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mariannas
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« on: October 08, 2007, 07:41:16 PM » |
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WOW!!! It's so easy. I was actually surprised how easy everything was. I only was at the clinic for about 3 hours total and my nurse doesn't even think I'll have to come for the whole week of training! I am excited to start doing this on my own and hopefully feeling better in the near future.
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Laurie
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Gender: 
Posts: 438
May 13, 2008
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« Reply #1 on: October 08, 2007, 08:08:08 PM » |
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Congratulations Mariannas  I agree, it is very easy. I started on Friday with manuals and used the cycler today. I too was very surprised. Hope things continue to go well for you  |
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
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angela515
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« Reply #2 on: October 08, 2007, 08:17:58 PM » |
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Congrats on your training going well. It is very easy I agree. Glad your getting it.  |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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goofynina
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« Reply #3 on: October 08, 2007, 09:31:35 PM » |
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Good for you Mariannas  Will you be doing CAPD? or CCPD? (the cycler)  |
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mariannas
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« Reply #4 on: October 08, 2007, 09:50:42 PM » |
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I would like to do the cycler, but I'll see how it works into my "nighttime bathroom routine." I ALWAYS have to pee in the middle of the night so I'd have to make sure the tubing is long enough for me to make my nightly trips. I don't think my bladder is smart enough to time itself along with the drain period.  |
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angela515
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« Reply #5 on: October 08, 2007, 09:54:48 PM » |
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You can aslo disconnect and reconnect after going to the bathroom if it don't reach. Due to me having kids, I wanted to be able to disconnect and reconnect as many times as I wanted... incase they needed me. So since I was on Fresenius, I also ordered the extra conections lines, which is a long line with like 4 extra connetion spots on it so You can disconnect and reconnect more times. I know Baxter and Fresenius are different, and I think Baxter you can disconnect and reconnect as many times as you want with the same connection, dont know if I remembered that right or not... but just some other options for ya incase u wouldnt be able to reach the bathroom |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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KT0930
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« Reply #6 on: October 09, 2007, 05:35:49 AM » |
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So glad to hear your training is going well!
I was also concerned about reaching the bathroom, but once my husband and I traded sides of the bed, the tubing reached. The tube is about ten or twelve feet from the machine to me. I did ask my nurse about extensions when I was going on vacation, and she told me they've discontinued them (I use Fresenius) - why would they do that?
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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goofynina
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« Reply #7 on: October 09, 2007, 10:17:32 AM » |
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I am on Baxter and they can order you (if needed) an extenstion that will give you 12' more. And you can disconnect also on Baxter as long as you have the flexi-caps, feel free to ask questions Mariannas, that is what we are here for Will you be on Baxter or Fresenius? |
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mariannas
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« Reply #8 on: October 10, 2007, 07:57:57 PM » |
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Well, I finished my training today and two days early! YAY!!! The only things I had to do today were meet with a social worker and nutritionist and do another exchange in front of the nurse. I was mostly nervous about meeting with the nutritionist because I was SURE she was going to limit my foods further, but it turns out my numbers are really good so I can basically eat what I want, but limit sodium and take my binders. I can eat potatoes again...and spaghetti sauce!!! The only thing we are worried about is me not eating enough. I am fairly small and I usually have a few very small meals (snacks, really) and one big meal per day. I'm not too sure how I'm going to get 6-7 servings of protein in when I might eat one serving of protein every other day now. I see many a supplement in my future.
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goofynina
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« Reply #9 on: October 10, 2007, 10:29:49 PM » |
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Glad all your training went well Mariannas Remember, patients on PD lose alot of protein so you will have to get some supplements for sure if your not able to get it in the foods you eat. Take care and keep up the great work, remember, we are just a keyboard away if any questions and/or problems arise |
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mariannas
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« Reply #10 on: October 11, 2007, 11:44:56 AM » |
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Yep. The dietician gave me some protein packets so I can add them to pretty much anything. I have a feeling those little packets will become my new best friends.
