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Author Topic: POLL: Causes of kidney failure / disease - Please see if yours is shown here.  (Read 102041 times)
paddbear0000
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« Reply #25 on: December 19, 2007, 10:33:21 AM »

Type 1 diabetes.  >:(
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #26 on: December 21, 2007, 05:24:25 AM »

Polycystic Kidney Disease. A routine medical for an insurance policy revealed proteinuria and subsequent clinical tests showed PKD. It was explained that it was hereditary but no-one in my family ever showed outward symptoms of kidney disease.

After two years of marking the rate of deterioration they said that the disease was unlikely to get to the point of dialysis until very late in life but in the last few years the rate accelerated and in June 2007 creatinine reach 600 (6.0 USA Measurement)  It was then explained that my kidney function was now only 10% and now it was time for dialysis.

 I was gobsmacked, shouldn't I be feeling unwell, shouldn't I be overloaded with fluid plus all the other symptoms. They explained that even though my energy levels were good, had full fluid output,never had a kidney infection and never experienced back pain which is common in PKD, that the kidneys were failing to process blood toxins from my body and that reason alone is enough to require dialysis.

So under protest I agreed. I chose PD and had the Tencoff fitted and here I am 15 months on. I still dialyse under mild protest because I am still symptomless except for intermittent bouts of insomnia and restless legs, in fact stuff dialysis over Christmas, I'm going to stay off it for about four days. I've done it before without any ill effects and no fluid gain.
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« Reply #27 on: December 28, 2007, 01:13:46 PM »

When someone is given the reason for kidney failure as hypertension, isn't there an underlying cause? I know my grandparents had high blood pressure, but they were in their 70's and had life long high salt diets and weight issues, so I assumed that was the cause. I need to learn more.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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orphans_mom
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« Reply #28 on: January 02, 2008, 05:21:10 PM »

106 degree F fever and heart attack brought on by an infection in a pic line.
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Orphans_Mom
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qwerty
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« Reply #29 on: January 02, 2008, 05:33:34 PM »

I have chronic pylenonephritis so the doc's are always on the lookout.  Problem is I'm never symptomatic until it's severe enough with the first symtom being severe low back pain. By the time I'm symptomatic I usually end up hospitalized. Knock on wood I havent had to deal with what the majority of you have. Right now I'm on the caregiver end instead.  :bow;
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« Reply #30 on: January 05, 2008, 04:26:41 PM »

Geez I had mine wrote down and now I can't find it, it only has about 37 letters in the name  :-\

I will find out on Monday and post in your pole, I think this is VERY interesting!

Kimcanada
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #31 on: January 05, 2008, 04:58:05 PM »

My Kidney Failure was caused by TTP at the age of 24. Here we are at the age of 33 transplanted WOOHOO   :clap;

Thrombotic thrombocytopenic purpura (TTP or Moschcowitz disease) is a rare disorder of the blood-coagulation system, causing multiple blood clots to form in blood vessels around the body.Most cases of TTP arise from deficiency or inhibition of the enzyme ADAMTS13, which is responsible for cleaving large multimers of von Willebrand factor. This leads to hemolysis and end-organ damage, and may require plasmapheresis therapy.

Signs and symptoms

Classically, the following five symptoms are indicative of this elusive disease:

Fluctuating neurological symptoms, such as bizarre behavior (That's me at least I have a reason  ;) ) , altered mental status, stroke or headaches (65%);
Kidney failure (46%);
Fever (33%);
Thrombocytopenia (low platelet count), leading to bruising or frank purpura;
Microangiopathic hemolytic anemia (anemia, jaundice and a characteristic blood film).
A patient may notice dark urine from the hemolytic anemia. Because of the many small areas of ischemia produced by clots in the microvasculature, symptoms may be diffuse and fluctuating, including the classical bruising, confusion, or headache, but also nausea and vomiting (from ischemia in the GI tract or from central nervous system involvement), chest pain from cardiac ischemia, seizures, muscle and joint pain, etc.



« Last Edit: January 05, 2008, 10:35:50 PM by tamara » Logged

ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
boxman55
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« Reply #32 on: January 05, 2008, 05:07:23 PM »

Mine by type two diabetes and high blood pressure...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
KT0930
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« Reply #33 on: January 05, 2008, 07:18:20 PM »

I answered early-on and never said in the thread what caused mine. I got an e. coli infection at the tender age of 10 months, and that led to hemolytic uremic syndrome - aka hemolytic uremic anemia - that was the downfall of my native kidneys, and what I put in the poll. Have lost both transplants to good ole chronic rejection.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Wattle
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« Reply #34 on: January 05, 2008, 11:59:19 PM »

I also answered early-on and never said in the thread what caused mine.


