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Author Topic: I got a package from the transplant center!  (Read 3750 times)
paddbear0000
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« on: October 25, 2007, 02:34:07 PM »

 :bandance; :bandance; :bandance; Ya hoo!! I got a big ass package from the Ohio State University Transplant Center today!! It's weird tho, there are forms in there that need to be filled out by a dentist, a gynecologist and a cardiologist BEFORE I even get to go talk to them! I thought I'd at least get to go visit them before all that! Any advice?   :yahoo;
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
bolta72
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« Reply #1 on: October 25, 2007, 02:58:19 PM »

Yes I also got all kind of forms for different tests also but I did get to at least get to go in for a talk before hand. They explained the ups and downs of a transplant,I meet the social worker and surgeon and now musst get  the tests done before I proceed to get on the list. I guess different transplant centers do it gifferent ways.
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gotta do what I gotta do.. 2 yrs in ctr hemo
livecam
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« Reply #2 on: October 25, 2007, 05:06:20 PM »

:bandance; :bandance; :bandance; Ya hoo!! I got a big ass package from the Ohio State University Transplant Center today!! It's weird tho, there are forms in there that need to be filled out by a dentist, a gynecologist and a cardiologist BEFORE I even get to go talk to them! I thought I'd at least get to go visit them before all that! Any advice?   :yahoo;

Congrats!  Just get the forms out to the people they go to and start thinking positively.  I'm sure you'll breeze right through the evaluation and workup process.  Soon you'll be posting your experiences here in the transplant thread.

Good luck!
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kellyt
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« Reply #3 on: October 25, 2007, 07:57:37 PM »

Congrats!  Good luck at all your future appointments!  I go to the gyno on the 5th.  boo!   :thumbdown;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
goofynina
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« Reply #4 on: October 25, 2007, 08:00:37 PM »

Hopefully you are on your waaaaay ;) This is just the beginning, be prepared for some bumps in the road, but from what i see and hear from others, it is all well worth it,  Good Luck  :2thumbsup;
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Chris
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« Reply #5 on: October 25, 2007, 09:58:21 PM »

I take it that they didn't  have a transplant seminar were they give information about their transplant plant program were you could ask questions?
Anyways, congradulations.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
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Lifes Adventures -  Priceless

No two day's are the same, are they?
KR Cincy
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« Reply #6 on: October 26, 2007, 04:18:53 AM »

If any of the forms are multiple choice tests, choose C if you aren't sure!!    ;D
It's the first step...congrats!!
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Not giving up...thanks to Susan.
paddbear0000
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« Reply #7 on: October 26, 2007, 11:54:30 AM »

If any of the forms are multiple choice tests, choose C if you aren't sure!!    ;D
It's the first step...congrats!!

 :rofl;

One form asks about my psychological "issues." I have anxiety and depression and take meds for it. I vaguely remember reading somewhere on here about filling that type of stuff out, but can't find it. They'll be getting my medical records, so they'll know I'm on the meds. What should I say?
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
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www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
paris
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« Reply #8 on: October 26, 2007, 01:01:12 PM »

Be honest.  They will see all your medical records anyway.  Explain why you take the meds. Believe me, being on an anti-anxiety or anti-depression med is nothing new to them.  Seems to a part of kidney failure.
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KT0930
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« Reply #9 on: October 26, 2007, 01:16:58 PM »

Which order things are done in and what clearances you need from which docs depends on the center you go to. When I had my transplant 5.5 years ago in NC, they approved me into their program and then told me that they had to have OK's from my dentist, GP, and gyno before we could proceed (I had a living donor). I got listed this year at a hospital in GA, and before they would even see me I had to have a pap and if I had been over 40 I would have had to have a pap. In addition, the day I met with the ones in GA they had me get an ultrasound, a test of lung capacity, x-rays, and LOTS of blood drawn.

My recommendation is do whatever they ask for without complaint. Also, go ahead and tell them about the meds. As you said, they'll have your medical records, so they'll know anyway.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Romona
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« Reply #10 on: October 26, 2007, 01:20:40 PM »

Good Luck to you! You'll do fine. My advice is if you have any tests done at a medical facility other than the transplant center, get copies of results. For example, I had to provided a copy of my TB test results on three different ocassions because they lost the test results. I'm so happy for you! :cuddle;
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paddbear0000
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« Reply #11 on: October 26, 2007, 01:48:35 PM »

Good Luck to you! You'll do fine. My advice is if you have any tests done at a medical facility other than the transplant center, get copies of results. For example, I had to provided a copy of my TB test results on three different ocassions because they lost the test results. I'm so happy for you! :cuddle;

Thanks! That's a great idea!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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