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mariannas
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« Reply #11 on: October 25, 2007, 05:20:18 PM » |
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Woohoo! I got my first set of labs back today and the difference between now and before I started is remarkable: Before starting PD: Creatnine: 7.8 BUN: 81.0 Potassium: 4.3 Phosphorus: 5.7 Two weeks later: Creatnine: 5.1 BUN:46 Potassium:4.8 Phosphorus: 2.5 Everything is in range except my Phosphorus which is BELOW range. WOOT!!! Now wonder I've been feeling so much better.  |
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cmpgelen
Newbie
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Posts: 7
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« Reply #12 on: November 02, 2007, 07:48:40 AM » |
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Congrats on the successful training! I think PD is a great modality. successful training is quite an accomplishment! |
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rookiegirl
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« Reply #13 on: November 02, 2007, 10:26:35 AM » |
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Mariannas,
Are you currently on the cycler? If so, how's it going?
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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MyssAnne
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« Reply #14 on: November 02, 2007, 12:54:14 PM » |
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Congrats, Marianna!! I'm so glad it's going well for you!!!! Let us know how it continues, and if you have any questions, ask!!!
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KT0930
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« Reply #15 on: November 02, 2007, 01:34:44 PM » |
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mariannas, I've also found some protein bars that don't taste too bad (just be sure to take a binder with it!). I believe they're Atkins Nutritional Advantage, and I really like the chocolate chip (they're chocolate liquor, that my nutritionist says is ok) and apple. Wal-Mart carries them, as do Publix and Kroger, though they're much cheaper at Wal-Mart - but still not cheap. When I have them in the house, I'll usually have one of those for breakfast, and a very small lunch and dinner, and my albumin stays around the 4.2-4.4 range.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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mariannas
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« Reply #16 on: November 02, 2007, 04:21:27 PM » |
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Mariannas,
Are you currently on the cycler? If so, how's it going?
Nope, not on the cycler quite yet. Right off the bat my cell counts became a bit elevated and I had a course of antibiotics for about 14 days. My doctor isn't sure if it was actually peritonitis or not since we caught it and took care of it so quickly. Anyways, they said they don't want to do my PET/adequacy test too soon after an infection so as to give the membrane a chance to be really strong. I am scheduled for the PET test on November 20th. |
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Ken Shelmerdine
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« Reply #17 on: November 29, 2007, 07:47:21 AM » |
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Marriannas how did your PET test go? Hope all is still going well for you  |
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Ken
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mariannas
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« Reply #18 on: November 29, 2007, 01:41:56 PM » |
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Marriannas how did your PET test go? Hope all is still going well for you
I just got my results back yesterday! My creatnine clearance was 78.74 (my goal is about 60 per week) My KT/V was 2.07 (my goal is above 2.0) Everything else was in normal range except my hematocrit and hemoglobin which were just a tiny bit low. Amazingly my albumin was 3.5 (my goal is above 3.4). I have no idea how that happened, because I know I don't eat the recommended amount of protein (6 servings! I'm only 87 pounds or so...). I must be doing something right though! |
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angela515
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« Reply #19 on: November 29, 2007, 02:49:06 PM » |
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So are you a high transporter or low?
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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mariannas
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« Reply #20 on: November 29, 2007, 03:08:05 PM » |
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My lab results don't say, but I have to see my nephrologist soon so I am assuming he'll tell me then. I'm assuming I'm at least a little high since I reabsorb quite a bit of 1.5 solution (2.5 is better, but I still absorb some of that too). Luckily I still pee a lot so I am not seeing any swelling anywhere. I am sure we'll be tweaking my prescription when I go to see him in a week or two.
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angela515
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« Reply #21 on: November 29, 2007, 06:47:34 PM » |
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Keep us updated |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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goofynina
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« Reply #22 on: November 29, 2007, 09:23:28 PM » |
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Also be careful with your salt intake, that tends to keep the fluid on as well  |
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mariannas
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« Reply #23 on: November 29, 2007, 09:28:57 PM » |
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Oh yeah...no worries about that. I've been watching my salt intake for awhile now. Most food is too salty for me now unless I prepare it myself. |
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Sluff
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« Reply #24 on: November 30, 2007, 04:40:17 AM » |
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I'm glad things seem to be going well on PD. That is great!!  |
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