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Author Topic: My Arm Is Swollen  (Read 27335 times)
MyssAnne
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« Reply #50 on: December 15, 2007, 06:18:23 PM »
It's fixed!!! Youi get to have Christmas after all!! YAY!!!!  THat is wonderful, wonderful news!!

It's about time it got fixed, darn it!!!

I agree with ya, when people are NICE, it just gets me. I'm the same way, I live alone, and drive myself to wherever I need to go. Ya do what ya gotta do.

I am so pleased, though, you get to have your Christmas after alL!!!
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mcjane
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« Reply #51 on: December 15, 2007, 06:43:40 PM »
My husband had fistulagram done & he drove himself to & from. I really expected a call to come & get him, didn't happen.

I have no idea what the big deal is. Maybe it has to do with covering their arse.

Rerun, have a nice holiday.
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Rerun
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« Reply #52 on: August 03, 2008, 09:52:26 AM »
One great thing about IHD is the permanent "Journal" that it keeps for me.

My arm and neck are swollen again!!  So I found this post and the first time this happened was right after Vegas in October 2007, then again at Christmas.

I remember in January when I went for a follow-up they told me they were not going to open up anymore blockages because my body was trying to shut down my arm because there was so much blood going to the fistula.  The more we opened up veins the more my body would fight back and try to shut them down.  If we just left it alone my body would make new collaterials to go around the blockages.

OK, so now my arm and neck are swollen again. My face looks like I'm on 80mg of prednisone or something.  I went and had just a fistulagram (no ballooning or anything) two weeks ago.  My surgeon called and told me that there was a big vein deep in my chest that was blocked and there was nothing they could do surgically.  Then he started talking to himself on the phone and was thinking of other ways around it.  He said he would talk to some other vascular surgeons and get back to me this coming Tuesday. 

Well, this morning the swelling is terrible.  I think tonight at dialysis I'll try to challenge my dry weight.  My left boob looks like a huge balloon.  Not a pretty sight!!! 

 :shy;
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Deanne
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« Reply #53 on: August 03, 2008, 09:13:00 PM »
This sounds serious, as well as miserably uncomfortable. Tuesday sounds like a long way away right now.  :grouphug;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
monrein
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« Reply #54 on: August 04, 2008, 02:34:36 AM »
This all sounds very worrisome Rerun.  I hope Tuesday yields some answers and some relief. :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #55 on: August 04, 2008, 11:24:17 AM »
Last night at dialysis they removed enough fluid that I'm a little better.  My left arm and boob are still big, but my face is down.  My dry weight is 48kg and so I tried to challenge .5 down to 47.5 and I crashed.  So my dry weight is right on.  We'll see what tomorrow brings.

My boss at Sears called and he is quitting.  That relieves me in the fact that if I have to quit he won't think he made a mistake in hiring me.  I lasted as long as he did. 

                                                   :clap;
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Chris
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« Reply #56 on: August 04, 2008, 11:30:09 AM »
Was that the same idiot who made a big stink about hiring you?
kg to lbs is a multiple of 2.205? Been so long since I had to use it, I forgot.
Glad the swelling has gone down a little, but hopefully Dr. Coocoopants can come up with a better answer for you.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Rerun
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Going through life tied to a chair!
« Reply #57 on: August 06, 2008, 09:49:33 PM »
The Neph stopped by last night at Nocturnal Dialysis.  He was telling me that it could be fixed by doing such and such.  I don't understand the vascular system.  But, what I was hearing from him was not the same as I was hearing from the surgeon.  I told Neph to call Surgeon so they could get on the same page.  I'm not doing anything until they get their facts straight.


                                                      :Kit n Stik;
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Chris
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« Reply #58 on: August 07, 2008, 07:09:52 PM »
Morons I say Morons!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Rerun
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Going through life tied to a chair!
« Reply #59 on: September 09, 2008, 10:04:01 AM »
I saw the "real vascular surgeon" that I'll be dealing with.  He wants to do another fistulagram and see what vein is draining the arm.  He will then decide what can be done.  He wanted to look at my right arm for another access and I said "no".  He needs to just fix this one.

                                                                    :waving;
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thegrammalady
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« Reply #60 on: September 10, 2008, 03:02:36 AM »
i hope they will find something that will help.
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willieandwinnie
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« Reply #61 on: September 10, 2008, 05:32:06 AM »
 :grouphug; rerun. Let us know.  :cuddle;
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Rerun
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Going through life tied to a chair!
« Reply #62 on: September 16, 2008, 09:10:05 AM »
EWWUUUU!  Today is the day for another fistulagram.  The only good part is the drugs.  I hate, hate, hate this!  I'll let you know how it goes.

                                                                                      :banghead;
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Rerun
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« Reply #63 on: September 17, 2008, 08:38:02 AM »
They did a veinogram on my Jugular to see where it was draining.  It is blocked too and my neck hurts today from them digging around.  They did a fistulagram also and the same vein in my chest is blocked and he couldn't balloon it open.  I won't let him look at my right arm for another access.  In Sacramento they already told me it was no good.  Why is it these doctors need to see for themselves?  My fistula is working fine, but there is no plan B.  I don't know what to say except I've done this dialysis thing 3 years longer than I intended to.  I don't want to be a walking fistula with old accesses all over my body with only 1 vein left in my little finger.  I'm okay for now though.

                                                                           :waving;
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willieandwinnie
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« Reply #64 on: September 17, 2008, 08:48:22 AM »
Oh rerun.  :cuddle; I'm so sorry. Let us know if we can help you.  :grouphug;
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kitkatz
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« Reply #65 on: September 17, 2008, 05:31:18 PM »
Rerun I hope things go better for you soon.
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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monrein
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« Reply #66 on: September 17, 2008, 05:34:03 PM »
Sorry to hear about all you're going through Rerun.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #67 on: September 17, 2008, 06:43:53 PM »
I'm sorry Rerun.  The whole situation stinks.  Wish I could help in some way.   :cuddle;   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Rerun
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Going through life tied to a chair!
« Reply #68 on: September 17, 2008, 06:47:54 PM »
Thanks.  I'm okay.


                        ESRD     :Kit n Stik;
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Ken Shelmerdine
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« Reply #69 on: September 18, 2008, 04:59:21 AM »
Rerun sorry to hear about all this you're going through. My thoughts are with you.  :grouphug;
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Ken
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« Reply #70 on: September 18, 2008, 10:56:33 AM »
Rerun,

I hope you find some relief soon.  It must be very frustrating and painful to go through all that!

-Devon
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okarol
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« Reply #71 on: September 18, 2008, 08:45:57 PM »

 :boxing; You are a fighter Rerun.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #72 on: September 19, 2008, 02:31:11 AM »
My goodness, Rerun!  What you have gone through and are going through.  Girl, my caring thoughts and prayers are with you all the way. :cuddle;
How are you today?
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Rerun
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Going through life tied to a chair!
« Reply #73 on: September 19, 2008, 04:57:18 AM »
I just got home from dialysis.  I'm fine.  My fistula worked fine last night.

                                                     :waving;
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Bajanne
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« Reply #74 on: September 19, 2008, 06:03:06 AM »
Great news! :yahoo; :yahoo; :yahoo; I am so glad to hear that.  Girl, you just keep on keeping on! 
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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