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Author Topic: Donor Story  (Read 4105 times)
Rimbo71
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« on: September 12, 2007, 03:48:44 PM »

I would like to start off by saying hi to everyone.  My brother Mark, Rimbo74, has told me a lot about this site and how much it has meant to him.  I appreciate everyone that was able to provide him advice and support through this journey.

I wanted to share with anyone interested what a positive experience the kidney donation was for me.  My brother is my best friend, so deciding to donate the kidney was a no brainer.  It never really crossed my mind if I should or shouldn't.  With that being said, I will go right into the story of the day before the surgery (7/30/07) to the present.

As I am sure anyone who has had surgery before knows, the day before surgery is nice and full of anxiety and anticipation.  I had my doctor prescribe Xanax so that I could actually get some sleep the night before.  We arrived at Baylor bright and earlier on the 31st, 5 am, and were quickly being moved into pre-op and on into surgery.  My nurses and Anesthesiologist were more than nice and made sure I was comfortable.  When I came to in post-op I was pleasantly surprised that I wasn't in tremendous pain.  My only real issue was nausea due to the anesthesia, but that was quickly solved.  I was told the operation took approximately 3.5 hours.  The doctors took my left kidney laparoscopically.  The only slow down was due to a little extra fat around my liver and kidney.  Guess I need to eat better!  The afternoon of the surgery I was put in a normal hospital room.  The pain meds were more than sufficient at keeping me comfortable that evening and through the night.  I wasn't a big fan of the catheter, but I'm not sure anyone is.  The next morning they removed my catheter and wanted me to urinate on my own and encouraged me to walk if I could.  When I stood up for the first time was when I felt pain for the first time.  It was a sharp, burning pain that put me right back down on my butt.  Once I felt the pain though, I quickly expected it and it wasn't that bad.  Actually I only felt the pain when I transitioned from sitting to standing or vice versa.  Within a couple of hours, I was able to walk for short distances.  They let me go visit my brother for the first time which was cool.  I did have to take a wheelchair up to see him, but got out and walked into his room (a little showing off).  That afternoon the doctors told me I could go home if I felt up for it and I was ready to go.  I did have one other pain I want to mention cause I think both donors and recipients most likely have this pain.  Both Mark and I got an intense pain in our shoulders supposedly from the gas they put into your abdominal cavity during surgery.  It is not constant, but it is intense.  It passed for us within 2 - 3 days.  The pain quickly resided and was gone for the most part in about a week.  I experienced fatigue for about a week and a half, but it wasn't anything a nap or two couldn't solve.  My five incisions were all glued together, so I never had to worry about changing bandages (NICE!).  I returned to work three weeks after the surgery.  If I wanted, it could have been two weeks, but I wanted a little R&R at the pool before making my return.  I have a little nerve damage that is represented as slight numbness around my waistline.  It is fading and is barely noticeable anymore.  For males, swelling might settle in undesirable areas making them a little sore, but that passed quickly too.

I hope this story helps someone who may be considering donation.  Knowing what I know now, I would do it again without a second thought.

Please let me know if I can provide any additional information to anyone.  I will do my best to try to check this site.  If you don't get a response from me, please hit up Rimbo74 and have him give me a heads up.

I wish everyone the very best!

Paul
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: September 12, 2007, 04:05:38 PM »

You did a wonderful thing for your brother and he's lucky to have you!
Thank you for sharing your story with us!  :cuddle;
 :bandance; LIVING DONORS ROCK!  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #2 on: September 12, 2007, 04:08:44 PM »

Great story and very nice to meet you,Paul.   You are a true hero to all of us.  What an amazing thing you did for your brother!  Hopefully telling your story will help others consider donating.   :thx;  
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Laurie
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May 13, 2008

« Reply #3 on: September 12, 2007, 05:11:26 PM »

Mark is really lucky to have you as his brother. You did an amazing thing.
Thanks for sharing your story  :grouphug;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Sluff
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« Reply #4 on: September 12, 2007, 05:30:31 PM »

You are a great Brother. Thanks for your generous gift of life for our buddy Rimbo74.  :beer1; :beer1; :beer1; ::)
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Jill D.
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« Reply #5 on: September 12, 2007, 06:54:55 PM »

You're awesome!!!!  :clap; :2thumbsup; :clap; :2thumbsup;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
goofynina
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He is the love of my life......

