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Author Topic: I am my mother's keeper  (Read 5576 times)
ODAT
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Nala - Mom's Cat

« on: September 21, 2007, 12:24:58 PM »

Hello, first I would like to let you all know that I am very sorry I never got to 'talk' to Epoman. He had so much going on yet still made it possible for people in this condition to honestly talk to each other.

Next I would like to tell you all that I feel like I already know you through your emails. Already this site has been helpful. I finally decided it was time to join. I hope my intro isn't too detailed.

My name is Kim (46 yo but look A LOT younger). My mom was told two weeks ago that she had kidney failure. She is 73, and was told she was too old for a transplant. She is at 14% kidney function, has diabetes, high blood pressure, arthritis, high cholesterol, has had her left knee and hip replaced, will be having her right knee replaced on 2/12/07, and top that off with a big heaping of stress and grief.

We went 9/19 for an ultrasound mapping. I was hoping to speak to the vascular surgeon that day, but it was only the ultrasound. Mom has decided to do hemodialysis. She lives alone and gets very shaky and forgetful sometimes. They only mapped both her upper arms. From what I've read here, most people a fistula or graph in their lower arm. Here is the first of what may be silly questions - why can't they do a pic line? Then there would be no needles.

I have no numbers, the initial appt with the kidney doctor my older sister (Cathy 48 yo) went to and didn't ask for them.

I wanted to let you know what my mom's stress and grief is because I think in her mental state it will affect her treatment.

Lost her 8 yo grandson five years ago. He was hit by a car and killed instantly.

Lost her 49 yo son three years ago. Died from throat and lung cancer.

Lost her 76 yo husband 4 months ago. Died from a multitude of things: empysema, brain tumor, etc. Dad was in the hospital 2 months and passed there also.

Lost her 55 yo brother 2 weeks ago. Died of a heart attack. Mom was trying to call him for a week and finally called the landlord to check on him (mom can't get around too good). He had been dead for three days.

My oldest sister, Debbie (lives in Florida) found out on my dad's birthday (9/17) that she has diabetes.

If I go further back, she found her 62 yo brother dead when she went to bring him dinner. She thought he had a red hanky on his face, but it was not. He shot himself. She was alone with him until police arrived.

Her sister was 60 when she died from kidney failure. She had been on home dialysis.

So, we are at the beginning of a long road. I've read the stats on people who have diabetes along with kidney failure and the rate of survival is smaller. I know I shouldn't focus on stats, but I want to be prepared and not have my eyes covered because I'm too scared.

Oh, my screen name is ODAT - One Day At a Time. Something me and my dad said to each other every day in the hospital.
« Last Edit: September 21, 2007, 12:29:24 PM by ODAT » Logged

As is your sort of mind, so is your sort of search: you will find what you desire.
paris
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« Reply #1 on: September 21, 2007, 12:39:33 PM »

I just want to give you and your Mom a huge hug.  :grouphug; You have all been through more than most people ever have to deal with. You have probably figured out that most of us don't look too far ahead. Deal with today, then face tomorrow.  There is so much information on this site and if you can't find an answer, please ask-this is an amazing group of people and they will help find an answer for you.  Come here often and keep us updated about you Mom.   :welcomesign;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
st789
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« Reply #2 on: September 21, 2007, 01:07:51 PM »

 :welcomesign;

At times, things can be overwhelmed.  Take one day at a time.
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Hawkeye
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« Reply #3 on: September 21, 2007, 01:51:57 PM »

Hello and  :welcomesign;
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boxman55
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« Reply #4 on: September 21, 2007, 05:48:45 PM »

welcome to IHD give your Mom a hug...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
angela515
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i am awesome.

« Reply #5 on: September 21, 2007, 06:43:31 PM »

 :grouphug;  :welcomesign;

Your a great daughter and I hope for the best.
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Live Donor Transplant From My Mom 12/14/1999
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goofynina
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He is the love of my life......

« Reply #6 on: September 21, 2007, 07:12:13 PM »

Hello ODAT (cool name, love the meaning) ;)  I am sorry for all you, your mom and your family has gone through and then now this?   I am sure it is all overwhelming but please remember, we are here for you, if you need to rant or if you just need some support.   We do have a caregivers section where you can see how others cope as well.  Great big hugs to you and your mom my friend and i am looking forward to hearing more from you and getting to know you better.  :cuddle;


Goofynina/Admin.
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Redbomb
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« Reply #7 on: September 21, 2007, 08:14:21 PM »

 :welcomesign;
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donnia
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me and my donor Joyce

« Reply #8 on: September 21, 2007, 10:14:52 PM »

:welcomesign;

Wow... you and your family are going though alot. Big huggggs coming your way  :grouphug;

As for your question, using a pic line isn't as dependable as a fistula.  I had a fistula done in March, and it clotted and failed within days (small veins).  I had my cath put in today, and my doctor wants me to go to Dallas to see a vascular surgeon to do another fistula in my right arm ASAP.  He said he just hopes this cath lasts long enough for my fistula to mature.

