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Author Topic: They said....Home dialysis  (Read 23518 times)
Mimi
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For any who do not like me I use - prayer.
« Reply #75 on: May 16, 2008, 05:15:45 PM »
Oh Kit, I pray this will happen.  Keep us updated.

Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Adam_W
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Me with Baron von Fresenius
« Reply #76 on: May 16, 2008, 05:21:38 PM »
Good luck, Kit. Just keep that big stick swinging  :Kit n Stik;

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
kitkatz
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« Reply #77 on: May 16, 2008, 10:24:09 PM »
I am still awaiting any news on this possible new center that is in the picture now.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
lola
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I can fly!!!
« Reply #78 on: May 17, 2008, 08:06:27 PM »
good luck
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mark m
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« Reply #79 on: May 19, 2008, 07:31:48 PM »
Kitkatz -- It sounds like you will find a way to make it work. I did and feel great on the Nxstage machine. I did have 6 weeks of training but I was not in a real hurry to get back to work and  had trouble with my first set of buttonholes and had to establish another set. This took an extra week. I am now in my fourth month at home. The best part besides being able to eat what I want is that my time is flexible. I can go on early in the morning or late at night. If I want to go out on a Sat. night I just do a treatment in the morning. The next step for me is going nocturnal.

If you can establish buttonholes before your training it will be much shorter, probably closer to two weeks.

Hang in there.

-Mark.
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Life is good.
kitkatz
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« Reply #80 on: May 30, 2008, 08:07:57 PM »
They said tonight" Home dialysis?  There is training in the area for you if you want us to get you ready for it."   

What do you all know about the Baby K machine for home dialysis?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
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Might as well smile
« Reply #81 on: May 31, 2008, 05:15:46 AM »
Don't  know anything about  the Baby K machine but do know that I'm happy this option is opening up for you.  All the best with it Kit.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #82 on: May 31, 2008, 06:19:14 AM »
kitkatz  :yahoo; I happy to hear that it is being offered. Len and I trained on the Baby K one week before his transplant call. I think because we had used the 2000H for 4 years, the newness of the K scared me. The K is missing some modules that I used a lot, automatic profiling (we always used profile 3), automatic blood pressure settings, ie, where you could set it to take every 15, 30 minutes, and it didn't have on-line clearance information. We were told that there were modules available to do those functions. Good luck. Any idea when you might start training.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #83 on: June 03, 2008, 04:58:36 PM »
Thank goodness--it was time for some good news for you.  This is great.  Can't wait to hear when you can start training.  :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #84 on: June 03, 2008, 05:39:39 PM »


This is a good time to train, when school is out. How long will it take?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Cattitude
« Reply #85 on: June 03, 2008, 08:33:14 PM »
Baby K and not NxStage?  Well, anything at home seems like an improvement to me!  Hope it works out for you!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
KR Cincy
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Home hemodialysis since May 07
« Reply #86 on: June 04, 2008, 10:21:03 AM »
All I know if you need more space with the BabyK for the water treatment unit and the potental to make some upgrades to your home's plumbing and electrical systems exist. I'd PM Hawkeye and ask him...he works for FMC
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Not giving up...thanks to Susan.
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