Creatinine elevated, what has your doctor done?

[Chris]

Chris can you get a 2nd opinion? Hope your feeling better soon

At this point, I don't know and doubt it at the same time. The reason I was transferred to my transplant hospital was because the local specialist did not want to try anything due to having a transplant. If I see another doctor at Northwestern, they then converse with head dimwit uno numero team of yes men/women of the transplant team for kidney and pancreas transplants. It might be different if I had just a kidney transplant though, but since I had a pancreas also, everything goes directly to the pancreas transplant team at the clinic. The transplant hospital I would like to try has two problems. One, they do not except people who already had a transplant for follow up care and two, they are the furthest and hardest to get to and not easy to get to from the commuter train to Chicago. A double Whammey!

I need someone who is not always thinking of the transplant as the cause, but something else, basically, someone who thinks outside of the box. Hard part is find who will or who do I turn too.

[Romona]

Chris, sorry you aren't getting anywhere with your pain. 

[goofynina]

Ugh, how absolutely frustrating    but on a lighter note, i am glad you are back my friend, missed ya 

[Chris]

Ugh, how absolutely frustrating    but on a lighter note, i am glad you are back my friend, missed ya 

Thanks
And that reminds me of another thing that pissed me off over there. They have computers in each patient room, but patients can't use them, they're just for medical records and entries of vitals. Yet they have in the room telling were there is internet access for visitors. Well crap, how about us that are stuck to the darn floor! Bad enough your not allowed to go to Starbucks or the other coffee shop downstairs for real coffee!

Also, some jack in the box hit my vehicle in the hospital parking lot at my local hospital and took off. Now I need the bumber sanded down and repainted CRAAAAAAAP!

[okarol]

JEEEEZZZ!! Sounds like you need a break!
I hope you didn't miss too much in school and you can catch up.
I am stunned that they couldn't find the cause of your pain.
If it's not kidney stones it still sounds like a urinary tract problem - there must be help available somewhere!
I am sorry Chris, that you've had to endure all this BS!
I am glad you went to get help though, because pain isn't something to ignore.
Is there a urologist that would get involved? Or have you done all that??
Best wishes! and Happy Belated Birthday!
 

[brenda]

Holy Crap Chris! That all just plain sucks. Sorry you had to spend you B-Day like that. Next year you'll have to have a double one. Hope your pain goes away, that's no fun to live with day in and day out. 

[Wattle]

Firstly....   

and secondly..... the only advise I can give is      try to make them listen!   and I hope the pain is sorted soon.   

[Chris]

That's the problem, they are not listening and only seem to be focusing on if the transplant is rejecting or not and not the cause of pain no matter how much you complain and tell them  all the history of it. When I do ask questions, they get flustered I would say for inputing my opinion or asking why. Probably have a stamp on my file that says "Combative Patient" in bold red letters. I know I have a muscle relaxer around somewhere that I never used from something that happened to me, so I am thinking of trying that once to se what happens. Really do not want to be taking pain meds though just to mask the problem. Besides, now I am dealing with insomnia and may need a pill for that, just hate taking more and more pills! They need to flavor these things, I would settle for the Sweet Tarts taste since they are both chalky

[okarol]

... just hate taking more and more pills! They need to flavor these things, I would settle for the Sweet Tarts taste since they are both chalky

mmmmMMMMM SweetTarts 

[Romona]

How is everything going Chris?

[Chris]

Nothing has changed, but not using pain meds.

[Romona]

Hey Chris, Hope you had a good holiday. How is the pain? You might have more luck finding out what it is if you call the Psychic Friends Network. 
Seriously hope you are ok!

[Chris]

Well achpuncture was suggested by one classmate, why not Psychic Hotline. As long as I do not have to urinate and have the pain switch sides, I'm ok.

The transplant center called me tonight doing a research project for the head dimwit there. The young girl asked me if I had a hernia at my incision site or knew what a hernia was. I told her yes, but I highly doubt your professor knows, you may want to find a new professor after my experiences with him.
She said that's all we needed to know and hung up.
Oh well, good to vent at these students who do not ask questions when they are in the room with patients along with the doctor and do not ask questions.

[Romona]

Chris, you must be terribly frustrated about all of this. I know I am and my pain is nothing like yours. I am to have some more ultra sounds. My pain isn't constant. It is more annoying than anything else. 2 docs think it may be neuromuscular. I do have pain in my feet at times and I am sore in the mornings and after sitting too long in addition to the pain in my side. I hope you find some answers soon. Pain really affects your quality of life. 

Do you really need to urinate?? 

[Romona]

Haven't heard from you in awhile Chris. How are you?