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Author Topic: Please help me help this little boy  (Read 19491 times)
ODAT
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Nala - Mom's Cat

« Reply #50 on: March 17, 2008, 08:12:02 AM »

A Child Of Mine (To All Parents)
Edgar Guest

I will lend you, for a little time,
A child of mine, He said.
For you to love the while he lives,
And mourn for when he's dead.
It may be six or seven years,
Or twenty-two or three.
But will you, till I call him back,
Take care of him for Me?
He'll bring his charms to gladden you,
And should his stay be brief.
You'll have his lovely memories,
As solace for your grief.
I cannot promise he will stay,
Since all from earth return.
But there are lessons taught down there,
I want this child to learn.
I've looked the wide world over,
In search for teachers true.
And from the throngs that crowd life's lanes,
I have selected you.
Now will you give him all your love,
Nor think the labour vain.
Nor hate me when I come
To take him home again?
I fancied that I heard them say,
'Dear Lord, Thy will be done!'
For all the joys Thy child shall bring,
The risk of grief we'll run.
We'll shelter him with tenderness,
We'll love him while we may,
And for the happiness we've known,
Forever grateful stay.
But should the angels call for him,
Much sooner than we've planned.
We'll brave the bitter grief that comes,
And try to understand.

 :grouphug;


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As is your sort of mind, so is your sort of search: you will find what you desire.
Sluff
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« Reply #51 on: March 17, 2008, 08:24:05 AM »

Tyler continues to have good and bad days, but his Mom knows the end is near and inevitable.

Odat that is a very nice poem.  :thumbup;

Odat; I posted that poem in their guestbook.
« Last Edit: March 17, 2008, 08:33:08 AM by Sluff » Logged
lola
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I can fly!!!

« Reply #52 on: March 17, 2008, 08:36:20 AM »

A Child Of Mine (To All Parents)
Edgar Guest

I will lend you, for a little time,
A child of mine, He said.
For you to love the while he lives,
And mourn for when he's dead.
It may be six or seven years,
Or twenty-two or three.
But will you, till I call him back,
Take care of him for Me?
He'll bring his charms to gladden you,
And should his stay be brief.
You'll have his lovely memories,
As solace for your grief.
I cannot promise he will stay,
Since all from earth return.
But there are lessons taught down there,
I want this child to learn.
I've looked the wide world over,
In search for teachers true.
And from the throngs that crowd life's lanes,
I have selected you.
Now will you give him all your love,
Nor think the labour vain.
Nor hate me when I come
To take him home again?
I fancied that I heard them say,
'Dear Lord, Thy will be done!'
For all the joys Thy child shall bring,
The risk of grief we'll run.
We'll shelter him with tenderness,
We'll love him while we may,
And for the happiness we've known,
Forever grateful stay.
But should the angels call for him,
Much sooner than we've planned.
We'll brave the bitter grief that comes,
And try to understand.

 :grouphug;



:'( that is such a nice poem
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paris
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« Reply #53 on: March 17, 2008, 09:50:59 AM »

Makes all my problems very small.  Tyler has fought such a hard battle and my heart breaks for the whole family.  Lola, thanks for keeping us updated. I visit your caringbridge site often and always look to see how Tyler is doing.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
ODAT
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Nala - Mom's Cat

« Reply #54 on: March 18, 2008, 01:10:31 PM »

Thank you for sharing it with their family Sluff. I cry every time I read it. Could not imagine losing a child. God keep them and give them strength.
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As is your sort of mind, so is your sort of search: you will find what you desire.
lola
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I can fly!!!

