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Author Topic: Starting dialysis tomorrow  (Read 9232 times)
Wattle
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« Reply #25 on: December 05, 2007, 09:58:16 PM »

If surviving Dialysis has taught me anything over the past few years, it's that I'm stronger that I ever knew.

And that I can battle anything and win.

That's exactly how I feel Stacy. Thank You for saying it.   

:boxing;  I am like the lion in the Wizard of OZ. "Let me at 'em, Let me at 'em" I have gained the courage to research, question and demand appropriate care. Knowledge is everything.
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June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
kitkatz
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« Reply #26 on: December 05, 2007, 10:05:05 PM »

I like the late shift. If only they could put it a little later.  Then it would be dialysis, snack and beddy bye!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
BigSteve
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« Reply #27 on: December 06, 2007, 09:43:09 AM »

I almost hate to say it since many of you have had a tough time
during your first dialysis, but I had a very smooth first treatment.
I was on for 2 1/2 hours for this time but will increase to 4 because
of my size. The Lidocaine needle did hurt somewhat, but the tech
was very good with the dialysis needles and I didn't really feel them
going in. I felt fine at the finish and could drive myself home. Luckily
the center is less than 5 miles from my home.
However, you people neglected to tell me one thing about hemodialysis.
It's f___ing BORING sitting there for that length of time. I used the IPOD
as much as I could. I will have to bring Xword puzzles and Suduku. Thanks
again for your kind messages. Steve
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"I yam what I yam what I yam." Popeye's immortal words.
"Getting and spending we lay waste our powers"
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donnia
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me and my donor Joyce

« Reply #28 on: December 06, 2007, 10:05:54 AM »

Oops!  Yep, it is pretty boring!  My unit has tvs at each chair...but at my time there is nothing good on.  I usually take my portable DVD player.  I am working on getting a laptop.  I have one but it sux and I cant get online with it.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
jbeany
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« Reply #29 on: December 06, 2007, 10:50:35 AM »

Glad it went well for you, Steve!  And yes, dialysis is usually boring - but fair warning - the boring days are MUCH better than the exciting ones!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

kitkatz
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« Reply #30 on: December 06, 2007, 02:26:15 PM »

I think you need to read the thread entitled Things to do while at Dialysis.   Lordy it is boring!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bajanne
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« Reply #31 on: December 06, 2007, 10:57:46 PM »

Glad to hear your first session went without a problem.  I stopped taking lidocaine, because it stung so much, I decided I might as well take the stick of the needles and be done with it!
As jbeany said, be thankful for boring sessions.  It's a good time to get in some good reading, meditation, etc. My favourite sessions are when I sleep from start to finish.
Hope everything continues well for you.
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Joe Paul
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« Reply #32 on: December 07, 2007, 10:37:12 AM »

Good your first session went well. Did they give you any idea of a dry weight goal yet?
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"The history of discovery is completed by those who don't follow rules"
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MyssAnne
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« Reply #33 on: December 07, 2007, 10:42:12 AM »

BigSteve, I am so glad it went so well! I hope it stays that way for you!  It IS boring. You're stuck in a chair and can do only anything that will allow you to sit quietly. Sleeping is good. It's one way of catching up! 
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goofynina
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He is the love of my life......

« Reply #34 on: December 07, 2007, 02:08:39 PM »

Glad to hear your first session was an easy one BigSteve, I hope all your sessions to come are just as easy too  :2thumbsup;
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BobT1939
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« Reply #35 on: December 07, 2007, 04:57:25 PM »

Very happy to hear your first day went so well. Lets hope many more follow./bobt
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BobT
BigSteve
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« Reply #36 on: December 12, 2007, 11:20:10 AM »

I am slowly getting the facts about my dialysis from the staff. I think they
are used to the overwhelming majority of the patients who just lie
in their chairs and vegatate for the shift. I am still working to determine
dry weight. How should that be determined on a new patient such as
myself?
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"I yam what I yam what I yam." Popeye's immortal words.
"Getting and spending we lay waste our powers"
If it's too big to fail, it's too big to exist.
Joe Paul
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« Reply #37 on: December 12, 2007, 11:34:26 AM »

