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Author Topic: Hello! Newbie here!  (Read 4695 times)
SheilaW
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« on: November 16, 2007, 08:03:14 PM »
I just stumbled on this forum today, and I'm glad I did.

I'm a 33 year old wife and mother of 2 wonderful kids. I'm also a dialysis patient who hopes to receive the wonderful gift of a new kidney one day.

I learned when I was 22 years old that I had Bergers Disease which would likely one day result in kidney failure. That day came on August 4th this year. I went to the ER because I was just so physically ill and couldn't get over it. They told me there that my cretnium (sp?) was at a 9. They took a second blood draw, only to find the same number. I was sent to a hospital that could take care of me. When I was there, I received a neck cathetar so I could receive dialysis quickly. I was given some information and was told that I would have to decide on peri or hemo dialysis. Upon reading the information, talking to my doctor, looking deep inside myself, and talking to my husband, I decided on hemodialysis. The next day I had a better central line placed and a fistula done in my left arm.

I left the hospital on the 9th of August with an entirely new outlook on life and the directions to the dialysis center 50 miles from my home. Since then I've gone every Tuesday Thursday and Saturday. I've met some wonderful people there, and I am truly glad they are a part of my life now. Since August, I've had little to no appetite. My challenge before I can get on the transplant list is to lose weight. A lot of it. I've lost a little over 50 lbs since then, which is great, but there is more to go. My doctor told me last month that if I continue to lose weight in the month we're currently in, that he will refer me this month. I will know the Tuesday after Thanksgiving if it's going to happen.

Through it all, I've tried to keep a good outlook. I try to stay positive. My nurses at the dialysis center are impressed with my attitude towards it. But why be negative or bitter? Life is far too short and fragile with too many uncertanties to not try to make the best of it.

I look forward to meeting you on this site and learning about what's in my future.

Thank you for this resource.
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Romona
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« Reply #1 on: November 16, 2007, 08:10:49 PM »
 :welcomesign;
You'll enjoy this site. There are so many wonderful people here.
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Sluff
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« Reply #2 on: November 16, 2007, 08:30:17 PM »
Welcome Sheila,

I'm so glad you found us, spread the word at your clinic so the people you have met there can benefit from IHD also.

Please read all you can because knowledge is power and there is so much information contained in this site. Post as often as you want to and ask if you need any help. Most of all I hope you enjoy your time here.

Sluff/ Admin
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Joe Paul
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« Reply #3 on: November 16, 2007, 08:38:00 PM »
Welcome Sheila, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kitkatz
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« Reply #4 on: November 16, 2007, 09:55:39 PM »
You will find much information on this site to help you on your dialysis path.  Welcome!


kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Ang
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« Reply #5 on: November 16, 2007, 10:48:38 PM »
 :welcomesign; from  oz






EDITED: Fixed welcome sign prompt - Sluff/ Admin
« Last Edit: November 17, 2007, 04:56:43 AM by Sluff » Logged
live  life  to  the  full  and you won't  die  wondering
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #6 on: November 17, 2007, 03:35:34 AM »
Hey Sheila,

 :waving; HI and  :welcomesign;

Well I'm another 33 year old and my kidney failure happened when I was 25. I also had the weight problem of getting on the list, had to lose 25 kilos (approx 55 pounds) before that would and did happen. Well I started going to the gym and eat better, and hey my transplant happened from my beautiful man 4 weeks ago this Tuesday!  :clap;

So keep being good, you will get there, just keep positive and keep doing a lil bit each week, you will get there !

One thing I learnt from my ol boss, you can have your bad days in the week of being slack and eating bad, just make sure you have more good days  ;)

Take Care Tamara xxxx oooo  :cuddle;  :beer1;  :grouphug;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
bolta72
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my best friend
« Reply #7 on: November 17, 2007, 05:48:09 AM »
Yes, you do have a great attitude, good luck with the weight and wishing you the best.
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gotta do what I gotta do.. 2 yrs in ctr hemo
paris
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« Reply #8 on: November 17, 2007, 06:26:58 AM »

So glad you found us.  The people here are wonderful and will help you anytime you have a question or need a little understanding.  Looking forward to hearing more from you  :welcomesign;
« Last Edit: November 17, 2007, 10:09:29 AM by paris » Logged


It's not what you gather, but what you scatter that tells what kind of life you have lived.
Aldente
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« Reply #9 on: November 17, 2007, 06:28:30 AM »
Welcome.
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boxman55
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« Reply #10 on: November 17, 2007, 07:31:57 AM »
Cheering you on and welcome to IHD...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: November 17, 2007, 12:15:27 PM »
 :waving; Hi Sheila!

I am glad you found IHD.Please come back often and let u know how you're doing.There are lots of really nice people and some great threads to read on IHD. Best wishes to you and your family!

okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Razman
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« Reply #12 on: November 17, 2007, 04:30:51 PM »
I'm glad you found IHD and I hope that you will stay in touch.  Its a great place to talk to others for support if you ever need it.  :waving;
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Wattle
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« Reply #13 on: November 17, 2007, 05:11:55 PM »



 :waving;  Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Laurie
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May 13, 2008
« Reply #14 on: November 17, 2007, 07:02:08 PM »
 :welcomesign; Good luck with loosing weight and getting on the transplant list.  :grouphug;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
kellyt
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« Reply #15 on: November 17, 2007, 07:21:32 PM »
:waving;     I also have Berger's Disease.  I'm a 39 yo female, pre-dialysis.  I look forward to hearing more from you.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
angela515
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i am awesome.
« Reply #16 on: November 17, 2007, 08:45:08 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
oswald
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« Reply #17 on: November 17, 2007, 09:26:51 PM »
 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
KR Cincy
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Home hemodialysis since May 07
« Reply #18 on: November 18, 2007, 11:51:26 AM »
 :welcomesign;
Glad you're here and hope to see you more around the boards!
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Not giving up...thanks to Susan.
willieandwinnie
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« Reply #19 on: November 18, 2007, 12:53:24 PM »
 :welcomesign;

willieandwinnie
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #20 on: November 18, 2007, 08:14:36 PM »
Welcome to our community!  We are always so happy when someone 'stumbles' on us and decides to join.  I am sure you will not regret this step. I like your attitude and that is going to take you very far when dealing with this renal challenge.  Well, here you have another caring and sharing family in IHD.  This site totally exceeded my expectations, as many will tell you.  We are very grateful for a place like this where we are free to vent (and rage, when we need to) and know that there are people who really understand what we are going through.  So please take advantage of all this site has to offer - read all you can, and post all you can.  :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
orphans_mom
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« Reply #21 on: November 19, 2007, 05:10:25 PM »
 :welcomesign;
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Orphans_Mom
Huntington, WV
Caregiver, Husband started dialysis 8/12/07
Hawkeye
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« Reply #22 on: November 20, 2007, 06:34:39 AM »
Hello and  :welcomesign;
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It's not easy being green.
MyssAnne
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« Reply #23 on: November 20, 2007, 07:30:01 AM »
Hi Sheila!!!!  It's hard to eat when you have no appetite, we know all about that!!! Good luck losing the weight so you can get on the LIST!!!! :welcomesign; :welcomesign;
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keefer51
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« Reply #24 on: November 25, 2007, 05:30:08 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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