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Author Topic: How now? We is an "us", saying "howdy"  (Read 3828 times)
jellybean
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Out of my mind, please leave a message.
« on: September 28, 2007, 10:55:35 PM »
As I am tired of trying to get my own name approved (I'm apparently dumber than I realized) and am, in all honesty a "lurker", We are going to say hello together (cute no?). Mostly  she just doesn't want to type and gave me a firm "you do it, make it good".

Her: Jessie 19 years old in ESRD for the second time. She went into renal failure at around seven years old and recieved her first transplant at the age of 12. We lost her kidney (Emma RIP 10/2007) in October of last year, and thanks to said kidney no longer being functional, had a stroke (her fourth) in April. After a speedy and almost full recovery she is a M W F and doing exceptionally well. She is active with our local NKF and just helped make the last Surf Festival a fun and productive one. She has an interest in just about everything except eating right and monitoring liquid intake ::).

Me: I'm T.L.  :waving; faithful companion and nagging partner of a dialysis patient. I spend most of my life hollerin' at the above induhvidual to eat better, stop eating so much cheese, PUT DOWN THE FRENCH FRY and what the heck is she thinking having ANOTHER Mountain Dew?!?! Seriously, if you see her on the boards, throw a shot in about cheddar goldfish NOT being a food group will ya? I need all the help I can get :banghead; She has nefarious designs on my kidney, as she has decided that there is simply no substitute for a kidney as wonderful as mine, so we are waiting for me to get tested so I can "take one for the team" (I complain because I CAN, but I'd pull my kidney out with a spork and a steak knife if it was the only way).

Well, thats not exactly "us", but its enough warning so that the weak can avoid us....MUAHAHAHAHAHAHA...heh, no We are nice people...really >:D
Logged
Cadaver kidney "Emma" 1/22/2007
MWF Hemo
av fistula
Transplant list as of 2/18/09

"Well behaved women seldom make history"
--Laurel Ulrich

If you have to be in a soap opera try not to get the worst role.
--Judy Garland

Life is hard. After all, it kills you.
--Katherine Hepburn

Stubbornness does have its helpful features. You always know what you're going to be thinking tomorrow. 
--Glen Beaman

“I am ready to meet my Maker. Whether my Maker is prepared for the ordeal of meeting me is another matter.”
--Winston Churchill

“When choosing between two evils, I always like to try the one I've never tried before.”
"When I'm good I'm good, but when I'm bad, I'm better"
--Mae West
jellybean
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« Reply #1 on: September 28, 2007, 10:59:05 PM »
Erm...we lost Emma 10/2006, there was no time travel involved in her kidney failure. :oops;
« Last Edit: September 28, 2007, 11:06:44 PM by jellybean » Logged
Cadaver kidney "Emma" 1/22/2007
MWF Hemo
av fistula
Transplant list as of 2/18/09

"Well behaved women seldom make history"
--Laurel Ulrich

If you have to be in a soap opera try not to get the worst role.
--Judy Garland

Life is hard. After all, it kills you.
--Katherine Hepburn

Stubbornness does have its helpful features. You always know what you're going to be thinking tomorrow. 
--Glen Beaman

“I am ready to meet my Maker. Whether my Maker is prepared for the ordeal of meeting me is another matter.”
--Winston Churchill

“When choosing between two evils, I always like to try the one I've never tried before.”
"When I'm good I'm good, but when I'm bad, I'm better"
--Mae West
Roxy
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« Reply #2 on: September 28, 2007, 11:29:26 PM »
  :waving; Welcome to the site!
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Joe Paul
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« Reply #3 on: September 29, 2007, 01:40:20 AM »
Welcome jellybean, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #4 on: September 29, 2007, 04:52:57 AM »
Welcome to our community!  I can see that you guys will fit right in here with certain crazy people that we have here (call no name, bear no blame, right, Goofynina?)  This community has become a real family and you will find that this site can be a splendid tool in your dealing with your renal challenge.  There is information, entertainment, fun, a place to vent when you need too, and above all, people who REALLY understand what you are going through.  And Jellybean, I am always gratified when spouses and loved ones take the time to join us.  And I was touched at your care for Jessie.  I am as guilty as she is concerning nutrition and liquid intake and paid for it yesterday with excruciating cramps and feeling as if I would pass out.  I too am MWF.
Please continue to post.  We want to know how Jessie is doing - not nosy, just family.
 :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Romona
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« Reply #5 on: September 29, 2007, 04:56:59 AM »
 :welcomesign;
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keefer51
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« Reply #6 on: September 29, 2007, 07:19:02 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
glitter
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« Reply #7 on: September 29, 2007, 07:45:54 AM »
hi-jellybean- funny post! I am a cargiver also- to my husband who also is too lazy to write himself.  :banghead;   :welcomesign;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
willieandwinnie
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« Reply #8 on: September 29, 2007, 08:05:17 AM »
:welcomesign; jellybean,
I am also a care giver to my husband. You have come to the best site for all kinds of support. You'll fit right in here.