I am slowly getting the facts about my dialysis from the staff. I think they
are used to the overwhelming majority of the patients who just lie
in their chairs and vegatate for the shift. I am still working to determine
dry weight. How should that be determined on a new patient such as
myself?
Basically, its trail and error. As time goes on, and you get your appetite back and you gain body weight back, you will have to have them adjust your dry weight accordingly. (provided you lost your appetite that is)
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Black
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« Reply #38 on: December 12, 2007, 08:00:07 PM »

Joe Paul is right.  Be very aware of how you feel as they keep lowering your weight, especially toward the end of the time for fluid removal, and let them know as soon as you start to "feel funny" so you don't get too dry and have cramps.  He's also right about adjusting your weight as you need to.  In a few months you'll just know what you need to take off, and when it's time to raise or lower it.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
Rerun
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Going through life tied to a chair!

« Reply #39 on: December 12, 2007, 08:10:47 PM »

When you puke then you have hit your dry weight.  But, I usually start to feel fidigity and then I get HOT and sure enough I check my BP and it is very LOW  92/65 and at that point I have a tech turn off my UF (Ultra Filtration).  That is the negative pressure that sucks the water off you.

I bring my DVD portable player and I suscribe to Netflix.

Glad things are going well.  Keep up the good work.
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BigSteve
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« Reply #40 on: December 13, 2007, 04:53:00 PM »


"When you puke then you have hit your dry weight." That's an encouraging thought
Rerun. The first night I was on the woman opposite me had a severe cramping
attack. She could barely stand but couldn't move. I haven't had a problem so far
while hooked up, but I have to be carefull in bed to keep my legs from cramping.
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"I yam what I yam what I yam." Popeye's immortal words.
"Getting and spending we lay waste our powers"
If it's too big to fail, it's too big to exist.
goofynina
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He is the love of my life......

« Reply #41 on: December 13, 2007, 04:54:54 PM »

I would say the cramping meant she reached her dry limit too.  I know it sucks but it happens  :thumbdown; :thumbdown;
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oswald
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« Reply #42 on: December 13, 2007, 08:50:37 PM »

You're in our prayers Big Steve!  :waving;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Bajanne
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« Reply #43 on: December 19, 2007, 07:35:48 AM »


"When you puke then you have hit your dry weight." That's an encouraging thought
Rerun. The first night I was on the woman opposite me had a severe cramping
attack. She could barely stand but couldn't move. I haven't had a problem so far
while hooked up, but I have to be carefull in bed to keep my legs from cramping.

Being careful doesn't help with cramping.  You usually cramp when too much fluid has been removed and/or when your blood pressure goes too low( which is mostly due to too much fluid being taken off).
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
BigSteve
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« Reply #44 on: December 20, 2007, 01:26:13 PM »

You guys are right, "boring" is better than "exciting". I had my first low blood pressure episode
last night at the end of shift. I felt ok in the chair, but I felt light headed as soon as I
got up. So they fed me disgusting, highly salted chicken broth and kept me in the chair
for some time until I was ok to drive home.  By the way the holiday treat from the
owner-doctors was a snack of a terrible croissant sandwich, virtually inedible, carrot and
celery, sticks, some sort of plain cake and pieces of "renal acceptable" fruit. I guess it's better
than a phony party at Davita.
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"I yam what I yam what I yam." Popeye's immortal words.
"Getting and spending we lay waste our powers"
If it's too big to fail, it's too big to exist.
boxman55
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« Reply #45 on: December 20, 2007, 04:19:19 PM »

My center gives out pretzel sticks for low BP...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
BigSteve
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« Reply #46 on: December 23, 2007, 04:05:50 PM »

I'm bringing my own packets of chicken broth, without the unpalatable dehydrated
noodles and vegtables.
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"I yam what I yam what I yam." Popeye's immortal words.
"Getting and spending we lay waste our powers"
If it's too big to fail, it's too big to exist.
Bajanne
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« Reply #47 on: December 23, 2007, 04:28:05 PM »

Yes, I see you are starting to get into your own rhythm.  You will know what you need to bring to make your sessions comfortable for YOU.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
goofynina
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He is the love of my life......

« Reply #48 on: December 23, 2007, 06:19:25 PM »

I'm bringing my own packets of chicken broth, without the unpalatable dehydrated
noodles and vegtables.

Have you tried the Swanson Chicken Broth?  It is pretty good, maybe if you take some in a thermos (just in case) ;)
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....and i think to myself, what a wonderful world....

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