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Author Topic: Redbomb here -- my Introduction  (Read 4116 times)
Redbomb
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« on: August 29, 2007, 04:52:14 PM »
I'm so glad that I found this board and thanks to Goofynina I now have an account!  :D

I live in Lincoln Nebraska (Go BIG RED) am a Male and 52 years old.  I was first diagnosed with Kidney failure about 3 years ago.  At that time the Dr. said that I'd probably be on Dialysis in about a year.  At that time I also had my fistula created.

Last month the Dr. said, "Well, it is now time for you to start Dialysis" and suggested that I opt for the Home-Hemo and he approved it even though I live alone and won't have anyone around. 

Last week I went in for my training and they tried to access my fistula.  no Luck.  Went in later that afternoon for a fistulagram (sp?) and they had to balloon about three areas.  The next day they tried to access my fistula again and again no luck (now I have this great big purple bruise on my upper arm).  So, on Thursday I went into the Hospital and they put in a perma-cath.  :( .  Had my first dialysis treatment in the hospital that afternoon and my second one on Friday morning.   I had MAJOR cramps around hour-3 of that treatment.  I can tell you that when i was off that machine I was ready to rip out my perma-cath and never go back for Dialysis again.

However, better reasoning grabbed me by the ears and I've had two treatments this week and no cramps *whew*.  :)

Hopefully my Fistula will settle down and when they do the fistulagram in two weeks we can start using that and I can go back to my training for home-hemo (I love the NxStage Machine already!) and I can get rid of this darn permacath!

Look forward to talking/posting/chatting with all of you!

Redbomb
« Last Edit: August 29, 2007, 04:55:28 PM by Redbomb » Logged
del
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« Reply #1 on: August 29, 2007, 04:56:11 PM »
 :welcomesign;  Hubby has been on dialysis for 10 years - pd, in center and nocturnal home hemo.  Things do get better. Takes a while to get your dry weight and for your body to get used to dialysis.
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Zach
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« Reply #2 on: August 29, 2007, 04:59:52 PM »
It's real good to have you here.
 :beer1;


PS:  Make sure you're exercising that fistula.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
goofynina
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He is the love of my life......
« Reply #3 on: August 29, 2007, 05:06:56 PM »
Well well well Redbomb, Welcome to Ihatedialysis.com, glad to see you made it (finally) ;)  Excellent introduction my friend.  Sorry to hear all the trouble you had with your fistula and i hope they get that up and working again soon.  Having a perm-cath is a pain in every sense of the word, i am sure we can all vouch for that, but hopefully soon you will be doing home hemo and feeling great again  :2thumbsup;  Did they happen to discuss PD with you as well?  That is also another option you may consider if Home Hemo doesnt work out for you.   :thumbup;  Well, as i have said before, i look forward to hearing more from you and do not hesitate to post any questions, comments and/or concerns of your own, and if there is something in particular you are looking for, do not hesitate to ask, we will be more than happy to help you find whatever it is you need.  Thanks for becoming a member  :beer1;



Goofynina/Admin.
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Redbomb
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« Reply #4 on: August 29, 2007, 05:12:41 PM »
Quote from: goofynina on August 29, 2007, 05:06:56 PM
 Did they happen to discuss PD with you as well?  That is also another option you may consider if Home Hemo doesnt work out for you.


Goofynina/Admin.

My current weight won't allow me to do PD according to the Dr.  That is also why I'm currently not transplant eligible.  I'm trying to loose weight, but It's HARD!  Hopefully I'll get my weight down within a couple of years so I can go on the Transplant list. *crosses fingers*
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okarol
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« Reply #5 on: August 29, 2007, 05:33:48 PM »
 :waving; Hi Redbomb --
Welcome to IHD - I hope the fistula situation can be resolved and that you can get back to your training.

 :welcomesign;


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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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Laurie
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« Reply #6 on: August 29, 2007, 05:45:40 PM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Romona
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« Reply #7 on: August 29, 2007, 06:01:16 PM »
 :welcomesign;
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goofynina
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« Reply #8 on: August 29, 2007, 06:12:21 PM »
Quote from: Redbomb on August 29, 2007, 05:12:41 PM
Quote from: goofynina on August 29, 2007, 05:06:56 PM
 Did they happen to discuss PD with you as well?  That is also another option you may consider if Home Hemo doesnt work out for you.


Goofynina/Admin.

My current weight won't allow me to do PD according to the Dr.  That is also why I'm currently not transplant eligible.  I'm trying to loose weight, but It's HARD!  Hopefully I'll get my weight down within a couple of years so I can go on the Transplant list. *crosses fingers*

Sorry for taking this off topic folks but WTF??  Why are these docs telling these patients that due to their "size" or "weight" PD is not an option, I am a large woman and i dont have any problems with it, if you are truly interested in doing PD, i would demand to speak to the surgeon himself, my doc had told me no but he scheduled me an appt. with the surgeon anyway and thank God he did, the surgeon  said of course it would work, we will make it work and so far so good,  just letting you know that size doesnt matter in some cases.   OK, sorry, had to get that off my chest for the umpteenth time  :rant;   We can resume to welcoming RedBomb to our awesome site ;)
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
lola
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« Reply #9 on: August 29, 2007, 06:56:18 PM »
 :welcomesign;
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kitkatz
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« Reply #10 on: August 29, 2007, 09:10:32 PM »
Welcome to the site. I am sorry about all of the hassle with the first dialysis treatment. It can a real pain.  Keep on coming back. We have lots of information here.




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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angela515
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« Reply #11 on: August 29, 2007, 09:19:32 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Joe Paul
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« Reply #12 on: August 30, 2007, 12:09:46 AM »
Welcome Redbomb, good to have you aboard.
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Bajanne
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« Reply #13 on: August 30, 2007, 03:36:10 AM »
Welcome to our community.  I am so glad that you found us.  YOu are going to find that this site is one of your tools in handling this experience of renal failure and dialysis.  No only is there information here, but this is also a place to vent when you need to.  You can be assured that someone here has gone through exactly what you are going through.  This site has become a caring and sharing family, and that is not hype, it is reality.  That is why we like you to let us know exactly what is going on with you.  The positive vibes from this group is nothing short of amazing.
So READ, READ, READ  and POST, POST, POST!


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MyssAnne
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« Reply #14 on: August 30, 2007, 04:30:51 AM »
Welcome, Redbomb!  you're gonna find it's a lot of fun here!   Glad to have you! :welcomesign;
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Sluff
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« Reply #15 on: August 30, 2007, 07:54:33 AM »
Welcome to IHD Redbomb.

Hope you enjoy your time here at IHD, we look forward to your input. Sorry to hear about your fistula problems.

Sluff/ Admin
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Hawkeye
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« Reply #16 on: August 30, 2007, 07:56:28 AM »
Hello and  :welcomesign;
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Ohio Buckeye
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« Reply #17 on: August 30, 2007, 02:03:51 PM »
hi Redomb

 :welcomesign; to the IHD Family!
Sorry things got off to a bad start.  Hope things settle down and you
can get back to training.
You'll find lots of helpful info here and lots of support.
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keefer51
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« Reply #18 on: September 03, 2007, 01:45:32 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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« Reply #19 on: September 06, 2007, 08:53:19 PM »
 :welcomesign;
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