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Author Topic: Hope I'm doing this right  (Read 4600 times)
amanda
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Just married for the free ice chips he brings home

« on: December 31, 2007, 08:03:22 PM »

Hello my name is Amanda, my husband is Robert he has been on dialysis for 3 yrs  previous to this he had a transplant for 14yrs and dilaysis for 8 mos previous to that.  Hopefully I will be giving him a kidney we have to retest since we moved but a cpl of yrs ago we tested at UCSF and we were a really good match, but we really aren't in a hurry.  We have an 8 yr old son who's really great with this and we try to keep him filled in but he's used to it since Rob's always been sick in one way or another since he was born.  Anyways that's us we just try to take things one day at a time and are greatful that things could be worse.
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I hate dialysis too
Romona
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« Reply #1 on: December 31, 2007, 08:09:52 PM »

Welcome Amanda! You'll love it here. :bandance;
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paris
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« Reply #2 on: December 31, 2007, 08:21:31 PM »

 :welcomesign;  Nice to meet you!  You have found a great site and you will love all the support and help you will find here. We are definately a family and care very much for each other.  Sounds like you will have a lot to share with us.  Looking forward to more posts.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Ang
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« Reply #3 on: December 31, 2007, 08:37:19 PM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
kidney4traci
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« Reply #4 on: December 31, 2007, 08:47:23 PM »

Welcome!  This is a great sight, lots of great support and information.  Look forward to hearing more of your story.  Happy New Years!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: December 31, 2007, 09:03:56 PM »

 :waving; Hi Amanda,
It was nice meeting you in chat! I hope all goes well with your hubby!
Welcome!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #6 on: December 31, 2007, 09:05:49 PM »

Welcome Amanda, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Mimi
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For any who do not like me I use - prayer.

« Reply #7 on: December 31, 2007, 09:24:49 PM »

Hello and welcome Amanda.  Don't worry about doing anything right, we are here to help you.  Looking forward to hearing more about your family and situation.  The nice thing about this site is everyone knows how to keep their
head up and keep plugging.
 :welcomesign; :welcomesign; :welcomesign; :welcomesign; :welcomesign;

Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
oswald
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« Reply #8 on: December 31, 2007, 09:46:59 PM »

 :welcomesign; :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
kitkatz
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« Reply #9 on: December 31, 2007, 10:04:08 PM »

One day at a time is the only way to survive all of this stuff that goes with dialysis.  Welcome to the site!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
goofynina
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He is the love of my life......

« Reply #10 on: December 31, 2007, 11:34:38 PM »

Hi Amanda, Welcome to ihatedialysis.com (it was nice chatting with you) ;)   Yep, you did it just fine, thank you for your introduction, it gives the member a better chance to get to know you and welcome you formally  :waving;  You just continue to take it one day at a time, if it works for you, then its all good :)   Please feel free to read through the posts and do not hesitate to stop and add some questions, comments and/or concerns of your own, we are here for you and we look forward to hearing more from you ;)





Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
willieandwinnie
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« Reply #11 on: January 01, 2008, 05:28:06 AM »

 :welcomesign; Amanda and Happy New Year.  :snowman;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
jbeany
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Cattitude

« Reply #12 on: January 01, 2008, 10:40:52 AM »

Welcome to the board!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #13 on: January 01, 2008, 01:23:12 PM »

Welcome to our community!  Also, I wish you an absolutely tremendous New Year!   You are doing it right.  One of the most right things you can do is check out IHD.  this is going to be of real help to you as you and your husband continue to deal with this renal challenge.   there is so much here.  I saw that you have already checked out the chat.  that is really good.  this site has become a real family as we support each other.  so welcome to the family!  :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
del
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del and willowtreewren meet

« Reply #14 on: January 01, 2008, 01:42:41 PM »

 :welcomesign; from  :canadaflag; and Happy New Year!!
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Don't take your organs to heaven.  Heaven knows we need them here.
MyssAnne
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« Reply #15 on: January 01, 2008, 01:51:56 PM »

Welcome, Amanada!!!  And Happy New Year!!!

Sometimes that's all we can do, just plug away. You're doing the best you can, and that's
alll anyone can ask of you!!

 :welcomesign; :welcomesign; :welcomesign;
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Razman
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« Reply #16 on: January 01, 2008, 03:07:32 PM »

Welcome aboard Amanda !  I'm sure that your husband is very lucky to have you by his side.  Look around that site and ask any question you want .   :welcomesign;
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keefer51
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« Reply #17 on: January 01, 2008, 06:20:54 PM »

 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
orphans_mom
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« Reply #18 on: January 02, 2008, 04:25:59 PM »

Welcome to our IHD family.
 :welcomesign;
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Orphans_Mom
Huntington, WV
Caregiver, Husband started dialysis 8/12/07
kellyt
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« Reply #19 on: January 02, 2008, 04:52:05 PM »

 :waving;     :welcomesign;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
RichardMEL
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« Reply #20 on: January 04, 2008, 12:24:15 AM »

Welcome Amanda... such a pretty name :) I wish you and Rob (and your son!) all the best :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Lori1851
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This is me Lori , Dustin's mom

« Reply #21 on: January 04, 2008, 07:26:13 AM »

 :waving; Amanda,
Welcome to this site!!! Lots of good peeps on here!
Lori/Indiana
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kevinswife
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« Reply #22 on: January 05, 2008, 10:19:27 AM »

 :welcomesign;

I'm gald you are here.  I am also the wife of a patient.  My husband was on dialysis for over 3 years (both CAPD and hemo) before receiving a kidney and panceaus transplant in 1999.  I am looking forward to seeing more of your posts.

kevinswife
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Wife and care partner to Katonsdad. 
May you rest in peace my dear husband.
donnia
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me and my donor Joyce

« Reply #23 on: January 06, 2008, 12:08:28 PM »

 :welcomesign; Amanda
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
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