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Author Topic: Amanda  (Read 3615 times)
Rose From OZ
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« on: January 02, 2008, 03:15:45 PM »

Hey Everyone,

I hope everyone had a safe and healthy christmas and new year. I am back at work, which means i have a computer, and i have just moved into my new place, which has been great. Amanda will be picking up her new computer Any day now and will be online soon. She has also had a few stays in hospital because of high fevers, which no one can explain. She was in hospital on new years eve, and made it out just in time to see the sydney fireworks, and bring in the new year. She is in hospital at the moment getting a few things checked up because her fevers had continued for the last 2 days again. She should be back home tonight.

One last thing - Amanda wanted me to thank Laurie for her beautiful secret santa Gift. She loved it. Thank you.

Rose
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Deanne
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« Reply #1 on: January 02, 2008, 03:20:22 PM »

Welcome back -- You've been gone for a long time! I bet you're loving your new home.

I'm sorry Amanda is sick. I hope they find the cause soon and it's nothing serious!

Deanne
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
charee
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« Reply #2 on: January 02, 2008, 03:24:30 PM »

Thanks Rose Amanda rang me from hospital on news years day , have been waiting to hear what the high temps were from. Please tell her i'm thinking of her. :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
angela515
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i am awesome.

« Reply #3 on: January 02, 2008, 03:38:47 PM »

Congrats on having your own place now Rose and going back to work. I was how Amanda was, I hope she will be home soon and I am thinking of her.  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
goofynina
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He is the love of my life......

« Reply #4 on: January 02, 2008, 04:02:15 PM »

Happy Housewarming Rose  :waving;,  just remember, love makes a house a home  :cuddle;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Rose From OZ
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« Reply #5 on: January 02, 2008, 04:14:40 PM »

Amanda has a severe case of CMV. What is it?? just found out now?
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Wattle
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« Reply #6 on: January 02, 2008, 04:18:05 PM »

Happy Housewarming to the newly weds! We need more Wedding pics Rose   ;D


Please give Amanda a BIG {{{{{Hug}}}}} for me. I hope she is feeling herself soon.   :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Wattle
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« Reply #7 on: January 02, 2008, 04:20:23 PM »

Amanda has a severe case of CMV. What is it?? just found out now?

Have a read of this post. It will help explain it.

http://ihatedialysis.com/forum/index.php?topic=4349.0
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
charee
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« Reply #8 on: January 02, 2008, 04:21:46 PM »

hey rose there a few threads on cmv , not sure how to put the links here, put cmv in the search and they should come up, give her my love and congratulations to you for moving into your own place.
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
charee
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« Reply #9 on: January 02, 2008, 04:22:47 PM »

thanks sally thats want i was trying to do
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: January 02, 2008, 04:24:18 PM »

 :cuddle; Poor Manda May - give her my love, Rose, and thank you for updating us.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #11 on: January 02, 2008, 04:41:34 PM »

Good news for you Rose but I've about had it with all this hospital and fever stuff when it comes to our manda girl. Please give her our best wishes for a speedy and permanent recovery.  :grouphug;
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Katonsdad
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« Reply #12 on: January 02, 2008, 04:42:20 PM »

I posted a topic on CMV . This thing knocked me flat ..
It was a long time before it was diagnosed and It did not take
to long to clear up after the correct meds were prescribed .

Best wishes for a speedy recovery

Katonsdad
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
willieandwinnie
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« Reply #13 on: January 02, 2008, 04:47:33 PM »

Please tell Amanda that I'm thinking of her.  :cuddle; Len has justed tested positive for CMV. They doubled his valycte and told him to rest. Len was positive and his donor was negative. They said he will be on stronger dose of valycte for 3 months and then will be tested again. He didn't run a fever but was extremely weak and tired all the time with muscle weakness really bad. Please tell her to get better soon and thanks for letting us know.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
goofynina
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He is the love of my life......

« Reply #14 on: January 02, 2008, 05:04:01 PM »

I am sorry i forgot to send my well wishes to Amanda, i hope she starts to feel better soon, please tell her i (we) are sending our love  :grouphug;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
paris
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« Reply #15 on: January 02, 2008, 05:36:55 PM »

Amanda has been through so much.  Thank you Rose, for letting us know. Sending many good wishes to her and pray things will finally settle down for her.   

Rose, congratulations on your new home. I know you and your husband will fill it with much happiness.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Romona
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« Reply #16 on: January 02, 2008, 07:28:33 PM »

Tell Amanda "Get Well Soon".
 :)
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Joe Paul
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« Reply #17 on: January 02, 2008, 10:03:55 PM »

Tel Amanda hello and that I hope she feels better soon. Thankyou  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Laurie
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May 13, 2008

« Reply #18 on: January 03, 2008, 04:39:58 AM »

Congratulations on your new home Rose.
I'm sorry to hear about Amanda. Please tell Amanda that I'm thinking about her and I hope she feels better soon.  :grouphug;

I'm glad she liked her gifts. I had a lot of fun shopping for her  :)

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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
2_DallasCowboys
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« Reply #19 on: January 03, 2008, 06:57:18 AM »

Best of luck in your new home! :bestwishes;

I hope Amanda feels better, and the Drs. can
get to the bottom of what is causing her to
get fevers.  She has been thru enough! 
Sending prayers your way down under.

Anne



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KR Cincy
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Home hemodialysis since May 07

« Reply #20 on: January 03, 2008, 08:39:22 AM »

Rose...so GREAT to hear from you and I'm glad things are going so well. Enjoy the new home and job and keep on posting...we so enjoy hearing from you.

And please, when you can, tell Amanda I'm thinking of her and have her best health and happiness in my thoughts. Can't wait for her to be back here as well!
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Not giving up...thanks to Susan.
RichardMEL
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« Reply #21 on: January 04, 2008, 12:29:43 AM »

Oh no!! Amanda was going so well then another setback... and at the bad time of year for it... or maybe not since I guess she wouldn't be missing anything much??? hmmm... oh I so want her better soon her and that lil sleepy pesky kidney of hers! :) Best wishes and love to Amanda!!!

Rose... enjoy your new home! :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
MyssAnne
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« Reply #22 on: January 04, 2008, 01:19:37 AM »


  Rose, congratulations on your new home! 

   Hopefully Amanda's latest setback will be fixed easily, and no more, 2008 is gonna be a success!!

     GIve her my best wishes, that she get better soon, and the new computer works perfectly
      as soon as it is plugged in!
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