« Reply #6 on: September 12, 2007, 07:25:52 PM »

 :bow; :bow; :bow;  Paul, you are a true hero, not only to Mark (Rimbo74) but to all of us as well.  Thank you so much for joining our site and sharing your side of the story.  :2thumbsup;  I hope it will inspire others to donate to their ailing family, friends or even a stranger as well.  God Bless you Paul, you do ROCK my friend  :clap;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Romona
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« Reply #7 on: September 12, 2007, 07:33:22 PM »

 :thx;
Such a wonderful story. You are a hero! :2thumbsup;
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angela515
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i am awesome.

« Reply #8 on: September 12, 2007, 08:29:29 PM »

You are a hero, and I hope your story inspires others because living donors are awesome, and true heros in the world.  :yahoo;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Lulu
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« Reply #9 on: September 12, 2007, 09:01:47 PM »

Thanks for the details, it was super informative. You kick *ss!!! What a great guy you are. Your brother is a lucky guy.
 :2thumbsup; :2thumbsup; :beer1; :beer1;
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rimbo74
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My older brother and me (I'm on the right)

« Reply #10 on: September 13, 2007, 07:05:58 AM »

You need to go to the Introduce Yourself section big brother and introduce yourself.  We all know now you are my older brother but its standard for the site.  Like talk about how you are a ladies man, where you live, blah blah blah (which means anything else).  See u this weekend!


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1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
goofynina
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He is the love of my life......

« Reply #11 on: September 13, 2007, 10:56:18 AM »

You need to go to the Introduce Yourself section big brother and introduce yourself.  We all know now you are my older brother but its standard for the site.  Like talk about how you are a ladies man, where you live, blah blah blah (which means anything else).  See u this weekend!

Hmmmmm, Hey, we should tell Amanda, maybe she will heal quicker and get herself back online ;) ;)   Man i miss that girl  *Come on Amanda and GET WELL SOON my friend, we miss you*   :secret;  and look who we have in the hizzouse.....  The Rimbo Brothers   :bandance; :bandance;  ;) ;)
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
rimbo74
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My older brother and me (I'm on the right)

« Reply #12 on: September 13, 2007, 07:47:15 PM »

I saw her online the other day and she seemed to be in decent spirits but now I'm starting to get worried because I haven't seen her online in a couple of days.

But the Rimbo brothers are in the house!!  :2thumbsup;

 :rofl;
« Last Edit: September 13, 2007, 08:01:56 PM by rimbo74 » Logged

1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
Romona
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« Reply #13 on: September 14, 2007, 07:00:58 PM »

I met a set of twins today. Older gentlemen. One twin had donated a kidney to the other. That was 45 years ago. The kidney lasted 40 years. I thought of the Rimbo brothers. The love those guys have for each other was so great. I am sure you and your brother are the same way.  :)
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rimbo74
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My older brother and me (I'm on the right)

« Reply #14 on: March 24, 2008, 03:00:35 PM »

bump for Devon
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1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
willieandwinnie
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« Reply #15 on: March 24, 2008, 03:18:06 PM »

God, you two are gorgeous.  :-*
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"I know there's nothing to it, but I want to know what it is there's nothing to"
rimbo74
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My older brother and me (I'm on the right)

« Reply #16 on: March 24, 2008, 09:28:07 PM »

 :shy;

Thank u, that's very kind.  My brother is on the left, I'm the one on right.  People say were look like twins but he is 2 1/2 yrs older.
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1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
donnia
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me and my donor Joyce

« Reply #17 on: March 25, 2008, 08:12:36 AM »

Great thing that you did for your brother Paul.  We all wish there were more of you out there in the world.   :grouphug;     

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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #18 on: March 25, 2008, 11:11:50 AM »

You guys are awesome! I hope the kidney lasts forever!  :cuddle;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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