George's Transplant Evaluation @ UNC

[Lori1851]

HI george 

Sounds like the ball is rolling in getting you ready for that new kidney!!!!!!!!!!!!!!!!!!!!! Test test test and more test lol. Just wish Dustin would get to the point he is ready. I know I am not him dang gone it I would take it from him ( his disease) if I could and I be the one needing one. I will to continue to lifr you up in my prayers

Lori/Indiana

[Wattle]

Great news George.   

I am amazed at the hoops you have to jump through to get on the list there.

Rerun - No poop test here      

[paris]

Yeah!  Glad the results were good.  The surgeon may request a stress test. I just got a card in the mail one day saying when my appointment was for the stress test. No one had said anything about it previously. It is strange how inconsistent the different centers seem to be.  But, sounds like things are rolling right along. You will be on the "list" before no time.

[angela515]

Sounds like your on the way. Good job.

As Karol mentioned.... beware.

[Rose From OZ]

Good to hear things are progressing so fast. Good luck. Rose 

[Falkenbach]

No poop test here      

Nope, I've never had a poop test either, at least not on a routine basis. When I last went into hospital with norovirus (and they thought I might have CMV) I had to give some samples then, but otherwise none.

[skyedogrocks]

I had a CT scan (the scan with the contrast dye) to get a better look at the cyst to determine if it is benign or not.  Got a call from my coordinator today saying the test was negative and there is nothing to be concerned about.  She also said that I only have two more appointments, one with the social worker and one with the surgeon.  Am I understanding that there will be no heart stress test, or colonoscopy, or any other such bodily function tests? 

Yeah on the cyst being negative.  Rob didn't have to do a stool sample, but he did have to do a a heart echo and stress test.  They like to test every year to make sure his heart is healthy for surgery.  They also did an ultrasound on his legs to make sure he has good blood supply.  Don't know if they did that because he is a diabetic.

Each hospital has different tests.  The hospital also does periodic checks on his dialysis to make sure he is running a full session and not ending short a lot of the time.  They would call his Nephrologist to get the updates.

[Rerun]

What about stool cards???  You have to do stool cards!  Every Year!  I just got my annual stool cards!  Oh Joy!

I think I'll go out in the yard and get 3 samples of dog poop and see if they notice.   

Seems they LOST my stool cards and I have to do them again.  I'm so mad!  I don't know how they could Lose them!

I didn't know where to put this and it isn't worth a new thread!   

[goofynina]

Aye yi yi, isnt it bad enough you had to do it once, now you have to do it again?   Hmmmm, maybe you oughta go out in the yard  (to get the sample that is)

[George Jung]

I had my last day of evaluation testing yesterday.  It consisted of a meeting with the social worker which lasted 15 - 20 min and seemed fairly standard.  There were no out of the ordinary questions, just things like what I do wit my time, what are my plans for the future, some questions about feelings, and things of that nature.  She simply went down her check list and made the appropriate notes.

There was another 20 minute meeting with a transplant surgeon and an assistant.  All that entailed was a discussion of my medical history, current condition and the transplant procedure.

I was told that after the team reviews my case they will release their decision.  I should know in a few weeks wheather or not I have made the list at this time.

Now all I need is that kidney.

[okarol]

  Keep up the good work and positive attitude!

[paddbear0000]

I am eagerly waiting the result George! Good luck! 

[Aldente]

Wonderful news George.  I had my evaluation done at Baptist Hospital in Winston Salem and went through many of the same things you did.  I was admitted to something called the "Day Hospital" early in the morning and had all of the tests done in one day.  I remember the nurse coming in and telling me that she needed 22 blood samples.  After she saw the terror in my eyes she said, "22 tubes..one stick."  After that the day was a breeze.  When the results came back a week or so later I met with the surgeon. Waiting for the staff meeting and the subsequent letter was the hard part.

[Sluff]

I hope the best for you George.

[George Jung]

I had my evaluation done at Baptist Hospital in Winston Salem and went through many of the same things you did.  I was admitted to something called the "Day Hospital" early in the morning and had all of the tests done in one day. 

Maybe I should go there, they sound like they want to get it done!  As you can see the testing began for me on October 4th.  I did not miss any appointments although I did have this last one rescheduled from two weeks ago.  And in all actuality I was required to attend an orientation class prior to testing which was probably in August or early September so you can tack that on to my total time count equalling approximately 4 months.

I apologize I don't know your story, have you been transplanted and if so did you have a living donor procedure done in Winston?

[angela515]

Good luck George. I hope your wait on the list is a short one. 

[glitter]

yes- a short wait for everyone 

[Beth36]

Good luck!!  I hope that things start rolling along smoothly and quickly for you!!

Beth

[Romona]

Best Wishes!

[KR Cincy]

Keepin' my fingers crossed for you George!

[George Jung]

Thanks everyone.  I am fairly confident that I will be listed, I think I am a perfect candidate (pat on back, fingers crossed).  It has become my goal to do as much as I can for people in similar situations.  I think we need to act rather than to wait for our number to be called off of some list.  It is my hope and dream that by raising awareness for the need of organ and tissue donation (with a focus on living donations) I can influence someone to step up and save a life.

I posted this somewhere else but if you missed it check it out.  I think it is really cool.   thenead.com




EDITED: Fixed Link URL - Sluff/ Admin

[Beth36]

I think what you're doing is wonderful.  It's people like you who have educated people like me about the need for organ donation.  I only wish I had been a better match for my mom.  We are grateful to my sister for her selflessness and I hope and pray someone like my sister steps up for you.  Good luck to you!

Beth

[Wattle]

I had my last day of evaluation testing yesterday. 

Now all I need is that kidney.

   I hope your wait is short George. Congratulations on jumping all the hoops.   

[Falkenbach]

It has become my goal to do as much as I can for people in similar situations.  I think we need to act rather than to wait for our number to be called off of some list.  It is my hope and dream that by raising awareness for the need of organ and tissue donation (with a focus on living donations) I can influence someone to step up and save a life.

Great post, George, well said.

[Amanda From OZ]

Sorry this is late. But i think its wonderful George .....all the hard work your doing not only to help yourself but everyone else also. 

I hope your wait for a kidney is short.

Amanda
xxoo