Polycystic Kidney Disease (PKD). Inherited from my father, who had inherited it from his father. The odds are 50/50. I didn't win the lottery.  :-\
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PKD
June 2005 Commenced PD Dialysis
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Slywalker
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« Reply #35 on: January 06, 2008, 10:32:32 AM »

I had to check other on the survey because no one every really gave me a firm diagnosis.  At the time they noticed my kidney failure it was just after I completed six months of chemo for breast cancer.  However, my mother died while doing dialysis (staff infection that went untreated) and we never knew what caused her kidney failure.  I went to a family reunion on her side a couple of years after her death and found some of her sisters and/or a couple of my cousins also had kidney failure.  Now one aunt is on hemodialysis and a cousin recently had a kidney transplant.   My original kidney specialist gave me a diagnosis that basically said it was hereditary.  The biopsy of my kidneys only showed scar tissue of an unknown origin.  My kidneys were also classified as "small" and the docs predicted for some reason they stopped growing when I was in my early teens.  So, my mother's kidney failure was not diagnosed until she was in her late 50's.  Mine was when I was 44.  I hold firmly to the belief that the chemo accelerated my kidney failure. 
Recently my 25 year old daughter was diagnosed with "stage 2" kidney failure.  The bad DNA has been passed on - but only on the female side of the family. 
Big mysteries.

Sandyb

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GuyIncognito
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« Reply #36 on: January 07, 2008, 05:54:18 AM »

I put myself down in the Other category... the Neph's say it is a disease is similar to Alports but without the cysts, It effects about 50% of the family, male and female.
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MelissaJean
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« Reply #37 on: January 07, 2008, 06:08:44 AM »

Even though I voted 'other' (my kidney failure was due to medications from Cystic Fibrosis and anti-rejection meds from my lung transplant), it was soo interesting (and sad) to see how many causes of kidney failure there are.   Hugs to everyone  :grouphug;
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~Melissa~

"just run with me through rows of speeding cars"

- Born with Cystic Fibrosis
- Received double lung transplant 11/9/2001
- Complications from transplant:  Diabetes, Kidney Failure
- Started dialysis 6/6/06
knmiller
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« Reply #38 on: January 08, 2008, 02:56:38 PM »

I had a bad case of strep throat in college that I felt wasn't all that bad.  Unfortunately, it later turned into IgA Nephropathy...  Lesson to be learned from all of this...If you get a sore throat, get your butt to the doctor and don't sit on it.  I learned the hard way.
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Loretta
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« Reply #39 on: January 21, 2008, 08:08:57 PM »

This is a good topic.

My causes could be listed but I don't know the medical terms for what caused mine.  I lost my left kidney to blood clots in the renal vein in 1989.  I have continued to have clotting problems but what causes the problems have never been diagnosed.
I lost the other kidney  in Jan 2007 due to an alergic reaction to the antibiotic I had to take for repeated MERCA infections.
I am currently having problems with the right kidney because of scare tissue due to the treatment of cancer in the kidney.
Loretta
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LightLizard
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« Reply #40 on: January 22, 2008, 09:54:27 AM »

i'm still not sure what eaxactly caused my kidneys to fail.
at age two, in 1951, i developed pernicious anemia. i was given a complete blood transfusion to save my life.
in '51, there was no knowledge of hepatitis C, and so it wasn't screened back then.
i motored along for over 50 years before it took me out. perhaps it was hypertension, caused by my immune system's attempt to fight the hep C virus. maybe it was the six weeks of interferon i was given, before the gut bleed it caused almost did me in and they stopped the treatments. i would like to know, but i have a feeling that my neph is unsure, as well.
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rimbo74
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My older brother and me (I'm on the right)

« Reply #41 on: January 22, 2008, 08:55:20 PM »

I know there are more than 3 Alports people out there....

the must not be checking in very much.  Guess the same goes for me.   :waving;
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1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
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« Reply #42 on: January 23, 2008, 01:10:33 PM »

A related thread -  "Why are you on dialysis?...in short?" --> http://ihatedialysis.com/forum/index.php?topic=1717.0     
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
bolta72
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« Reply #43 on: January 23, 2008, 01:15:55 PM »

So I have my interview with the transplant surgeon and he tells me my kidney failure was not caused by high blood pressure and all my other tests come back negative as far as the cause goes.  :-\
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gotta do what I gotta do.. 2 yrs in ctr hemo
okarol
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« Reply #44 on: February 23, 2008, 01:10:48 PM »

So I have my interview with the transplant surgeon and he tells me my kidney failure was not caused by high blood pressure and all my other tests come back negative as far as the cause goes.  :-\

So they have no idea?  ???
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
vandie
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« Reply #45 on: February 23, 2008, 02:42:36 PM »

My doctors were never able to pinpoint the cause of my kidney failure.  Perhaps an infection or a medication years ago.  The biopsy showed a lot of scarring but gave them no indication of the cause.

xoxo
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
isurvived
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« Reply #46 on: February 23, 2008, 02:52:35 PM »

By all indications, mine was caused by unrecognized high blood pressure. Since everyone in my immediate family has high blood pressure, I am inclined to agree with the diagnosis.
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okarol
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« Reply #47 on: March 30, 2008, 01:22:01 PM »

 :bump;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #48 on: March 30, 2008, 02:01:36 PM »

Well I had type 1 diabetes with high blood pressure = double whammy
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
twirl
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« Reply #49 on: March 30, 2008, 02:34:50 PM »

PKD
grandfather
mother
me, not my twin or older sister
my daughter, Stasie (Stacy)
my daughter- Melissa and a diaprhmatic hernia at birth ( she has one working lung but she is a cheerleader and an drill team officier
my son- we do not know and he would worry too much, he doesn't want to know now
            He is on his way to play football at A&M, we are really Texas Fans, but that's what he wants (children will turn on you)
            He is going to be some kind of an engineer
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