« Reply #55 on: April 04, 2008, 08:54:04 AM »

Sluff I remember you telling me once you never feel like you can find the right words. I am in tears over what you wrote, it was so perfect :cuddle;
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Sluff
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« Reply #56 on: April 04, 2008, 09:40:09 AM »

Sluff I remember you telling me once you never feel like you can find the right words. I am in tears over what you wrote, it was so perfect :cuddle;

Thank you.  :grouphug;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #57 on: April 04, 2008, 12:50:02 PM »

The situation just gets more heartbreaking. I pray his suffering ends soon, no one should have to feel that pain.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #58 on: April 09, 2008, 10:17:32 AM »

 From Tyler's mom on CaringBridge today:

WEDNESDAY, APRIL 09, 2008 11:31 AM, CDT

Another quick update. Tyler had a fever of 103.8 He is no longer able to be woke up. He is just resting comfortably. We went to the funeral home today. I'm not quite sure how I'm going to work this out. My heart is aching so much as I watch him slowly slip away.


http://www.caringbridge.org/visit/tylerstolp

 :'(
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kidney4traci
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« Reply #59 on: April 09, 2008, 02:38:31 PM »

I just read that little Tyler passed away today around 2:00.  What a touching story.  I only read about this recently but my heart goes out to them.  This is so sad, he was too little.   
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
paris
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« Reply #60 on: April 09, 2008, 03:15:29 PM »

Sweet Boy, rest easy now with no more pain.     I have followed Tyler's journey through his caringbridge site and through Lola's CBsite.   My heart hurts for his family and will keep them in my prayers while they go through the next week.  Heartbreaking. :grouphug; :'(
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #61 on: April 09, 2008, 03:24:10 PM »

I just read this and have not been to Tyler's caring bridge site but I'm just so glad the wait is over. R.I.P. Tyler you are loved by many. We need to keep his family in our prayers because their entire life has been turned upside down for a long time and I just can't imagine the pain they are feeling. 

This is where the caregivers feel the worst because although they know the outcome ahead of time they will always feel like they could have done more, or maybe they second guess themselves or maybe it's the guilty feelings they feel when they may actually feel relieved.

For Dawn and all Caregivers  :grouphug; it takes a special person to put their life on hold for the benefit of another.
« Last Edit: April 09, 2008, 07:19:30 PM by Sluff » Logged
willieandwinnie
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« Reply #62 on: April 09, 2008, 03:54:53 PM »

I was reading Dawns journal this morning and cried like a baby. My prayers go to the whole family, but a special one for his Mom.  :grouphug; It just breaks my heart to read about the suffering of children. This is when I start questioning God. :'(
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kitkatz
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« Reply #63 on: April 09, 2008, 09:10:05 PM »

Love and sympathy to this family.   :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angela515
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i am awesome.

« Reply #64 on: April 09, 2008, 09:37:36 PM »

I have been following Tyler for a long time now... and I am grieving for his family, especially his mother, but I am happy he is where he should be, and in no more pain. He is his family's angel now, and they have his love surrounding them at all times.

 :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
MyssAnne
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« Reply #65 on: April 10, 2008, 07:07:26 AM »

They have had such a hard and horrible time with this. It is at times like this you wonder why
good people suffer while bad people seem to thrive. I'm glad he's not suffering any more.
But it's gotta hurt the rest of his family and friends, that he isn't there any more.  RIP, honey.

You were loved by many.

 :grouphug; :grouphug;
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Deanne
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« Reply #66 on: April 10, 2008, 07:55:49 AM »

Rest well Tyler. You've truly earned your wings. I've been following his story since his link was posted here. I'm happy for him that he is at rest, but I hurt for his family.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
glitter
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« Reply #67 on: April 10, 2008, 04:38:47 PM »

seems there are a lot of softies here,who were following this brave family.  :)  I'm very glad that I am in the company of people with the heart to care about a little boy and his family, when they all have problems of there own the could be preoccupied with, and still took the time to care about Tyler. Your good people. :-*
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
lola
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I can fly!!!

« Reply #68 on: April 12, 2008, 04:12:15 PM »

Just got home from Tyler's visitation and his Mom Dawn is sooooo at peace over his death, the fact that after suffering so much for so long he gave a final smile let her know he was happy and thinking heaven is beautiful. Thanks you guy's so much for keeping Tyler and his family in your prayers and also for the cards. They have a rough road ahead I worry about his little sister Ashley, losing her brother is alot and she's such a sweety.
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