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Author Topic: my introduction  (Read 4856 times)
misschell78
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daniel waving to the people
« on: November 27, 2007, 11:26:56 AM »
O0 well my name is misschell, i have done just about everything kidney related as far as treatment.  i was diagnosed with FSGS in 1991 at the ripe age of 13.  8 years later my kidneys failed.  Just so u know the signs of kidney failure are not really that different from pregnancy. Yep i was pregnant when my kidneys stopped, unfortunately the baby did not survive. his name was matthew.  thus the dialysis roller coaster began. i got a graft(booooo) 3/99 by the time the new year rolled around the graft had clotted 11 times and i missed my bro's graduation from texas tech.  on to PD maybe that will work better for me and it did, except giving myself EPO shot was out of the question. my mom had to do it.  then on the 3rd transplant call i got it.......i think they were really trying to kill me.  i wasn't told that the kidney really wasn't a good match and the treatment for rejection(OKT-3) killed 2 of the 3 people the did the trial on in dalllas.  life was pretty bad, but i got to know a lot of people at BUMC.  that was 2001...i don't like remembering that year.  so within 8 months i go from YEA! transplant to PLEASE! put me back on dialysis.  back on hemo: i have a fistula placed in my arm.  well the nurse talked me into using it too early and my entire arm was swollen and bruised badly....know why she said 'oh that's supposed to happen'. my surgeon didn't agree and i was moved to a different center. life got better until I GOT PREGNANT...why o why!? i started going to dialysis 6 DAYS A WEEK! with the increased blood in my body the cancerous tumor in my native kidney began to get bigger.  pre-term labor is not fun....in had the baby the day i hit 5 months.  he passed away: his name was julian.  2 months later i had my native kidney removed. my dialysis went down hill so i hightailed it elsewhere....moving form fresenius to davita was a good move....! so good in fact that now i am PREGNANT AGAIN! they told me my cycles would stop...LIARS! it is 2007 and i'm pregnant with my third boy.....my name is misschell, nice to meet you all! :2thumbsup;
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"Lord be fence all around me everyday"
KR Cincy
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Home hemodialysis since May 07
« Reply #1 on: November 27, 2007, 11:38:42 AM »
 :welcomesign;
Misschell...that's a great intro and WOW what a life! I'm happy you found us and hope you stay healthy and we can all help you welcome your son to the world!!!
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Not giving up...thanks to Susan.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: November 27, 2007, 11:39:28 AM »
Hi Misschell,
I just posted on your other thread. Glad you found IHD! You have been through so much - I hope things stabilize for you and your pregnancy is a better experience.


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Laurie
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May 13, 2008
« Reply #3 on: November 27, 2007, 11:42:13 AM »
 :welcomesign; I'm also from Texas. Sounds like you have had a rough time. 2001 was a bad year for me also. I look forward to hearing more from you and good luck with your pregnancy.  :grouphug;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
willieandwinnie
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« Reply #4 on: November 27, 2007, 11:50:07 AM »
 :welcomesign;

I look forward to hearing more from you. 2001 was a horrible year for us also. Good luck with your pregnacy, hope all goes well.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Deanne
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« Reply #5 on: November 27, 2007, 12:44:35 PM »
You've had a rough time! I hope your future is brighter for you and your baby.

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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #6 on: November 27, 2007, 01:10:02 PM »
Hey 2001 was bad here too - Jenna was diagnosed with kidney failure that year. Then there was 9-11 - definitely a tough year!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Razman
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« Reply #7 on: November 27, 2007, 01:44:16 PM »
WOW , you have been through at lot but I am glad that you joined the  IHD  family.  I wish you all the best through this pregnancy. Please stay in touch.
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Wattle
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« Reply #8 on: November 27, 2007, 02:06:49 PM »
 :waving;  Welcome.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
lola
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I can fly!!!
« Reply #9 on: November 27, 2007, 02:25:24 PM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
kitkatz
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« Reply #10 on: November 27, 2007, 09:23:24 PM »
Good luck with your pregnancy while on  dialysis.  Welcome to the site!



kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Joe Paul
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« Reply #11 on: November 28, 2007, 12:08:36 AM »
Welcome Misschell, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #12 on: November 28, 2007, 02:30:04 AM »
Hey Misschell,

Great to see you here see you around. Good luck with this pregnancy so how far along are you

Good Luck and Take Care

Tamara xxxx ooo  :cuddle;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #13 on: November 28, 2007, 07:32:58 AM »
Sounds like you've been through the mill welcome Misschell.
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Ken
Ang
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« Reply #14 on: November 28, 2007, 07:20:32 PM »
hey there,  nice  intro, :welcomesign;aboard
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live  life  to  the  full  and you won't  die  wondering
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #15 on: November 28, 2007, 07:37:28 PM »
Welcome to our community, Misschell!  You are really a SURVIVOR!  You have been through so much, and I notice that you have not lost your sense of humour.  You just keep on keeping on, girl!  Well, you are now a part of our family and we will be looking out for you.  Our caring thoughts and prayers will be with you all the way.  Just keep us posted on how things are going with you.  Hope that 2007/8 prove the greatest years ever for you, and continuing....
 :grouphug;

Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kidney4traci
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« Reply #16 on: November 28, 2007, 07:43:39 PM »
From another fellow Texan... howdy and glad you are here.  You have had a rough time, pray this one is easier on you both.  Keep us updated.
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Hawkeye
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« Reply #17 on: November 29, 2007, 01:43:26 PM »
Hello and  :welcomesign;
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It's not easy being green.
Romona
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« Reply #18 on: November 29, 2007, 01:58:45 PM »
 :welcomesign;
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orphans_mom
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« Reply #19 on: November 29, 2007, 02:59:08 PM »
:welcomesign;
I hope all goes well for you and I hope you keep your IHD family informed.
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Orphans_Mom
Huntington, WV
Caregiver, Husband started dialysis 8/12/07
goofynina
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He is the love of my life......
« Reply #20 on: November 29, 2007, 09:39:03 PM »
Hi Misschell, Welcome to ihatedialysis.com.  Great intro my friend.  I replied to one of your posts before reading this, wow, you have had some rough times havent you?  I am so glad you are here with us and I hope and pray all goes well with you and your pregnancy.  You've come to a great place for support, advice and just some good ol' laughs ;)  Looking forward to hearing more from you  :2thumbsup;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
angela515
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i am awesome.
« Reply #21 on: November 29, 2007, 09:48:24 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
angellady07
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« Reply #22 on: November 30, 2007, 01:28:27 PM »
Welcome and I wish you all the best. :waving;
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MyRenalRomance
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« Reply #23 on: November 30, 2007, 11:20:20 PM »
 :waving; Hello & Welcome Misschell!  :welcomesign;

You have been throug a lot!  I hope all goes well with your pregnancy.  I'll be thinking positive thoughts for you!
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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
oswald
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« Reply #24 on: December 01, 2007, 08:11:18 PM »
 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
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