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Dialysis Discussion
Dialysis: Home Dialysis - NxStage Users
new Nxstage user needs advice
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Topic: new Nxstage user needs advice (Read 3095 times)
stefi
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new Nxstage user needs advice
«
on:
August 23, 2007, 02:48:28 PM »
Hi. I will start training on Monday on this unit. I am very excited
but I understand training takes 2.5 weeks. I am leaving on a trip in about 3 weeks. I do not want any setbacks, so does anyone have any tips, tricks, advice, etc that might ensure the training goes smoothly? Anything that you can tell me about the machine itself, the set-up, etc will be appreciated!
The person who is training before me is having problems and taking longer than expected...the clinic manager tried to push me back a week but I said no way!
Thank you very much
EDITED: Fixed smiley error - okarol/moderator
«
Last Edit: August 24, 2007, 12:27:07 AM by okarol
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Isa 53:5 But he was wounded for our transgressions, he was bruised for our iniquities; the chastisement of our peace was upon him; and with his stripes we are healed.
Adam_W
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Re: new Nxstage user needs advice
«
Reply #1 on:
August 23, 2007, 03:15:03 PM »
A big factor in training time is learning how to put your needles in. If you already know how to do that, it should take a little less time for training. As for the machine, it may seem overwhelming at first, but it won't let you make a mistake, and all the procedures are pretty straight forward and easy to learn. I hope your training goes well. You'll love the freedom NxStage gives you.
Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.
"Don't live for dialysis, use dialysis to LIVE"
stefi
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Re: new Nxstage user needs advice
«
Reply #2 on:
August 23, 2007, 03:53:12 PM »
Thank you for your encouragement.
I have a catheter and have been putting myself on for years.
I read Epoman's description of his training and then when he switched to pureflow. that was helpful
I just don't understand why it takes some people more than 2.5 weeks to learn if the machine is so user-friendly.
whatever
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Isa 53:5 But he was wounded for our transgressions, he was bruised for our iniquities; the chastisement of our peace was upon him; and with his stripes we are healed.
Adam_W
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Re: new Nxstage user needs advice
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Reply #3 on:
August 23, 2007, 03:56:48 PM »
If you have a catheter and already have self-care experience, than it shouldn't take you long at all.
Adam
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.
"Don't live for dialysis, use dialysis to LIVE"
silverhead
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Re: new Nxstage user needs advice
«
Reply #4 on:
August 23, 2007, 04:16:41 PM »
You should get a set of manuals for the Cycler and the Pureflow unit, and probably sets of abbreviated "manuals" for them both, take them home and both people go over the steps for set-up and running of the system enough times that you know where to look in them to overcome problems that present themselves, learn that "yellow" alarms are "cautions", not something to go into a panic over, just look up the code and act on what it tells you, red alarms are more serious, but learn not to panic, most all of them can be overcome easily, I was really anxious to get out of the training after 2 weeks, but settled for the extra half week to make everyone happy, you will love having it at home.......
Tom
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cev
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Re: new Nxstage user needs advice
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Reply #5 on:
August 24, 2007, 01:06:35 PM »
I would advise, do your training and then when you come back from vacation do a "referher for a few days". Going home after continued training is scary enough without a vacation in between. We have been doing NxStage at home 1 1/2 years and I still find after a break (1 week or more) it takes time to get back into the grove. Wishing you the best.
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jbeany
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Re: new Nxstage user needs advice
«
Reply #6 on:
August 28, 2007, 08:17:18 PM »
I did 3 weeks, but my training nurse had to be on the clinic floor for a number of days during my training, so there were times when we weren't actively learning anything. There is a check list that NxStage provides the training nurse, and you have to be first shown, then actually do, everything they cover before you are considered trained. Mostly, they want to make sure that you do everything repeatedly so that it becomes routine.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
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