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Author Topic: CAPD difficulties/resolved  (Read 3602 times)
Joanniebop
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« on: November 11, 2007, 07:28:21 PM »
OK , so I don't know if anyone is interested, but I just wanted to thank all of you for all of your old posts regarding CAPD.
You see, we are supposed to be going on a cruise  Thursday but we were about to cancel because Chuck just couldn't get into the whole CAPD thing. ( and  that's what he's got to do on the ship)
 He could not understand why it was basically a 24hour thing. You know between drains and fills and dwells.
He was so uncomfortable and thought that this just was not the way it should be, but when I started to read to him ( he is blind and sometimes I forget that he doesn't get to read all the great information on this board) he began to realize that everyone else that does CAPD experiences the same things that he has been going thru as far as the uncomfortable bloating ,bowel problems, every 4 to 6 hours doing the exchanges etc.etc.

But, we were able to get some great tips and have made a few adjustments to his regimen and as of now, we are good to go.

So thank you, thank you, for sharing your experiences on CAPD and teaching me how to be a better caregiver to my dear husband.

Joannie
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Wattle
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« Reply #1 on: November 11, 2007, 10:32:27 PM »
 

:cuddle; Thats great Joanniebop. CAPD is time consuming but it does become routine after a while.

I hope you both have a wonderful time on the cruise. Don't forget the  :pics;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
KICKSTART
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« Reply #2 on: November 12, 2007, 02:58:14 AM »
So glad you have sorted it out . It is difficult at the start , but soon it becomes like making breakfast .. do dialysis .. making lunch ..do dialysis, till you actually just get into the routine.!
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
MyssAnne
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« Reply #3 on: November 12, 2007, 03:15:29 AM »
I am so glad you get to go on your cruise!  You both will have so much fun, especially the eating!!!!  Enjoy, and I so hope it's a break for you as well!!
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #4 on: November 12, 2007, 04:58:40 AM »
So glad we could be of help :2thumbsup;
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Ken
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« Reply #5 on: November 12, 2007, 03:22:09 PM »
Thank YOU Joanniebop for letting us know that we can be of some help my friend  :waving;  I hope you have an awesome time and i am looking forward to seeing some  :pics; of you and Chuck  :clap;  Take care and have a great time  :bandance; :bandance;
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angela515
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« Reply #6 on: November 12, 2007, 05:25:57 PM »
 :grouphug;

Great to hear.
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Live Donor Transplant From My Mom 12/14/1999
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KT0930
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« Reply #7 on: November 13, 2007, 08:43:59 AM »
Glad we could help. Have a great time on your cruise!!
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Joanniebop
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« Reply #8 on: November 13, 2007, 08:24:50 PM »
Thanks everyone for your wishes.
 All packed and ready to go to Ft.Lauderdale, a day in advance of the sailing just to be sure that our supplies are on track and to make sure that we are in possesion of our luggage.
 Chuck was so looking forward to doing the cycler tonight after doing manuals for the last few days. Thought it would be best to go on the machine tonight since we won't be able to do a manual till we arrive in Florida tomorrow night. I packed a few bags ( solution ) and all the other stuff I need, so hopefully I'll figure out how to hang the bag in the hotel room for an exchange tomorrow night. I could not break the IV pole down small enough to fit in any of our cases.

If I have access to a computer I'll try and post over on the travel section.

Thanks again!

Joannie
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MyssAnne
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« Reply #9 on: November 13, 2007, 08:37:25 PM »
Joannie, this might be too late, I hope not. How about a hanger? A wire hanger twisted to hold the bag while hanging from a bar/window sill (top)?
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Joanniebop
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« Reply #10 on: November 13, 2007, 08:57:17 PM »
MyssAnne, I'll have plenty of hangers, (  I pack with all clothes on hangers for easy unpacking) so I'll just have to play around with them. I packed some of those over the door hooks. Maybe I can hang a hanger from them?
Anyhow, I'm sure I'll figure something out and I'll post while we are away. Let you  and everyone else know how we are  making out.

Thanks and have a great night!

Joannie
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