that. (There's always my answer - Go **** yourself, but my brother is vastly nicer than me :angel;.)

 :bow;
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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« Reply #823 on: September 13, 2009, 11:18:27 AM »

Oh, Alene,
There is nothing one wants to here more than "Gee you are looking bad!"  :sarcasm;

Sorry Rolando had a bad morning at Panera.

 :flower; :flower;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
dwcrawford
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Getting the heck out of town.

« Reply #824 on: September 13, 2009, 11:21:26 AM »

same thing said to me this week.  My answer was, "thanks for your concern."  Then she says, what can I do to help?  My answer was, "thank you, I'll be fine in just a few minutes".
Logged

Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
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