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momoftwo
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« on: August 30, 2007, 09:05:26 AM »
I am a 32 year old female who lives in Phoenix Arizona.  I have two children and recently married a man after almost 4 years.  I knew I had Polycystic kidney disease when I was 21 and had high blood pressure, but cannot remember exactly when I was diagnosed.  My function is currently 55 percent. 
My mom was on dialysis for four years and is now 5 months post transplant.  She is 56 years old.
I am interested in a support group that is positive, but real.  So many times I find that the reality of a kidney disease are not really talked about.  I hope I find that here.

Jenny
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MyssAnne
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« Reply #1 on: August 30, 2007, 09:08:03 AM »
I hope you find what you're looking for, Momoftwo!  We have a wonderful group here, you'll get your questions answered
a lot more honestly than from the medical profession, and sometimes more completely as well.  How's your mom doing so
far post transplant?  Did your neph give you any suggestions for slowing down the process?  Oh, and welcome!! :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #2 on: August 30, 2007, 09:09:39 AM »
Welcome to our community, Jenny!  You will find that this is just the place to be when facing the challenge you have.  There is much information here, as you probably saw already, but not just that.  This site has developed into a real caring and sharing family.  It is a place to vent and rage when you need to.   You are sure that you are understood.   Please take advantage of all this site has to offer.  
Here is a group hug from all of us.   :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: August 30, 2007, 09:12:46 AM »
 :waving; Hi Jenny,
Glad you found this site - there are lots of great people, and lots of good info and support too.
My dad had PKD, my sisters and brother do too. So far they've been able to keep their kidney function and do a good job of controlling their blood pressure.  Did your mom have a living donor? Best of luck to you and your family!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #4 on: August 30, 2007, 09:17:32 AM »
 :welcomesign;
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goofynina
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He is the love of my life......
« Reply #5 on: August 30, 2007, 10:34:33 AM »
Hi Jenny, Welcome to ihatedialysis.com.  Looking for support? honesty? and a bunch of crazy but kind people?  Well, look no further my friend, you have found just the place.  Congrats to your mom on her transplant, please invite her here as well, we'd love to hear all about her transplant and her journey there and how she is recovering.  Hang in there my friend and keep the faith,  Please do not hesitate to ask questions post comments and/or concerns of your own :2thumbsup;  Most importantly, remember, you are not alone, we are here for you and yes, you better believe we are as REAL as REAL can be  :clap;   Looking forward to hearing from you... :grouphug;



Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Sluff
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« Reply #6 on: August 30, 2007, 10:38:43 AM »
Welcome to your second family Jen...

We are glad you found us, there is more information here that the library when it comes to kidneys and dialysis.

Lots of great advise and mostly positive. There is always a negative amongst positives but we try and get through them as best we can.

You seem upbeat and I hope you find what your looking for here. Remember we are always here for you.

Sluff/ Admin
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angela515
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i am awesome.
« Reply #7 on: August 30, 2007, 10:39:46 AM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
paris
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« Reply #8 on: August 30, 2007, 12:09:48 PM »
 :welcomesign;   You will definately find honesty and reality on this site.  Everyone is pretty good at telling it like it really is!  This is a great group and I hope you enjoy getting to know us.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Hawkeye
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« Reply #9 on: August 30, 2007, 01:49:11 PM »
Hello and  :welcomesign;
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It's not easy being green.
Laurie
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May 13, 2008
« Reply #10 on: August 30, 2007, 01:51:05 PM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
bolta72
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my best friend
« Reply #11 on: August 30, 2007, 01:54:04 PM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Ohio Buckeye
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« Reply #12 on: August 30, 2007, 02:07:13 PM »
Welcome Jenny to the ID Family!
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If I must do this to live, I must strive to live
while I am doing this.
Joe Paul
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« Reply #13 on: August 30, 2007, 03:32:57 PM »
Welcome Jenny, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kitkatz
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« Reply #14 on: August 30, 2007, 07:51:17 PM »
Well if you want real things about dialysis, you have come to the right place.   There is very little sugar coating on what is said here about dialysis. Take a look around and join right in.




kitkatz,moderator
« Last Edit: September 02, 2007, 05:45:42 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
keefer51
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« Reply #15 on: September 03, 2007, 01:41:22 AM »
 :welcomesign; Jenny.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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