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Author Topic: Another new girl in town  (Read 7067 times)
Psim
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« on: October 26, 2007, 10:01:45 AM »
Hi. I'm psim, and I live on a beautiful little island off the west coast of Canada. :canadaflag; I’m 56 and have CKD from primary hyperparathyroidism. (Ya know, it’s amazing to be somewhere where I can write hyperparathyroid and not have to explain what it means!) By the time I was diagnosed, one kidney was totally blocked by stones and had to be removed, and the other was failing from trying to filter all that calcium for so many years.

I’m still pre-dialysis, with a GFR of 22, but have started feeling really tired all the time. I’m so happy to have found this site, with so many folks who have walked this road before me generously offering to share their experience. Thank you for being here. And thank Epoman for starting it all. His presence is so strong here  – I wish I could have met him.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: October 26, 2007, 10:17:04 AM »
 :waving; hi Psim,
I am glad you found us too. I hope this site is helpful to you - it's a great source of support, info and FUN for many of us.
Welcome!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
donnia
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me and my donor Joyce
« Reply #2 on: October 26, 2007, 10:28:12 AM »
Hi  Psim!!!  Welcome to the group! :welcomesign;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Sluff
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« Reply #3 on: October 26, 2007, 10:32:55 AM »
Welcome to IHD Psim,

There is no comforting words I can say to help make things better, but please know that we are here for you. Of all the things that I can say to benefit you, is to read this site over and learn as much as you can from our members experiences and remember that you are in control of your medical care! If you don't know ask! ask! ask! educate yourself and be ready to take control. Knowledge is control.


Sluff/ Admin
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KR Cincy
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Home hemodialysis since May 07
« Reply #4 on: October 26, 2007, 10:59:29 AM »
 :welcomesign;
Glad you're here...there's lots to read and learn and we've all been there in one way or another so you're not alone!
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Not giving up...thanks to Susan.
livecam
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World's Best Beach..Lanikai..Oahu, Hawaii
« Reply #5 on: October 26, 2007, 11:26:00 AM »
Hello Psim, welcome to the site.  There is lots of good advice and many experiences that others have had that you might find valuable.  It's good to have you here.
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Joe Paul
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« Reply #6 on: October 26, 2007, 12:09:47 PM »
Welcome Psim, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #7 on: October 26, 2007, 12:34:57 PM »
 :welcomesign;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
goofynina
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He is the love of my life......
« Reply #8 on: October 26, 2007, 12:35:36 PM »
Hi Pism,  Welcome to ihatedialysis.com.  So very glad you found us  :2thumbsup; You will find alot of answers here and also alot of support.  We look forward to hearing more from you soon  :2thumbsup;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
angela515
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i am awesome.
« Reply #9 on: October 26, 2007, 02:33:36 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
angellady07
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« Reply #10 on: October 26, 2007, 04:18:59 PM »
Welcome.  :waving;
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boxman55
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« Reply #11 on: October 26, 2007, 04:33:30 PM »
Welcome to IHD...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
rookiegirl
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« Reply #12 on: October 26, 2007, 04:44:22 PM »
 :welcomesign; Psim.  I hope you will find answers to many questions.  I know I have.  I agree, this is a wonderful site.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Krisna
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« Reply #13 on: October 26, 2007, 05:50:03 PM »
 :welcomesign;
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
Laurie
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May 13, 2008
« Reply #14 on: October 26, 2007, 06:42:15 PM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
kitkatz
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« Reply #15 on: October 26, 2007, 09:44:36 PM »
Welcome to the site.  As you continue through kidney failure this site will be there to help you.


kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
oswald
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« Reply #16 on: October 27, 2007, 11:55:18 AM »
 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
MyssAnne
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« Reply #17 on: October 27, 2007, 12:26:22 PM »
Welcome, Psim!!!! Yup, you've found a group of people who know and LIVE what you are going thorugh. Someone here has done it, and will be able to tell ya their experiences, and what works, and what doesn't!!
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Romona
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« Reply #18 on: October 27, 2007, 12:36:15 PM »
 :welcomesign;
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paris
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« Reply #19 on: October 27, 2007, 02:54:24 PM »
 :welcomesign;  So glad you found us.  You will love this site! As you said, everyone already know what you are talking about and we "get it". Looking forward to hearing more from you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
bolta72
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my best friend
« Reply #20 on: October 27, 2007, 03:19:56 PM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #21 on: October 29, 2007, 05:09:12 AM »
Welcome to our community!  My welcome is a bit late as I am away from home (British Virgin Islands) for the weekend in Antigua (didn't see Britney any time ;D).  This computer I am using is a real donkey cart - slow, slow, slow, so it is a bit painful.  But I am so glad that you found us.  You are not going to regret it.  There is so much here, as you have probably discovered already.  Not only that, but this is not a website; it is a family.  So take advantage of ALL this site has to offer, and keep posting.  We need to know how you are doing, because we will always be there for you (and with you)  :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
bolta72
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my best friend
« Reply #22 on: October 29, 2007, 06:25:52 AM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Hawkeye
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« Reply #23 on: October 29, 2007, 06:37:40 AM »
Hello and  :welcomesign;
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It's not easy being green.
pinkrose
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« Reply #24 on: October 30, 2007, 01:50:12 PM »
 :) Welcome.
Which island?
 :popcorn;
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A life with love will have some thorns, but a life without love will have no roses.
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