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Author Topic: The continuing saga  (Read 21611 times)
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #25 on: October 08, 2007, 03:16:15 AM »
Hope you find out soon Kitkatz  :cuddle;
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Ken
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #26 on: October 08, 2007, 12:37:13 PM »
Keep fighting girl!  :boxing;    :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
kitkatz
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« Reply #27 on: October 16, 2007, 05:04:09 PM »
I called the transplant coordinator today at Kaiser. I am up for committee again on Thursday.  I have another week's wait until I know one way or another.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
charee
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« Reply #28 on: October 16, 2007, 05:05:33 PM »
hang in there kit good luck :2thumbsup;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #29 on: October 16, 2007, 05:58:03 PM »
 :popcorn; Watching the saga unfold -- sending good thoughts Kit!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......
« Reply #30 on: October 16, 2007, 08:36:56 PM »
*crossing my fingers*  I sure hope they all know what is good for them    :secret; (should i call them and warn them) :P  ;)
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
kitkatz
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« Reply #31 on: October 18, 2007, 05:02:26 PM »
I had a call from LL tranplant coordinator today...


They want the cyst between the rectum and my pelvis removed, as well as the five centimeter cyst I have on an ovary. Just where in the hell did that sucker pop up from?  News to me today.  Anyway I need to see the nephrologist and an ob/gyn and see if I want to do it all.  And no guarantee after all of these surgeries they will transplant me.  ( Insert swear words here.) 

Well so there it is. I am so upset I don't know what I am doing tonight. Running a round in circles screaming comes to mind!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
charee
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« Reply #32 on: October 18, 2007, 05:04:36 PM »
oh kit thinking of you :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
goofynina
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He is the love of my life......
« Reply #33 on: October 18, 2007, 05:17:47 PM »
What are you still doing on here?  I thought i told you to go relax with your Babylon 5  :secret; and your coke  :P
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
kitkatz
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« Reply #34 on: October 18, 2007, 06:42:22 PM »
I did! I watched three whole episodes and fell asleep.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #35 on: October 19, 2007, 09:20:00 AM »
Kit--I'm so sorry to here this! Aftrer the surgeries, remember, use your big stick!!!   :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
MyssAnne
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« Reply #36 on: October 19, 2007, 09:42:33 AM »
Oh for goodness sakes. As if you didn't have enough. Why oh why is it so darn HARD to get on this stupid list???  I'm sorry Kit. Here's something for the coordinators and their committees: :boxing; :boxing;  For you, a HUGE bar of whatever chocolate bar you want and a HUUUGE box of movie popcorn to go with the Babylon shows yet to watch!!!   :beer1;
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kitkatz
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« Reply #37 on: October 19, 2007, 08:25:34 PM »
Yummy. I appreciate the good thoughts. I am in such a bad mood I cannot even think straight. School was interesting today.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #38 on: October 19, 2007, 08:28:21 PM »
 :grouphug;

Thinkin of ya Kit
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
jbeany
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Cattitude
« Reply #39 on: October 19, 2007, 08:53:55 PM »
Hang in there, Kit.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
kitkatz
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« Reply #40 on: October 20, 2007, 11:21:24 AM »
I have an appointment to talk with my nephrologist on November 13 to see where we go next about transplant issues.  I have to decide whether or not to continue and have two major surgeries with no guarantee of transplant or being listed.  You lucky people get to hear all about the pros and cons.
 
It looks like I am not going to get a transplant.  Not medically cleared.  So I am going to go ahead and try to do home dilaysis.  That way I am in charge of everything.

I want to just curl up under a blanket and not come out.  But I am up and moving.  I can;t do anything about now so life goes on.  I feel stressed.

I wonder if I can say do the transplant anyway, and leave the cyst alone and I will take the consequences if it goes bad?  I guess they do not want to do that.

The hella round here goes on forever!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
MyssAnne
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« Reply #41 on: October 20, 2007, 02:51:47 PM »
Oh Kit. I'm so sorry. You've been through so much and to have this thrown up at you. Take the time away with Victor, to get away from all this mess.
Hang in there. We're here for you, no matter what. We have to. YOU have the stick!!! :grouphug;
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goofynina
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He is the love of my life......
« Reply #42 on: October 20, 2007, 04:16:22 PM »
Kit, you will be surprised at the difference you feel once you are "in control"  i hope you do go for home dialysis, and i pity the fool that gets in your way of getting it too  :boxing;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Black
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« Reply #43 on: October 20, 2007, 06:01:49 PM »
Kit, I hope you do get to go to home dialysis.  :2thumbsup; 

After you get into the routine of home dialysis and get to feeling better, you may feel more like going for the surgeries and what ever it takes to get on the list.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
KR Cincy
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Home hemodialysis since May 07
« Reply #44 on: October 20, 2007, 09:12:34 PM »
what to say other than you're in all our thoughts and prayers...the decisions we are forced to make are beyond difficult sometimes...just know you aren't walking on the road alone
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Not giving up...thanks to Susan.
glitter
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« Reply #45 on: October 20, 2007, 11:19:12 PM »
your sure going through a lot- emotionally as well as all the medical BS you unfortunately must deal with- i hope things work out for you.. ;)
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Joe Paul
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« Reply #46 on: October 21, 2007, 01:22:54 AM »
I am hoping things work out for you, you've been through lots and need a break and SOON!
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #47 on: October 22, 2007, 12:06:28 PM »
Kit--You're in my thoughts and prayers girl!   :cuddle; :cuddle;
Logged
********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
paris
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« Reply #48 on: October 22, 2007, 03:08:18 PM »
Kit, I am so sorry.  I understand a little bit because I am coming to the conclusion I won't get a transplant.  We do everything they ask of us, go through all the tests and evaluations--and where does it get us?  Talk to your neph. Maybe he can come up with a better plan.   In the meantime, enjoy your time with Victor in Palm Springs. You deserve some rest and relaxation.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
jbeany
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« Reply #49 on: October 22, 2007, 08:46:12 PM »
Kit, do what you can to get on the NxStage - it gives you a lot more energy, and being in control of even part of this scary trip is a wonderful feeling.  Whatever you decide about the surgeries, we're here for you.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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