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Author Topic: YUP . . . ANOTHER NEWBIE  (Read 8014 times)
MyRenalRomance
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« on: September 18, 2007, 10:07:38 AM »
Hi everyone!  :waving;
My name is Charlene and I'm 46 years old.  I've been dealing with scleroderma and hypertension for the last 20 years.  Now, along comes kidney dialysis.  I'm pretty ok about the dialysis situation - I mean, it could be worse, right?  I truly believe in focusing on the posiitive - I have one life to live, and I plan on making the best of it!

I'm about to switch from hemodialysis to peritoneal dialysis (possibly next month. I'm a little nervous)  The reason I'm switching is because I'm 5'3" 95 lbs.  My veins are just too small for a good hemo access.  I have an appointment next week with a surgeon to discuss the peritoneal access

I had a vascular fistula (3/30), an angioplasty (6/25), and then a revised fistula (7/9).  My veins just won't cooperate.  :banghead;

I've been using my original tesio catheter in my chest since May 4th. 
I haven't minded going to hemo 3 days a week (gives me 4 days off!).  The staff at Fresensuis is awesome . . . so nice, humorous, and really friendly.  But, I do come home completely wiped out.

So, that's my situation in a nutshell.  I'm really looking forward to chatting with others, here.  You all seem really very nice.

If you happen to be on peritoneal dialysis, I'd especially LOVE to hear from you.  I've gotten so use to the hemo, I'm just a little nervous about switching to perinoneal, like I mentioned.

FYI:  My username is MyRenalRomance (an homage to My Chemical Romance + I liked the alliteration.
I am not affiliated with RenalRomance.com.  I'm hoping to change my username (if possible) to avoid any confusion. (If I can switch, I'll re-introduce myself) I did not see their ad when I signed up!

Just for fun . . . some of my interests:
reading, going to concerts, keeping up with my teens and their activities.  My 17 year old plays HS Varsity volleyball, and my 13 year old just joined a rock band.  My hubby is super supportive, and since I'm tired ALOT, we watch a lot of dvd movies at home.

Thanks for listening   :thx;
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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
Hawkeye
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« Reply #1 on: September 18, 2007, 10:26:16 AM »
Hello and  :welcomesign;
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It's not easy being green.
Laurie
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May 13, 2008
« Reply #2 on: September 18, 2007, 10:31:37 AM »
:welcomesign; You have such a positive attitude, which is great. Glad you found this site.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
MyssAnne
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« Reply #3 on: September 18, 2007, 10:42:27 AM »
Hi!!! I am 46 too!!! I am on PD, I heartily recommond the cycler, so much!!!! You'd start out on the manual, which is fine, but as soon as, grab the cycler!!!  I love it. I feel so much better, so much in control of my life. There is the problem with infections at the site, but they'll give you hints, and we will too!!! Oh, and you may gain weight....ick. But, once it's working as it should, it is such a wonder!!!
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paris
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« Reply #4 on: September 18, 2007, 10:43:30 AM »
 :welcomesign;  Your positive attitude is infectious!!!   Glad you found us!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
angela515
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i am awesome.
« Reply #5 on: September 18, 2007, 12:05:42 PM »
 :welcomesign;

I love your positive attitude... that will help you in the long run. :)

There is a lot of posts on PD and the good and bad and everything of it. Please take a few to look around and you will learn a lot!

Enjoy!
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Romona
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« Reply #6 on: September 18, 2007, 02:29:57 PM »
 :welcomesign;
Like everyone else, I love your attitude. Nice to meet you!
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Sluff
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« Reply #7 on: September 18, 2007, 03:02:25 PM »
Welcome to IHD.

That was a very nice introduction. I hope you gain lots of knowledge from the members here and I'm looking forward to your input as well.
Post all you want and enjoy your stay.

See ya in the forums.

