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MooseMom
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« Reply #25 on: October 19, 2007, 09:52:31 AM »

Thanks for that, Paris.  What you are doing seems to be the right thing...keeping an open mind, learning about all of your options and then weighing the pros and cons.  I, too, was averse to the whole idea of my home, my refuge, becoming like a second hospital, but then I thought that people can get used to just about anything, including having dialysis equipment in the house.  With a bit of organization, I can subdue the inevitable medical clutter, I think.  There is a thread on this forum asking people to post photos of their home dialysis set up, and I found that to be of great help; it gave me some good ideas.

And yes, having someone to talk to who has walked this same path is a big help.  As supportive as my husband is, it's not the same as being able to "talk" to someone, even on a computer, who really does KNOW what you're going through.

This site has been a godsend.  I've learned so much, mostly that dialysis is not a synonym for "doom".
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kellyt
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« Reply #26 on: October 22, 2007, 08:03:16 PM »

MooseMom  -  I'm not on dialysis yet either and I plan on doing in-center if and when I have to.  I am, however, a step-mother (however, they're all over 18 years of age now).  But when they did used to come over every other weekend and such there were times when I wanted or needed to leave the house for a few hours.  My husband always acted like leaving the house or even hanging out in my bedroom whenever they were around was going to affect their lives forever!  I just never understood that.  I personally think the girls enjoyed their private and personal time with their father without me around - not that they don't love me or me love them.  So maybe that could be planned as "special time with Dad".  They could watch a guy movie together or something.  Good Luck.  I think you should explain your situation (when it happens) to your step-son and I'll bet you he'll understand (or not care).  You know teenagers!   ;)
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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