Good luck, and know we are here for you if you have questions, want to talk or you just want to down right vent.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Joe Paul
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« Reply #9 on: September 22, 2007, 01:53:53 AM »

Welcome ODAT, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
del
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del and willowtreewren meet

« Reply #10 on: September 22, 2007, 05:51:22 AM »

 :welcomesign;  ODAT - do just what that says - One Day At A Time.  You have been through a lot and may be a bit of rough road ahead -for a little while anyway. Big hugs to you and your Mom.  :cuddle; :grouphug;
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Don't take your organs to heaven.  Heaven knows we need them here.
ODAT
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Nala - Mom's Cat

« Reply #11 on: September 22, 2007, 10:15:26 AM »

Hi, thanks for your welcomes and hugs - it is truly appreciated. I hope to be around for a long time on here. See you around the boards!



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As is your sort of mind, so is your sort of search: you will find what you desire.
Romona
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« Reply #12 on: September 22, 2007, 10:19:43 AM »

 :welcomesign;
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willieandwinnie
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« Reply #13 on: September 22, 2007, 10:40:36 AM »

:welcomesign; ODAT,
    This is the place to be to get information and all the support you need. I hope things start getting better for you. I am also the primary caregiver to my husband and sometimes you just need a shoulder to lean on. Take Care

Kathy
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thegrammalady
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« Reply #14 on: September 22, 2007, 12:23:55 PM »

:welcomesign; people who are actively involved in their contition and treatment do better. so ask questions, don't take no for an answer, ask questions, make a pest of yourself, do research, question everything the doctor, nurse, technician, dietitian....well i'm sure you get the idea. one size does not fit all.  this is a wonderful community, a family,  :welcomesign;
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kitkatz
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« Reply #15 on: September 23, 2007, 12:19:50 AM »

Sometimes when it rains in people's lives it pours down! It sounds like you guys are getting flood.  We do not have all of the answers but we can help with some of the dialysis questions.  Welcome and hugs!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Lori1851
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This is me Lori , Dustin's mom

« Reply #16 on: September 23, 2007, 07:06:06 AM »

Hello ODAT,
I liked your "I am my mothers kepper". Bless your heart! You will find so much info on here. I am my "Sons Keeper". He is 22 and on dialysis due to FSGS a kidney disease that causes scarring. He is on hemodialysis. Has had 2 failed fistulas due to his veins being too small and now has a permcath. From what I know when you have a fistula your suppose to dialyize better. Dustin has had his permcath since February when they did it as an emergency. His Dr's have not mentioned about trying again higher up in the arm. There is greater risk for infection with his permcath.
Hope your mom sees brighter days soon. I will keep her in my prayers.

Lori/Indiana mom to Dustin FSGS/ now on dialysis
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Beth36
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« Reply #17 on: September 23, 2007, 02:19:40 PM »

Welcome!  There are so many supportive and wonderful people here.  I'm also here for my mom and I know it is hard to see your mom ill.  Please know that there are people here who can help and give advice.  Mayo Clinic does transplants on people who are older as long as they are healthy....you might want to look into it, if your mom is willing.  I say this because my mom is 62 and thought she was too old.  I hope you find a safe an supportive place here.


Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #18 on: September 23, 2007, 11:33:11 PM »

Welcome to our community, ODAT!!!  Oh my goodness!  Your mother must be a strong woman, in spite of everything.  She has been given so much to handle.  Please communicate to her our caring thoughts and prayers.  You have come to just the right place.  Here you will find absolutely supportive people who understand exactly what you and your mom are going through (where dialysis is concerned, of course.  The other things are overwhelming!).  Continue to post and let us know how she is doing.  Let her know that there is a whole group of people from all over the world who are rooting for her. :grouphug;



Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
Lulu
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« Reply #19 on: September 25, 2007, 04:31:36 PM »

Welcome ODAT, I am sorry that you and your Mom have lost so many dearly beloved. You Mom sounds very tough. I am sure you are too. Please lean on us, we are here for you.
Sending hugs  to you and your Mom  :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;

Lulu
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angellady07
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« Reply #20 on: September 26, 2007, 06:18:38 PM »

Kim welcome. My thoughts are with you and your mother. Please come here whenever you need advice, comfort and someone to listen. This board is amazing.Please remember to take care of yourself as you are looking after your mother. Blessings to you.
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keefer51
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« Reply #21 on: September 27, 2007, 12:10:52 PM »

 :welcomesign; Kim. My prayers are with you and your family.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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« Reply #22 on: September 29, 2007, 09:31:15 PM »

 :welcomesign; Kim
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« Reply #23 on: September 30, 2007, 01:38:24 AM »

 :waving; Hi Kim-
Your mom is lucky to have you!
Welcome to IHD!


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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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Dogs & IHDer's are always glad to see you!

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« Reply #24 on: September 30, 2007, 05:32:37 PM »

Wow! Your mother and your entire family have been through so much.   :cuddle; Welcome!
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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