sad and depresed

[Sara]

Larraine,

I'm trying to talk him into at least learning more about the NxStage.  He's really not doing well on in-center dialysis, so I'm hoping that daily dialysis, and using the buttonhole technique, will be better for him. 

Is Rob still working right now?  If not, what did your social worker say/think of that?

Sara

[skyedogrocks]

Rob is still working.  He felt like the in-center dialysis was a part time job for him.  He definitely needs the work outlet, it helps keep him sane. 

Rob always did well with dialysis, he never felt sick afterwards.  I know this is different for every person.  Try going on nxstage.com to learn more about it.  Rob is doing very well with this.  He is feeling better, since he can be a bit more liberal with fluids and the less likely hood of cramping.  Don't get me wrong, it takes a while to get used to.  For the first week, I felt like this was our whole life....working, eating dinner, dialysis and sleeping.  This is our second week and I am feeling better about it. 

Hopefully Joe will look into it!

[letaek]

My dad hid the severity of his kidney disease as well....Add insult to injury and he is diabetic as well.

He had to go to the ER 2 yrs ago for low blood sugar and that is when we found out it would be dialysis for the rest of his life-HUGSS
Let him know you love him no matter what-I can see how easy my father would have retreated into himself the days after coming home from a five day stay in the ICU but we did not let him

[Meinuk]

Never truer words spoken, "in sickness and in health".  Andrea, it is not easy and it may not be what you thought you signed up for, but imagine how scared he must have been to not to tell you.  You love him.  Diabetes & kidney disease suck.  Depressions sucks.  But all of these things can be managed.  If your relationship can survive these initial shocks, then you can survive almost anything.  Think of it like seasoning a frying pan, once it is well seasoned, it is better than teflon - nothing sticks to it.

Give yourself some time - now is not the time for rash decisions, you can have a life that is not ruled by disease.  Just don't expect it to happen overnight.  Finding your pathway is a slow process - especially when you are walking down that path hand in hand.  The enormity of today could easily be a survival story for the future.

Meltdowns are great, and highly recommended - that is why we have the Rant icon.  IHD has helped to give me back my sanity in the 10 months that I've been reading the boards, and I hope that it can help you.  We're rooting for you.

Best,

Anna

[tamara]

Never truer words spoken, "in sickness and in health". Andrea, it is not easy and it may not be what you thought you signed up for, but imagine how scared he must have been to not to tell you. You love him. Diabetes & kidney disease suck. Depressions sucks. But all of these things can be managed. If your relationship can survive these initial shocks, then you can survive almost anything. Think of it like seasoning a frying pan, once it is well seasoned, it is better than teflon - nothing sticks to it.

Give yourself some time - now is not the time for rash decisions, you can have a life that is not ruled by disease. Just don't expect it to happen overnight. Finding your pathway is a slow process - especially when you are walking down that path hand in hand. The enormity of today could easily be a survival story for the future.

Meltdowns are great, and highly recommended - that is why we have the Rant icon. IHD has helped to give me back my sanity in the 10 months that I've been reading the boards, and I hope that it can help you. We're rooting for you.

Best,

Anna

Anna , Love the analogy about the Teflon Frying Pan. Great way of summing up relationships and the trials and tribulations we must go through, but hey once we are through them we will SURVIVE !

Take Care all you caregivers we love u heaps

Tamara xxx ooo

[Meinuk]

Thanks Tamara!

I was having a post dialysis friday night relationship "Moment" when I wrote that post.  Something about Andrea's situation really hit home for me. That is what I love about IHD.  We all have so much in common - even when we don't.

Best,


Anna