sisterdonor
Newbie
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Posts: 31
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« on: October 26, 2007, 05:38:37 PM » |
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Hi Everyone,
My story: sibling diagnosed with kidney disease about 16 years ago and now needs a kidney. We always expected I'd be the one to be tested first when the time came and now I'm in that process.
So far I've done:
Pap test
Mammography
Visited Dentist to ensure gum and dental health
1st 24 Hr Urine collection followed by fresh urine collection and a one vial blood test
Sonogram of both kidneys
Chest X-ray
EKG
Next week I have scheduled:
2nd 24 Hr Urine collection followed by more extensive blood testing
visit to Cardiologist
and then sibling and I both have blood drawn for HLA testing and express that to the transplant center.
My problems so far is that the EKG showed a "possible" abnormality which my family physician strongly disagrees with. That is why I have the consult with a cardiologist. I'm really, really worried about this because if true I would be ruled out as a candidate not to mention the worry about my own cardio health. My physician was pretty adament regarding his disagreement with the notation on the EKG of "possible" problem. I'm still SO nervous!!!!
Also, when I had the sonogram of my kidneys the technician informed me that I have a small gallstone. I have absolutely no idea if this will become a problem with clearing me as a candidate or not. I have had absolutely no symptoms so this was a total surprise.
Have any of you had the weave your way thru issues coming up when you went for all the testing?
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kitkatz
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« Reply #1 on: October 26, 2007, 09:45:44 PM » |
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The hoops for transplant seem endless. Welcome to the site.
kitkatz,moderator
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 lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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Joe Paul
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« Reply #2 on: October 26, 2007, 10:16:26 PM » |
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Welcome sisterdonor, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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Rerun
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« Reply #3 on: October 26, 2007, 10:20:47 PM » |
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What a wonderful sister you are. I wonder why they go to all that expense and THEN check to see if you match? Seems to me that should be the first thing. Best of luck and I look forward to your posts.  |
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angellady07
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« Reply #4 on: October 26, 2007, 11:35:50 PM » |
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Sisterdonor, wishing you and your sister all the best and welcome.  |
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Wattle
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« Reply #5 on: October 27, 2007, 12:38:52 AM » |
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Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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Aldente
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« Reply #6 on: October 27, 2007, 04:08:24 AM » |
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Welcome.
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Sluff
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« Reply #7 on: October 27, 2007, 04:43:46 AM » |
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Welcome to IHD sisterdonor,
Hope the testing is done soon and you can move forward. Good Luck.
Hope you enjoy the site while you are here.
Sluff/ Admin
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bolta72
Sr. Member
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Gender: 
Posts: 832
my best friend
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« Reply #8 on: October 27, 2007, 05:05:09 AM » |
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Welcome and the best to you.
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gotta do what I gotta do.. 2 yrs in ctr hemo
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boxman55
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« Reply #9 on: October 27, 2007, 07:27:08 AM » |
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Welcome to IHD hang in there your sister must be awful proud of you...Boxman
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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lola
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« Reply #10 on: October 27, 2007, 11:49:14 AM » |
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oswald
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« Reply #11 on: October 27, 2007, 11:54:23 AM » |
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
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Romona
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« Reply #12 on: October 27, 2007, 12:37:34 PM » |
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okarol
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« Reply #13 on: October 27, 2007, 01:11:41 PM » |
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Hi sisterdonor, It's so great you want to donate to your sister. I hope all the tests turn out well. You can meet other living donors and even sign up to get a "buddy" who has already donated, and can mentor you through the process. Go to http://www.livingdonorsonline.org and go to the Message Forum. Bless you and good luck! okarol/moderator
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paddbear0000
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« Reply #14 on: October 29, 2007, 01:22:02 PM » |
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 I can't even visit or meet with anyone at my transplant center until I jump through all of those hoops--and I'm the one who needs the kidney!
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KR Cincy
Sr. Member
Offline
Gender:
Posts: 930
Home hemodialysis since May 07
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« Reply #15 on: October 29, 2007, 03:20:24 PM » |
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Welcome and hang in there...lots of peaks and valleys on this journey!!
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Not giving up...thanks to Susan.
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Hawkeye
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« Reply #16 on: October 30, 2007, 07:04:19 AM » |
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Hello and |
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It's not easy being green.
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pinkrose
Newbie
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Gender: 
Posts: 25
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« Reply #17 on: October 30, 2007, 01:46:45 PM » |
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Welcome and good luck with your tests!  |
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A life with love will have some thorns, but a life without love will have no roses.
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Bajanne
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« Reply #18 on: October 31, 2007, 06:16:46 AM » |
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Welcome to our community! We are glad you decided to join us. I hope that everything goes well for the transplant. Please continue to post and let us know how everything is going. Our caring thoughts and prayers are with you both.  Bajanne, Moderator |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
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keefer51
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« Reply #19 on: November 06, 2007, 02:14:30 AM » |
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Yes my brother was a donor for me. We had to face allot of red tape. We had a sit down with docs and coordinators and finally got things done.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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tamara
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« Reply #20 on: November 07, 2007, 02:13:24 AM » |
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Hey Sisterdonor Great to see you here ! See you around Tamara xxx ooo   |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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sisterdonor
Newbie
Offline
Posts: 31
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« Reply #21 on: November 13, 2007, 03:12:50 PM » |
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Hi Everybody and thank you all for your kind welcome and good wishes!!!
Well, I have GREAT .NEWS!!!
I passed all of the pre-evaluation tests. It took me a total of three weeks. There were several added tests that weren't in the original packet but I checked out fine in the end. It is an anxiety provoking process but boy does it ever feel wonderful when you get news like this! I was so scared that something wouldn't check out right and had that happened I would have probably been inconsolable.
SO...today I am feeling the euphoria of knowing that in January I will be able to give my much loved younger brother one of my kidneys. It feels so good!
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goofynina
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« Reply #22 on: November 13, 2007, 03:24:30 PM » |
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That is fantastic news sisterdonor  , thank you for sharing that  Please make sure you keep a diary of your journey, and take lots of pics, its great to be able to look back and see what you went through. Please keep us posted as well, thank you |
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paris
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« Reply #23 on: November 13, 2007, 05:13:26 PM » |
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What wonderful news! You are a hero to all of us waiting for a kidney.  I am excited for both of you. |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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kitkatz
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« Reply #24 on: November 13, 2007, 08:01:33 PM » |
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Superb news! Now you both stay healthy!
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lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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