Kathy
willieandwinnie
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kitkatz
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« Reply #9 on: September 29, 2007, 10:30:10 AM »
Welcome to the site. It sounds like you will fit right in among the crazies here.  Life on dialysis gives you a different perspective on things.




kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Sluff
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« Reply #10 on: September 29, 2007, 11:55:54 AM »
Welcome to ihatedialysis.com. Which one is Jelly and which one is Bean?
I'm going to avoid you both now.. OK...**cowering in the corner** just kidding.

You probably have lots of experiences to share, so feel free to post them all you want. See ya in the forums.

Sluff/ Admin
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Hawkeye
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« Reply #11 on: September 29, 2007, 12:34:09 PM »
Hello and  :welcomesign;
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It's not easy being green.
donnia
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me and my donor Joyce
« Reply #12 on: September 29, 2007, 07:38:10 PM »
 :welcomesign; to the family.  Loved your introduction. 
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
lola
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I can fly!!!
« Reply #13 on: September 29, 2007, 07:49:12 PM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
brenda
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« Reply #14 on: September 29, 2007, 09:25:42 PM »
 :welcomesign; To both of you.
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Life is what happens while your making other plans.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #15 on: September 29, 2007, 09:39:43 PM »
 :waving; Hi Jellybean,
Glad you graduated from lurking to posting - hope to hear more from you two!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......
« Reply #16 on: September 29, 2007, 11:01:30 PM »
Hey Jellybean and TL,   Love your intro my friends,  tell Jellybean you made it AWESOME  :2thumbsup;   Looking forward to hearing more from the both of you soon.    :secret;  I sent you a pm ;) 


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
MyssAnne
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« Reply #17 on: September 30, 2007, 08:45:19 AM »
Welcome, Jessie & T.L., aka Jellybean! I agree with all others, you will enjoy this site, and learn so much from  it, I know I have! As Bajanne noted, you will definitely fit in, your humor bears a close resemblance to others here, including GoofyNina!  Enjoy!!  :beer1; :beer1;
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paddbear0000
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Dogs & IHDer's are always glad to see you!

WWW
« Reply #18 on: September 30, 2007, 05:19:23 PM »
 :welcomesign;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
jellybean
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Out of my mind, please leave a message.
« Reply #19 on: October 18, 2007, 08:25:15 PM »
thank you all for the  :welcomesign; 
I (jessie) am the Jellybean part of us. Trishalynn (T.L) now got her own and that is Orphicdragon. she's posted a couple of times. feel free to PM us both!
Logged
Cadaver kidney "Emma" 1/22/2007
MWF Hemo
av fistula
Transplant list as of 2/18/09

"Well behaved women seldom make history"
--Laurel Ulrich

If you have to be in a soap opera try not to get the worst role.
--Judy Garland

Life is hard. After all, it kills you.
--Katherine Hepburn

Stubbornness does have its helpful features. You always know what you're going to be thinking tomorrow. 
--Glen Beaman

“I am ready to meet my Maker. Whether my Maker is prepared for the ordeal of meeting me is another matter.”
--Winston Churchill

“When choosing between two evils, I always like to try the one I've never tried before.”
"When I'm good I'm good, but when I'm bad, I'm better"
--Mae West
Zach
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"Still crazy after all these years."
« Reply #20 on: October 18, 2007, 09:41:24 PM »
Quote from: jellybean on October 18, 2007, 08:25:15 PM
thank you all for the  :welcomesign; 
I (jessie) am the Jellybean part of us. Trishalynn (T.L) now got her own and that is Orphicdragon. she's posted a couple of times. feel free to PM us both!

Welcome to both of you!
 :beer1; :beer1;
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
KR Cincy
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Home hemodialysis since May 07
« Reply #21 on: October 19, 2007, 03:14:54 AM »
Welcome Jessie and TrishaLynn...great introduction...you'll love this place!


[and Jessie, I love the cheddar goldfish too...]
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Not giving up...thanks to Susan.
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