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Author Topic: Hi there, I'm River  (Read 5213 times)
River
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« on: November 20, 2007, 11:44:18 PM »

Hi, I'm River, a 47 (soon to be 48) year old married woman living in western Washington state, and about to start PD. I've never been on dialysis before, and have been doing research on it. My research still doesn't tell me what it's like from a patient's perspective.

I have three retrievers - one Nova Scotia Duck Tolling Retriever and two Flat-Coated Retrievers, both show dogs - and four cats. At the moment, I also have a "guest dog", a standard poodle, staying here until her owner can take her back. I have had to evict all the dogs from the master bedroom because I'll be starting PD soon and need a clean place to dialyze, and I'm told by most people I've consulted, including my nephrologist and his nurse, that they can't be in there any more because they'll leave hairs and dander and dust around. Well, they do, but I can clean it up, but to be safe, they're no longer permitted to enter the bedroom, let alone sleep in it. I miss them!

I like to make interesting jam. I specialize in flavor combinations like apricot-vanilla, blackberry-chocolate, and cinnamon-peach. I am the only person I know who makes chocolate jams, and I use a lot of Scharffen Berger 99% dark chocolate in my jam. (I probably shouldn't eat my jam.) My husband loves it, and he never runs out of jam for his peanut butter sandwiches. One of the jams I make is salal-rosemary, using our native salal berries and fresh organic rosemary. It's a savory jam, and I use it as the base of a sauce for wild salmon filets and for pork chops or roasts. I am stumping all the local dietitians by asking them for the potassium content of salal.

I also enjoy quilting, spending time with friends, playing D&D (my husband and I are in a regular Friday night game), kayaking, showing dogs, reading, and hanging out on the Net.

 :waving;
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Diagnosed with kidney stones (big ones that never passed): 1985
Diagnosed with diabetes: 1995
November, 2006: Creatinine 1.3
November, 2007: Creatinine 3.8
PD Catheter implantation December 13, 2007
Starting PD in earnest in January, 2008
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: November 20, 2007, 11:50:22 PM »

 :waving; Hey River,
Glad you found us - this is the best place to hear what it's like from a patient's perspective! I hope you get a chance to browse the posts.
Mmmm jam. Sounds great to me! I look forward to learning more about that!
Welcome!

 :welcomesign;
okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #2 on: November 21, 2007, 12:00:28 AM »

Welcome River, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
RichardMEL
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« Reply #3 on: November 21, 2007, 12:17:25 AM »

Welcome River... gorgeous smile!! I don't do PD so can't comment on that other than to welcome you to the site and I am sure you will find lots of useful perspectives and tips and support from the folks here :)

I love Washington state.. been there a few times (mostly visiting Boeing in some form or other) but the area is lovely. Seattle reminds me very much of my hometown (and yes, it's raining as I type :) )

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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sluff
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« Reply #4 on: November 21, 2007, 02:10:49 AM »

Welcome to IHD River,

Sounds like you keep yourself busy between the show dogs and trying to keep yourself out of a jam.. :rofl;.. anyway I'm glad you found us and I hope you learn a lot from researching here on IHD. Another search engine you can try is www.kidneyoogle.com  I hope it is helpful to your search.

Feel free to post as often as you like and ask questions, someone here will have an answer.

Sluff/ Admin
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Laurie
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May 13, 2008

« Reply #5 on: November 21, 2007, 04:38:28 AM »

 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #6 on: November 21, 2007, 05:19:09 AM »

Welcome to our community.  So glad to have you join us.  Yes, though we do not claim to be professionals, there is lots of info here from the perspective of a patient.  So you have a lot of reading to do.  But don't just read, keep posting as well.   We want to know what's going on with you.  You have to excuse us, but IHD has become a family, so we will be all up in your business  ;D   When you do have your first PD session, we want a detailed account of how it was.  Here is a hug from all of us.  :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
lola
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I can fly!!!

« Reply #7 on: November 21, 2007, 05:27:19 AM »

 :welcomesign; Jam yummy hope you get me next year for your secret santa hehe :santahat;
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willieandwinnie
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« Reply #8 on: November 21, 2007, 05:29:14 AM »

 :welcomesign; River,

Glad you found us.

willieandwinnie
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #9 on: November 21, 2007, 05:31:38 AM »

 :welcomesign;  This is the perfect site for you. There are lots of PDers who will be a wonderful source on information for you.   Ask any question, someone will have the answer!  This is an extremely well run site with great mods and admins.  We also have a lot of fun, because sometimes we just need to laugh.  You have already seen Sluff's sense of humor "out of jam". Looking forward to hearing more from you.    BTW, my sister lives in Roy, outside of Seattle. Great place to visit.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
bolta72
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my best friend

« Reply #10 on: November 21, 2007, 05:35:01 AM »

 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Aldente
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« Reply #11 on: November 21, 2007, 06:42:16 AM »

Welcome River.
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rookiegirl
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« Reply #12 on: November 21, 2007, 07:48:41 AM »

 :welcomesign; River to IHD.  I've been on PD since 10/22/07.  So glad you joined our group.  You will learn so much from everyone here.  Don't hesitate to ask any questions.  I wish you the best.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #13 on: November 21, 2007, 08:14:06 AM »

 :welcomesign; You may know a family friend of mine! She shows Nova Scotia Duck Tolling Retrievers too. Her name is Terry Miller. Ring any bells? Anyway, it's great to meet you!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Deanne
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« Reply #14 on: November 21, 2007, 10:51:41 AM »

Welcome! I'm not on dialysis yet and hopefully won't be for a few years, but have been torn between PD or HD because of the animal issue. I hope you post more about how you chose PD and how it goes for you once you get started.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Wattle
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« Reply #15 on: November 21, 2007, 01:49:32 PM »

 :waving;  Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
oswald
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« Reply #16 on: November 21, 2007, 07:18:25 PM »

 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
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« Reply #17 on: November 21, 2007, 07:44:44 PM »

 :welcomesign;
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Life is what happens while your making other plans.
Ang
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« Reply #18 on: November 21, 2007, 08:51:51 PM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Romona
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« Reply #19 on: November 21, 2007, 08:58:15 PM »

 :welcomesign;
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Hawkeye
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« Reply #20 on: November 23, 2007, 07:08:20 AM »

Hello and  :welcomesign;
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It's not easy being green.
angellady07
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« Reply #21 on: November 23, 2007, 11:46:50 AM »

Welcome River.  :welcomesign;
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keefer51
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« Reply #22 on: November 25, 2007, 05:19:07 AM »

 :welcomesign; River.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
goofynina
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He is the love of my life......

« Reply #23 on: November 25, 2007, 04:13:48 PM »

Hi River, Welcome to ihatedialysis.com.  Your jams sound interesting, and very delicious i might add, never heard of a chocolate jam, have you ever tried to market it?  Looking forward to getting to know you more,  this is an awesome place to "hang out" at.   :secret; The people here are nuts,  :urcrazy; and i love every one of them :)  We have become one big family and i am so glad you joined us. ;)   Hope to hear more from you soon.  Good Luck with everything you do.



Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
kellyt
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« Reply #24 on: November 25, 2007, 04:37:35 PM »

Welcome and Good Luck!    :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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