Working people

[mikey07840]

I have been out of work since January 2nd of this year. I am scheduled to return on June 23rd. I am going to try to return to my full time office job.

Previously I tried to return part time but my department refused. I am going to try my best... If I can't do it, I will go back out on disability.

Wish me luck!

[okarol]

Good luck mikey!

At least you have your back up job as Her Highness Ruth's footman.

[kitkatz]

Good luck Mikey. Remember when you feel tired sit down and relax a little bit.

[mikey07840]

Well I made it though the first week full time. Each night I would come home and crawl into bed and sleep. (After connecting to the lil' box of alarms CAPD machine.)

Today and tomorrow: REST REST REST.

[monrein]

Well done Mikey but I do know just how tiring, tiring is.  Hang in there my friend and just do the best you can.   Regards to Ruth.

[twirl]

do your best
I wish I had the chance to go back and attempt to work
but adding the long hours of D to my schedule and it's too overwhelming
I am thinking of you


give it your best shot

[MIbarra]

Mikey,

The first month or so starting work again was like that too for me. I'd come home, lay in bed, and not get up till the morning. It seemed to get easier for me. Hopefully it will for you too!

Other than taking the last month off of school when I started dialysis, I worked through my two years of in-center hemo as a 2nd grade ESL teacher and grade level chair. I always used up my ten days of sick leave due to doctor visits and transplant evaluation visits.

[kitkatz]

I was off of work from November 1 to January 2 when I was first diagnosed.  I kept telling the doctors I had to go back to work. I was going to go back to work and they were going to have to work a schedule around it.  They did not believe me.  Nine and a half years late I am still working as a 6th grade teacher at the same school!  My neph is hilarious when he calls me his healthy patient!

[Treasure]

I have rejoined the working! Yay! Well, it's only part-time-- 7.5 hours a week. And it's just above minimum wage (not enough to pay back my student loans, darnit). I have a job as a library page. Hopefully, they'll hire me on as a full librarian when I finish my degree next Spring. Still a little embarrassed that my 19 year old makes more...but really grateful to have anything at this point, hehehe.

[rookiegirl]

When I first started CAPD 9 months ago, I was on short term disability for 4 weeks.  I tried to go back to work full time and was able to work 3 days.  So I went back on short term again for 6 more weeks.  I was able to work full time for 4 weeks and went back out again for another 6 weeks.  I've been back full time now since April 2008.  I'm doing much better and work Mon-Fri 8am-5pm.  I've learned to prioritize my time and energy when it comes to work.

[kimcanada]

When I started on hemo, we owned and operated a little computer repair and sales store...  we have since closed it, and work on the road...

Since I have started PD manual, 5 times a day, all I do is dialysis, I can barley fit in walking the wonder dog (whoes birthday is today btw) I am hoping that when I get the nite cycles (app on the 20th) I will be able to get my butt back to work..

[MIbarra]

  to Wonderdog (I am assuming his name is Buster)!   Hope you get to the night PD soon so he/she? can enjoy some more walks!

[mikey07840]

Update: I made it through my second week of working full time. I need less naps when I get home. I feel like this is getting better. I did ask for a workplace accomodation of putting a printer on my desk so that I don't need to walk to the printer. I hope I get it. Ruth sends her love to you all.

[MIbarra]

   See? I said it would get better!

Hope it keeps getting better.

[David13]

Update: I made it through my second week of working full time. I need less naps when I get home. I feel like this is getting better. I did ask for a workplace accomodation of putting a printer on my desk so that I don't need to walk to the printer. I hope I get it. Ruth sends her love to you all.

Maybe you could ask to take Ruth to work with you so that she could fetch the pages from the printer. . .oh, but fetching things would not befit a member of royalty, would it?  Oh well, it was just a thought. . .

Glad to hear things are going well!

[pelagia]

Stephen is just starting to get back to work now after months mostly off.  He plays acoustic guitar for a living and typically books his jobs months in advance because he has to arrange them into groups - like west coast, or Kentucky and Tennessee.  It was a real dilemma for him last summer (2007) when the docs said he could "wake up one morning needing dialysis."  He didn't feel that he could book jobs months in advance knowing that he might not be able to make them.  In the end, he stayed off dialysis until March of 2008.  He didn't go on disability, just worked local jobs when they came up here and there at the last minute.  And he has some royalties that come in on a regular basis. When he first started dialysis after his nephrectomies, no way would he have been able to work.  But, just before the transplant, which was 7 weeks later, he was feeling pretty well overall and was into the dialysis routine.  Still, he couldn't imagine how he could work as a traveling guitarist (who takes 3 guitars on every trip) and travel as a dialysis patient in a way that was economically viable, so he is very happy to have a transplant.

[purple]

 


 

CONGRATULATIONS TO YOU ALL,

I have been on Dialysis Since April 1 2008, so i am a newbie so to speak, I am haviing my "Hookup"through my Vascath 2, I attend for cleanout sessions on Tuesday at 0700, Thursday at 0700 and Saturday at 0700, I work permanant night shifts with the odd day shift, I am a security Officer, i usually work Monday Tuesday Wednesday and Thursday nights from 1800 - 0600 .. yes i do 12 hour shifts... some days or nights it nearly kills me but i need to work, hard to survive on a beer budget when you have champagne tastes.... I also work Friday evening from 1300 - 2130 at a clothes store... I also work at the same store on Sunday afternoons from 1300 - 1700... I love the contact with people from the store but shit my back and legs are really sore by the time i finish....

I would love a full time job that i could do and get payed well for .... but hey shit i should not complain... i just have to check my diary before saying yes to social events...laughing


I did not work or could not work for the best part of three months after having started "Hookup"  but now that my body has gotten use to the fact that after so many years of not working properly that it is now CLEAN, i am feeling very good, on the whole and i can't wait to get the stitches out of my chest and neck and see how i feel then...


Keep Smiling Purple... just one more thing G'day to you all from Aussie

[kidneyguy]

I have been on dialysis for 3 years and 10 months this coming Moday (10/06/08) and work full time as a medical coder in
my local hospital

[flip]

I'm retired, disabled and self-employed. It sounds strange but it pays the bills.

[twirl]

is that how you get money for those enlargement drugs

I am on diability and I hate it----- I grade anything I can get my hands on
I bring home the same amout of money as when teaching but that does not include saving $400 a month
those days are gone and adding money to different things
when I was absent after the 7 sick days we were allowed the district took out 275.00 a day per absence
sometimes I would make 3.33 ( three dollars and thiry - three cents) I had been in the hospital

[flip]

giving up my season tickets saved a lot of money......dialysis on Saturday is much more fun than tailgating at Commonwealth Stadium

[G-Ma]

I have had to stop spending hours at Barnes and Noble and any Fabric shop in the world because I couldn't leave either one without spending $$$ so that has been totally cut out.  Grrrrr

[Brightsky69]

 

I have to start dialysis very soon. I see the surgeon on Oct 7th to get a PD catheter put in place. I am really lucky to be working where I am. I work for the Navy and my boss is more than willing to work around my dialysis. I was surprised to learn that he would make arrangements for me to work from home on days when I would have to be off for long periods of time for whatever reason. The big boss is even willing to let me bow out of certain work obligations. She doesn't want me to miss "the phone call" in case a kidney becomes available for me. They are all really very understanding. I hope it stays that way. The first time I was on dialysis I went back to work full time too.

[G-Ma]

That's great BrightSky

[pelagia]

I agree Brightsky.  That is very good news about your job.  You must be a valued employee!