Sluff/ Admin
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boxman55
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« Reply #8 on: September 18, 2007, 03:24:02 PM »
Welcome to IHD....Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Redbomb
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« Reply #9 on: September 18, 2007, 03:51:13 PM »
 :welcomesign;  Glad you found us!
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Razman
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« Reply #10 on: September 18, 2007, 04:44:19 PM »
Thanks for the great introduction and welcome aboard.   :canadaflag;
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kitkatz
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« Reply #11 on: September 18, 2007, 07:27:36 PM »
Welcome to IHD.com. There is alot of information here for you to learn about PD and more information on hemo.



kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
donnia
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me and my donor Joyce
« Reply #12 on: September 18, 2007, 08:28:37 PM »
 :welcomesign;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Joe Paul
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« Reply #13 on: September 18, 2007, 11:58:09 PM »
Welcome Charlene, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
angellady07
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« Reply #14 on: September 19, 2007, 03:38:43 AM »
Welcome Charlene. :)
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #15 on: September 19, 2007, 06:53:38 AM »
Welcome to our community. So glad you found us.  You will enjoy it here.  There is the serious stuff - good information about everything to do with renal failure.  But there is also the fun stuff - like the arcade.  And there is the crazy stuff - you are sure to find that without me telling you!
This site has become a real family to many of us.  Just take advantage of all it has to offer.
I am on Hemo - the only option in my Caribbean country, but there are lots of PD and there is a section which deals with it.   Keep posting and let us know what is going on with you. :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #16 on: September 19, 2007, 08:53:06 AM »
Welcome to IHD.  You will love the freedom that PD it gives you when you use a night-time cycler. There are lots of  posts which cover PD from the initial catheter surgery to all the day to day routine of PD dialysis in general. I do hope PD works for you. If there's anything you can't find the answer to just ask as there are a quite a number of us here who do PD. and could probably answer most questions :grouphug;
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Ken
babi68
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« Reply #17 on: September 19, 2007, 04:59:30 PM »
 :welcomesign; Love your name. My Chemical Romance is one of my fav groups. I am seeing them in December. :yahoo; Anyways, great group of people here and sure you will love the site.  :ausflag; :waving; Liz
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Lulu
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« Reply #18 on: September 19, 2007, 08:28:00 PM »
I like your name too. I think we are all smart enough to know you are not the dating site  :lol;. I am going to be going on PD too. I am sorry about your veins, maybe PD will work a lot better for you. You will learn a lot here. Welcome to the club!!! :welcomesign; :welcomesign;

Lulu
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Romona
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« Reply #19 on: September 19, 2007, 09:58:32 PM »
My daughter introduced me to My Chemical Romance, and I introduced her to The Clash! I read your About me post!
 :welcomesign;
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keefer51
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« Reply #20 on: September 20, 2007, 03:48:19 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Zach
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"Still crazy after all these years."
« Reply #21 on: September 20, 2007, 03:50:30 AM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #22 on: September 20, 2007, 04:55:26 AM »
 :welcomesign;

Great to see you here

Hope to see you around the forums !

Take Care

Tamara xxx ooo
Logged
ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
MyRenalRomance
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« Reply #23 on: September 20, 2007, 12:38:10 PM »
Quote from: babi68 on September 19, 2007, 04:59:30 PM
:welcomesign; Love your name. My Chemical Romance is one of my fav groups. I am seeing them in December. :yahoo; Anyways, great group of people here and sure you will love the site.  :ausflag; :waving; Liz

Thank you.  MCR is one of my favorites, too.  Saw them twice this year.  March '07 w/ Rise Against
and July '07 at Projekt Revolution.  They were fantastic!  Hope you enjoy YOUR show!!!
Logged
Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
MyRenalRomance
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« Reply #24 on: September 20, 2007, 12:42:47 PM »
Quote from: Romona on September 19, 2007, 09:58:32 PM
My daughter introduced me to My Chemical Romance, and I introduced her to The Clash! I read your About me post!
 :welcomesign;

My daughter introduced me to MCR, too back when the Helena video was first out.  I LOVE the Clash.  They're one of my favorite bands along with: (MCR)

AFI
The Cure
The Clash
Linkin Park
Lostprophets
Kill Hannah
Foo Fighters
Smashing Pumpkins
I could keep on going, but you get the gist . . . !
« Last Edit: September 20, 2007, 12:48:00 PM by MyRenalRomance » Logged
Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
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