Amanda got the call.. The day before my wedding

[Romona]

Very Nice Amanda! You are a doll!

[Falkenbach]

Hi Amanda - which one are you, the one on the right? You all look great. I am still looking lousy 7.5 months post-transplant, you make me jealous! But I'm still super happy for you. Hope I can look even half that good when I am matron of honour at my sister's wedding in August.

[Amanda From OZ]

Thanks for the nice comments.

Yes louise, im the one on the right. After a transplant i dont thnk any of us feel that great, but i think it helped that they lowered my drugs so fast.

Louise im sure you will look beautiufl at your sisters wedding. Thats somet.hing to look forward to!

This is what im on at the moment.

prednisone - 5 mg
cellcept - 750
ganciclovir - (spelling) 900mg
Pariet - 20mg

[Falkenbach]

Wow, so few drugs, that's fantastic! Great news.

My prednisolone just got pushed from 9 mg back up to 15 last week, and the Cellcept reduced as I got sick with a virus, and they're looking into the why's and what for's.  Prednisolone sucks.

[angela515]

Thanks for the nice comments.

Yes louise, im the one on the right. After a transplant i dont thnk any of us feel that great, but i think it helped that they lowered my drugs so fast.

Louise im sure you will look beautiufl at your sisters wedding. Thats somet.hing to look forward to!

This is what im on at the moment.

prednisone - 5 mg
cellcept - 750
ganciclovir - (spelling) 900mg
Pariet - 20mg

You like fantastic and I only wish I could of been on 5mg of prednisone for all the years I was on it, I would still have my face like you do!!

I have heard of the cellcept also, was on it my first transplant, but the other 2 I have never heard of, what are they?

I am on:

Prograf: 2.5mg/twice a day
Rapamune: 3mg/once a day

Those are my immunosupressives.

[Amanda From OZ]

hey angela. 

Gancicglovir is for the cmv and

pariet is an anti acid, my stomach seems to burn all the time but i think it must be drug related...

[Falkenbach]

It probably is drug related. My doctors put me on Somac as a preventative measure against stomach acid/ulcers, because they tell me the immuno suppressants can cause this.

And I think the CMV drug is Valgancyclovir (there is also one called just called Vancyclovir, I think, but I don't know what the difference is). I was on Valgancyclovir for some time as CMV was showing in my bloods, although I was asymptomatic.

[KT0930]

Yep, the burning is medication related. My first transplant, I had to take Maalox every time I took meds (ick!!), then with the last one and this one they switched to Prilosec, thank goodness. Though as I recall, last time the Prilosec didn't work and I had to change to Nexium.

[poohkari]

amanda, youre gorgeous!!!

got any single friends??

[paddbear0000]

Hmm. Somehow I lost track of this thread a long time ago. Amanda, you look fantastic! I hope I look a quarter as good as you do after my transplant!   

[Falkenbach]

I wished I looked a quarter good as that now! 

Damn medicines.

[RichardMEL]

ahem (cough). I believe I have first dibs on any nice single female friends of Amanda's

For one I think I'm closer!!

[Amanda From OZ]

Hey Everyone,

This is a long overdue update… well where do I start. …. I’ve been online still to check up on everyone, but have mentally found it hard to be online here and posting. (For many reasons.). 

On a health front, I feel great (touch wood). I am physically at the best health I have been at in a long time. I am still going to the gym and training 5 days a week, and since about 2 months out of the transplant, I have been on a very strict diet, which mainly consist of fresh fruits and vegetables, and some good forms of protein and carbs.

My kidney function is setting around the 80’s (not to sure about the U.S conversion on that) and my other problem is still sound asleep and not causing any dramas.

Since my transplant everyone I know has commented on how different I am, to start off with I hate most things I use to like on dialysis in regards to foods and drinks. I now LOVE coffee and also veggies, which I hated before, and my general thinking has changed. I appreciate everything for what it is, and have learnt to appreciate life to the fullest, and just to deal with things one step at a time.

I hope all is well with everyone, and I am slowly catching up on reading once again.

I have attached the most recent photo which was taken at about 7 and half  months post transplant

Love to you all.

Amanda
 xxoo

[kidney4traci]

Beautiful picture, thanks for the update.  I trust you feel ok, but sorry for the felling you don't want to post.  It is encouraging to see someone who looks great post transplant.  Gives me hope for how it will be for me someday too.  Be well, continue with your diet, it sounds like the one my husband offers to pts at our office.  Everyone I know feels great on it.

[paris]

Amanda, lovely picture.   I, personally, miss your posts.  Your family has more experience with transplants and kidney disease than any family I have read about.   It is hard to come here and not read Susie's posts.  I told a member recently, that it would be easier to walk away from IHD than continue to lose people I learn to love.  It is hard to worry about so many when there is really nothing you can do to make a difference in their lives.    We all had so much fun reading about Rose's wedding and all the pre-events.  And then your transplant --what a wonderful week that was for your family.  We all love you here.  The men LOVE just looking at you! (RichardMel, I am not naming names!)  and the women want to be you     We will be here, Amanda, whenever you do post.   In the meantime, enjoy life.  Keep looking forward and keep the positive attitude.  How are the plans for the America trip going?   So, I guess I am just telling you to enjoy living--we are all very happy that you are doing well and we love you

[paddbear0000]

Amanda, you look fantastic! We miss you! 

[monrein]

Continued good health Amanda.  Enjoy every minute and wring every last drop out of life.  Transplants rock.

[Psim]

Yay Amanda!

[tamara]

Must be something in the water in Oz. My creatinine hangs out in the 80's too, I think that is also influenced by the decade of music I love too !

Love Ya

Keep on Keepin on ,

Tamara xxx ooo

      

[okarol]

  Hey Manda May,

I miss you in chat but not all the hours you sat on hemo typing with one hand. I am happy you're feeling good and busy living! 

  Love you sweet girl!

[Bajanne]

It was simply great hearing from you again after the silence.  But please know that we are still family and that will not change.  Post when you can and always let us know how you are doing.  Lots of love to you. 

[Falkenbach]

I appreciate everything for what it is, and have learnt to appreciate life to the fullest, and just to deal with things one step at a time.

Hi Amanda

Glad to hear this. I generally feel this way most of the time too, even before my transplant - but more so after (I certainly stood on a few toes here by discussing it, so I'm glad to know I'm not the only one). I hope the issues that have kept you from posting are manageable and that you are all-round doing as well as you look and sound! Great to hear from you again.

[jbeany]

Amanda,
  Darling girl, what we all want for you is to have a busy, happy life that leaves you little time to think about the strugles you've had with dialysis!  We miss talking to you, but we are thrilled for you that you are now "tether-free" from the machine.  Be happy and know that we love you!

 

[angela515]

We miss you... but we understand and were here for you whenever you do post. 

Love ya..

Angela

[RichardMEL]

I need some of your water Tamara... but not much unfortunately.... my creat is 1053