Angie got a transplant !!!

[paddbear0000]

Kick those doctors butts, Angie!  You're the boss! 

[charee]

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Lastest on Angie from her web site:

 


Today I feel even better as my fluid weight it dropping! I am at 71kg this morning!

The swelling is really going away!

I am walking around without the walker today .. still weak due to low hemoglobin but don't know my numbers yet.

Edit: Okay .. Creatinine went down more (511) but so did the hemoglobin (62). The doc said that that isn't bad til I said I can't walk more than a block without running out of breath if lower than 66. I know from past experience with my body. So he said if it gets to 60 he will give me 2 pints of blood! Finally!! 
«

[Chris]

That's encouraging news, hope it gets even better.

[Ken Shelmerdine]

Angie I'm so glad that things seem to be improving for you.

[Bajanne]

Angie, we are wishing all the best for you.  You have been through so much.  Hope this is the light at the end of the tunnel.

[Amanda From OZ]

Angie glad to hear things have improved, and you are feeling a little bit better. hope things continue to improve.

Amanda
xxoo

 

[Lori1851]

Angie,
I will keep you in my prayers!

Lori/Indiana

[charee]

Another update from Angie from her web site , go Angie


My kidney was not making any Erythropoetin (not sure of spelling but basically Epo) but today my hemoglobin went from 62 to 66 so it finally is!!!  Good! I was thinking I would have to start with Epo injections subcutaneously in my belly again like when I was on PD! Now I won't have to! So no blood!

BUT ...

Remember how they were NOT on top of the fact that I had my parathyroids out which control / make (not sure which) calcium and the parathyroid hormone in the body? Well with the Prednisone being at such high doses and my kidney peeing out Calcium, it dropped dangerously low. Today I started to have bone pain, joint pain in my knees and back and hips, and my hands were cramping up pretty bad with any movement at all. The Doc I had today was one I didn't see before. He actually listened to me and came back to me with an answer. He asked if I ever had my parathyroids out (duh yes!) and said he will have to give me more pills and put me on IV Calcium. I am hooked to that as we speak. I was feeling so ill I rested most of the morning. I am feeling better now and am once again able to type to you people again!!

My creatinine came down even more: 468

But they didn't tell me what my potassium was. I demanded to know my blood work and this time after 5 hrs of asking got a print out where I discovered my potassium is 5.0! They should TELL me these things!! Shouldn't they??

Other numbers on sheet:

Chemistry:
Sodium: 135
Potassium: 5.0
Chloride: 96 (low)
Bicarbonate: 27
Anion Gap (what is that??): 12.0
Urea: 37.0 (high)
Creatinine: 468 (high)
Glucose, Fasting: 5.1 (fasting? When did I fast??)

Hematology:
LKC: 4.3
ERC: 2.13 (low)
Hemoglobin: 66 (low)
HCT: 0.19 (low)
MCV: 91.4
RDW: 15.0
Thrombocytes: 324
Lymphocyte: 0.1 (low)
Monocyte: 0.2
Eosiniphil: 0.0
Basophil: 0.0

Also the MMF (CellCept) is causing dehydration in me because it is causing me bowel problems. 

[Chris]

I hope you get better soon. I would have hoped that the doctors noticed in your chart about your parathyroid. What's the point of seing a doctor if they are not going to pay attention to your medical history. I guess we all have to deal withidiot medical staff at some point in our lives. Don't know if there is a difference between hemo and pd or just the way facilities do things, but my dialysis center gave me epo shots in the arm and not the stomach thank god! Sorry to hear your going thru so much pain, but hope you get better soon and out of there.

[paddbear0000]

I hope you get better soon. I would have hoped that the doctors noticed in your chart about your parathyroid. What's the point of seing a doctor if they are not going to pay attention to your medical history. I guess we all have to deal withidiot medical staff at some point in our lives. Don't know if there is a difference between hemo and pd or just the way facilities do things, but my dialysis center gave me epo shots in the arm and not the stomach thank god! Sorry to hear your going thru so much pain, but hope you get better soon and out of there.

I don't know if it's the same for epo, but for diabetics, the best place to give insulin is in the stomach. It's absorbed faster and ends up working faster that way.

[Chris]

I hope you get better soon. I would have hoped that the doctors noticed in your chart about your parathyroid. What's the point of seeing a doctor if they are not going to pay attention to your medical history. I guess we all have to deal withidiot medical staff at some point in our lives. Don't know if there is a difference between hemo and pd or just the way facilities do things, but my dialysis center gave me epo shots in the arm and not the stomach thank god! Sorry to hear your going thru so much pain, but hope you get better soon and out of there.

I don't know if it's the same for epo, but for diabetics, the best place to give insulin is in the stomach. It's absorbed faster and ends up working faster that way.

Yes I was told that about insulin. I refused to give shots in my stomach though until I switched to the pump. Then I had too, but luckily Medtronic had a inserter device like a lancet device. I just don't like my stomach area being touch/poked at. Doctors know I am squeamish if they need to feel for my kidney or pancreas. With that said, I was never told that about epo. I guess it depends on which dialysis center you go to.

[angela515]

I was told that about epo also, in 2 different states.. when I lived in Vegas and here in Iowa... so I have always done my epo in my tummy.. it's less painful there too, to me anyways.

[paddbear0000]

Yeah, I used to be squeamish about it too until my thighs became scarred an dtough after years of giving myself insulin shots there. It got to the point where it would take forever for my insulin to kick in. I didn't have choice but to switch locations, and I sure wasn't about to give myself a shot in the butt! Shortly after I started the shots in my stomach, I went on the pump, which made it a very easy transition!

[angela515]

and I sure wasn't about to give myself a shot in the butt!

 

[MyssAnne]

Hang in there Angie, after all this it just HAS to get better. Dagnabbit!!! 

[kimcanada]

WOW  WOW  WOW  !!! Miss a few days around here and all hell breaks loose!!  Angie I have just read your story from the start, and first off congratulations!!

Second you will be in my prayers for a speedy recovery.  Take care!

Kim

[Ken Shelmerdine]

Oh damn things seem to be going down hill again for Angie. Here's the latest:

Creatinine has been steadily going up the last 3 days. My hemoglobin is dropping again. My magnesium is too low so the nurse brought me 2 packets of peanutbutter to eat (What? No bread? Sheesh! lol) and they are saying they want me to do another dialysis tomorrow as the kidney is only removing mainly fluid and not the toxins like it should. They said the biopsy revealed no rejection but did reveal that there is damage to the kidney. Or was it the ultrasound that revealed that last part? I am not sure but they did both the last few days. Still waiting for all results. I am so weak today. After my shower I had to have a nap .. and yet they want me out of here to free up my room for a new patient? I live alone and in the last apartment in a very long hall way so I am worried about how I will manage!

I am a little worried. Please keep me in your prayers!

- Angie

[Sluff]

Hope everything will level out in time Angie.

[okarol]

  I pray things improve.

[MyssAnne]

Oh Angie. You have my prayers. 

[Chris]

Sorry to hear things are going so ruff for you Angie. I hope that you do get better. Very odd that they would want to get you out sooner to make room for another person. How about fixing you first and not shove you out the door. I hope you have some sort of support to help you manage once you get out, either friends or family.
Take Care and Get Well

[goofynina]

Thinking of you Angie and hoping things improve quickly for you 

[Joe Paul]

Sorry things are bad for you Angie, hoping they make a change for the better

[angela515]

So sorry Angie, I hope things look up soon. 

[tamara]