Creatinine elevated, what has your doctor done?

[livecam]

You said it!

[Chris]

Haven't slept yet and still can't fall asleep, but finally went and got my results, which is good and bad. The good, levels have finally decreased after more than 3 weeks. The bad, I still ave pain. So I called back dimwit #1, who didn't get all of my results back yet from Friday, nor could she tell me if I had the bk virus. All she could suggest is that it could have been a urinary trac infection that is clearing up on it own and that maybe I have a hernia. For that, I need to see my GP for. I'm pretty sure it's not a hernia, but will have to wait till Monday to see GP. Ever feel like the buck is being passed around. I'm frustrated and not tired, not a good combination right not

[Romona]

I'm glad you got a little good news. I hope they find the cause of your pain soon. 

[Amanda From OZ]

I hope you feel better soon and you get rid of that pain!

Amanda

 

[Chris]

Well I finally went to sleep at about 4 am Saturday morning due to the news being on and slept till 1 pm. Bad part was medication schedule is off since I took my meds 3 hours late. Pain didn't magically disappear though.

Thank You for your thoughts.

[okarol]

Chris is still in pain and has been round and round with CT scan and doctors but no answers yet.
Today he is being admitted. Please join me in sending him some prayers and good thoughts!
Hope you're back soon and reading this Chris!! 

[angela515]

Good luck Chris, hope they get ya taken care of soon hun! 

[vandie]

Positive thoughts headed your way Chris.

[goofynina]

Hopefully they will have you feeling good as new soon,  sending good thoughts and prayers your way my friend 

[tamara]

Thinkin of ya Chris 

[Laurie]

Get well soon 

[RichardMEL]

Good luck Chris we want to hear good stuff soon!

[lola]

wishing you the best Chris

[kitkatz]

Should make for an interesting post when you get out of the hospital.  Get out of there soon.

[goofynina]

Hey Chris, just wanted to let'cha know i miss harrassing you in the chat room    Hope they are taking good care of you and you are no longer in any pain.  Take care and get well soon,  miss ya buddy   

[okarol]

Chris was transferred from his local hospital to his transplant hospital in Chicago.
He said his creatinine is okay but he is still in pain.
Today is his birthday, poor guy!

  Hope things get better soon Chris!

[vandie]

Hang in there Chris.  I am so pleased you are getting this handled.  Be well.

[Romona]

Happy Birthday Chris! Hope all is well soon!

[goofynina]

Hang in there my friend, i'm looking forward to our chats soon

[angela515]

Hopefully you'll be home soon, and in no pain... 

[Chris]

First,
Thank you for the well wishes and happy birthday's.

Gonna try to keep this a short story version.
I have been having pain for 5 weeks now where my transplanted kidney is located and at my natural kidney on the same side. Originally my labs were high for 3 weeks straight and then started to lower, but I still had the pain and would hurt differently when I urinated. Initially a ultrasound was done and it just showed a thickening of the bladder, so I was told it was not a transplant problem and just go see my general doc since and I quote "we're to busy to take you in." Call GP up, I get in and he wants to admit me to the hospital, but I told him I had to finish my night class and my class lab the next morning due to test coming up. So he says call me the next day and we'll get you in. Finish class and he tells me to just go to the ER. Go to the ER and they do labs and a cat scan. Both test comeback fine, but said he would admit me for pain management. I declined because they weren't gonna do any test. I go back to my GP and I see his associate, he admits me that day and orders an additional cat scan with contrast (suprising, berry flavored contrast wasn't to bad to down), x-ray, urine output samples and cultures, stool samples and the magic of morphine. He had a surgeon come in and a urologist come in to see me for an opinion. Urologist wanted to do a scope, but felt it would be better for the transplant center to do that than him. My local nephrologist couldn’t find an answer to my pain, so she get's a hold of my transplant center. On Saturday, Nov 10, I am transferred to my transplant center in Chicago. Well crickey, they didn't do jack squat except give me morphine then some pain killer pill that makes me dizzy after they reviewed all the test done, continued IV fluids and morphine, monitor my urine output and do lab work after lab work after lab work while having me on a clear liquid diet only. Heck, the idiots didn’t even take into the consideration of doing the scope up the urethra like the local urologist suggested. Finally on Monday the 12, my birthday, whoopee-fricken-dah, the I am finally given solid food for dinner. Since I could not do anything for my birthday, I improvised and ordered a brownie with whipped topping on top of it. Monday night all they could come up wit is "we feel your CellCept is to low of a dose, so we upped it and that you just have a stretched muscle." The worst part is the doctor (Dr. Reverse Einstein, head dimwit, dimwit uno numero #1) who did the pancreas portion of my transplant increased my CellCept because he felt it was to low of a dose without even seeing me or looking into my pain for himself. My CellCept has been at that level for over 2 years now without his input whatsoever before. This is the same idiot who told me I no longer needed to come to clinic unless it was really important.

What kind of BS is that, stretched muscle my ass! Did you listen to me on were my pain is and how it changes and it hasn't gone away in 5 weeks! And how did you come up with my CellCept is to low?
 What a complete waste of a hospital stay, geez what a bunch of morons over there and to many yes men who do not have the balls to question the authority to come up with their own hypothesis! I think I counted about to 18 dimwits with the hospital stay at the transplant hospital, while the local hospital was willing to look at other aspects as long as they did not have to upset the transplanted kidney portion.

So much for keeping it short!

[angela515]

Wow... sorry you had to waste your time and didn't find the answers you were looking for. Seems to me they were just in a hurry to get you out of there and not search for the problem... I hate doctors like that.

How is your pain now? The same? Better? Worse?

I hope you are better, and if not I hope if you need to go back they search for the problem. I'm not sure how a low CellCept level could cause pain.. I don't remember pain issues when i was on CellCept with m first transplant... hmmm.

 

[Chris]

Angela, my pain is the same and the only thing that made it go away was the morphine they gave me, that  also made me sleep thru it. I stopped taking that on Sunday because all I did was sleep. Pain medication they gave me makes me dizzy and sleep for an hour and I haven't taken that yet either. I drove home from the train station from Chicago after having taken it 3 hours prior and it is something I do not want to do again while I go back to school. So I am dealing with it like I did before, put up with it.

CellCept has never caused abdominal pain in me even when I was on a much higher dose and never at my so called low dose. The answer to my problem is ludicrous. I have no faith in this transplant center.

[angela515]

So sorry your having to go through this. I hope the pain subsides on it's own eventually.. 

[lola]

Chris can you get a 2nd opinion? Hope your feeling better soon