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Author Topic: Severe headaches  (Read 7895 times)
Adam_W
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Me with Baron von Fresenius

« on: December 06, 2007, 06:45:38 PM »

For the last week, I've been having cases of severe headaches only on the left side of my head. They usually last less then a minute, then they're gone, then a few minutes later, I'll have another one. They seem to worsen when I look at any kind of light. I talked to my nurse about them and she thinks they might be cluster headaches. All my vitals are normal when I have these, so I don't think it's blood pressure related. I'm going to call my primary care dr tomorrow and schedule an appointment to have this checked out, because it's getting steadily worse. Has anyone else experianced something like this?

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Black
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« Reply #1 on: December 06, 2007, 07:59:19 PM »

Sounds like migraine or cluster headaches but do get it checked out ASAP as it could be something more serious.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
kitkatz
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« Reply #2 on: December 06, 2007, 08:22:45 PM »

Get your neck checked by a chiropractor.  Something may be out of whack along the neck area of the spine.
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Take it one day, one hour, one minute, one second at a time.

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Ang
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« Reply #3 on: December 07, 2007, 09:05:18 PM »

adam,


           a  patient  at  my  centre  had  headaches  that  would  last  for  10  minutes  then  subside  over  the  folowing  hour  or  so.
after  extensive  searches,the  only place  left  to  check  was  his  teeth, bingo.
an  extraction  and  little  bit  of  other  work  he  was  cured  of  the  headaches  and  $700  poorer.
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Romona
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« Reply #4 on: December 08, 2007, 08:40:03 PM »

My husband had cluster headaches about 12 years ago that had us running to doctors for help. Please get checked to rule the serious stuff out. Cluster headaches can last for awhile then disappear for months or years. Good Luck to you and I hope you are pain free soon.
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paris
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« Reply #5 on: December 09, 2007, 02:34:29 PM »

My husband also gets cluster headaches.  He can't function when they hit, but then they go away as quickly as they come.  They seem to hit in the spring and fall, making us think they could be allergy related.  Doctor doesn't give any good answers.  I hope you find some relief. Let us know what the doctor says.   Also, cluster headaches are more common in men.
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goofynina
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« Reply #6 on: December 09, 2007, 10:29:21 PM »

Any news on those headaches your getting Adam?  What did the Dr. say?  Hope your feeling better soon  :cuddle;
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willieandwinnie
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« Reply #7 on: December 10, 2007, 03:35:45 AM »

Adam

Hope you are feeling better.
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Adam_W
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Me with Baron von Fresenius

« Reply #8 on: December 11, 2007, 08:05:14 AM »

I had my dr's appointment yesterday, and he thinks it may be postherpetic neuralgia, an irritation of a nerve in my head. He put me on Gabapentin three times a day (which happens to be the exact same medicine my mom takes for seizures), which is supposed to suppress the nerve irritation. I will  also be having an MRI on Friday.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
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« Reply #9 on: December 11, 2007, 08:42:04 AM »

I hope the medication helps. Good luck with you MRI.  :cuddle;
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Deanne
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« Reply #10 on: December 11, 2007, 10:07:24 AM »

I hope your MRI goes well! How soon will you know if the medication works?
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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« Reply #11 on: December 11, 2007, 11:43:59 AM »

Glad he gave you something to get relief from the pain.  Keep us posted.

BTW, the Lyrica I take for peripheral neuropathy and fibromyalgia, and which Mike took for RLS, was also originally an anti-seizure medication.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
goofynina
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« Reply #12 on: December 13, 2007, 04:42:49 PM »

Hope the Gabapentin is working for you Adam, please let us know how the appt. goes tomorrow.  :2thumbsup;  Good luck  :waving;
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Adam_W
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Me with Baron von Fresenius

« Reply #13 on: December 19, 2007, 09:26:50 PM »

I've kind of been busy the last few days, so I'll give a late update. The Gabapentin has only partially worked. It has somewhat decreased the frequency of the headaches, but they still happen. In fact, I'm getting one right now.................Ok, it's gone now. For the first few days, the side effects of the medicine were almost worse than the headaches themselves. It made me so tired I just wanted to sleep all day, and when I was out of bed, I would get so dizzy it was safer for me to remain in bed. Fortunately those have resolved for the most part. The MRI went well, but I haven't gotten the results back. I think I'm going to call tomorrow and ask about that. I'll try to remember to give updates.

Adam
Logged

-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
spacezombie
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Melissa: ESRD since 1992, transplant June 10, 2008

« Reply #14 on: April 25, 2008, 03:11:53 AM »

I get migraine headaches which are made worse by dialysis (especially if I take a lot of fluid off at once) and also when I am anemic. But if these headaches are new for you I would definitely mention them to a doctor. Hope you feel better!
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
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« Reply #15 on: April 30, 2008, 11:43:36 AM »

I am having headaches all the time.
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Jill D.
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« Reply #16 on: May 02, 2008, 08:08:51 PM »

I have been having daily headaches since the second week of March. When they started I thought I had picked up some "crud" that was going around - went to the ER, had x-rays, CTscan, bloodwork, urinalysis, flu test, spinal tap. The spinal tap only gave me a spinal tap headache on top of my "head in a vise" headache. Finally determined I had a virus that settled in my head. I don't know if the lingering headaches are from the virus, or allergies or what - but they suck. Sometimes become migraines. Had to wean myself off pain meds - have been getting some relief from my chiropractor, but the headaches are so random.
Prior to this I rarely had headaches.
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Adam_W
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Me with Baron von Fresenius

« Reply #17 on: May 03, 2008, 09:18:32 AM »

Since my last update on the headaches, the Gabapentin has started working as it should, and I don't get the headaches anymore. It seems it just took a while for the drugs to start having an effect.

Adam
Logged

-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
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