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Author Topic: Transplant postponed - long  (Read 4271 times)
frankieb
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« on: August 22, 2007, 03:36:39 PM »

Hello All, 
               Sorry, I could have sworn I posted this update.    My transplant date of Aug.14 was postponed.  Let me tell you my last 30 days.  :rant;
On July 17 my Dr. calls me and tells me that my creatinine was 6.1 and she would like me to have a permacath put in and have a heart cath test(2stress tests inconclusive).  After the permacath was put in I did dialysis :banghead;(1st time in 16 years)  for two hours, and the next day three hours and the third consecutive day three hours(was supposed to be 3.5 hrs but I asked for a break, three days in a row,damn).  My creatinine pre-dialysis was 7.1.  Now comes my permacath nightmare.  After my first dialysis my permacath oozed for about 45 minutes, mind you I just had it put in hours ago(hurt like hell even after two shots of morphine), anyway dialysis call special procedures(who put the cath in) and they sent up a nurse.   She put a pressure dressing and then applied direct pressure, felt like she had a knee on my throat.   The pc didn't ooze as much the next day or the following but Friday evening the nurse noticed the pressure dressing soaked and changed it.     Yada, yada, yada,  3 A.M. Dr. pulls it.   I was both pissed and relieved.   Monday morning (7/23) I got an other permacath on my left side then I was discharged after dialysis.
Oh, I forgot the heart cath test,  I had it done because I could not reach my target heart rate during my stress tests(had 2 failed both, guess I didn't study enough), this test is the one that they go up the groin with a probe and see how your heart functioning.  Well, I finally passed a test.   Now I can get a transplant date, yahoo.    Aug. 14 was decided, thats when my sister posted on this board, she was so excited.  Our plans of bypassing dialysis came to an end but I'm OK.  I think all patients should experience dialysis at least once before a transplant that way the kidney will be cherished even more and probably taken better care of.     A week later Tues. July 31,   I awoke with severe shoulder pain, thought it was dislocated.   I had my pre-admission testing scheduled for 10:45 along with my sister but I told my her that I had to go to the ER first.     So at the ER, some orthopedic Dr. see me and they can't decide what to do.  My sister made the pre-admission appt. and brought our new transplant coordinator with her to meet me in the ER.    I would have to reschedule my pre-admission after they find out whats wrong with my arm.  Hours pass and I'm hating the ER, they tell me that I'm waiting to get an MRI of my right shoulder.    9 pm. comes around and I'm out of the ER with two prescriptions, 1 for pain med., and 1 for an MRI of rt. shoulder.   Next day I wake with my hand bloated, had the MRI at noon then dialysis at 3pm.   The nurses immediately said infection, and when the Dr. came around concured and ordered antibiotics(cipro&gentomycin).  Aug. 2, I had such pain in my hand that went to the ER, willingly.   I was admitted and they were talking; gout, infection, sudo gout. Sat. morning I had my hand flushed(8 stitches). Diagnosis, staff infection.  Let me end this, vancomycin is the antibiotic thats effective and 6 weeks is my sentence.     Dialysis is going uneventful and just got word that a new transplant date is set for 9/25, got that Don?  Lets try to stay healthy for the next month.  Well,  will post future updates.  Take care

ESRD DIAGNOSED 10/20/82                                                                                           Peace,    Frankie
Dialysis- 12/20/83-5/18/91
Kidney transplant  5/18/91-7/18/07
Dialysis- 7/18/07- to present
Kidney transplant date 9/25/07 from my Hero, Donna
Thank You God for my SISTER,  Love you Don
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FrankieB


ESRD DIAGNOSED 10/20/82                                                                                         
Dialysis- 12/20/83-5/18/91
Kidney transplant  5/18/91-7/18/07
Dialysis- 7/18/07- 9/24/07
Kidney transplant date 9/25/07 from my Hero, Donna
Thank You God for my SISTER,  Love you Don
Romona
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« Reply #1 on: August 22, 2007, 04:10:52 PM »

Wow! Don't know what to say. Quite an ordeal.
Keeping my fingers crossed that everything will go ok in September. :waving;
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okarol
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« Reply #2 on: August 22, 2007, 08:19:21 PM »

Hi frankie,
I am so sorry to hear of your challenges this past month. I hope you don't have to have any more reminders why you'll cherish that new kidney! Stay healthy - I am sending a storm of good wishes and a big HUG to you!

 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......

« Reply #3 on: August 23, 2007, 12:29:14 AM »

Frankie, i am sorry you had to go through all that but its better that it all happend now then something happening to that beautiful kidney your sister is going to give you.  Stay healthy and happy and please keep your faith,  good luck and please keep us updated.  :2thumbsup;
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....and i think to myself, what a wonderful world....

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KT0930
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« Reply #4 on: August 23, 2007, 05:21:31 AM »

Frankie, I'm so sorry to hear about your pain and problems. Things will get better, and you will get your sister's kidney, and all this will only make you take better care of it, like you said. Best of luck!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
lola
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I can fly!!!

« Reply #5 on: August 23, 2007, 06:28:08 AM »

Frankie so sorry to hear it's been rough these past few weeks, But I like the 9/25 date better it's my moms b-day and my mom ROCKS!!!!
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Donnab
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Donna & Frankie

« Reply #6 on: August 24, 2007, 12:46:56 PM »

WOW that was LONGGGGGGGGGGGGGG....almost as long as the wait in the ER.....(kidding)

You NEVER take the easy way Frank!

SEPTEMBER 25TH IT IS!!!!!!!......I am so ready to do this and watch you bounce back and do all the things you want to do

GOD BLESS YOU MY BROTHER!

Love you MORE!

and stop taking my lines....YOU are the hero here Frank

32 more days to go

Donna
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Donna DONOR to my brother/friend/hero Frankie on 9/25/07
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« Reply #7 on: August 24, 2007, 12:49:00 PM »

A new life in 32 days,  :bandance;
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Falkenbach
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« Reply #8 on: August 25, 2007, 03:20:13 AM »

I feel for you and your sister, Frankie, but I hope you keep your chin up. And I sure hope nothing else goes wrong before your next transplant date - I'm sure it won't! Keep on fighting

 :boxing;
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Roxy
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« Reply #9 on: September 12, 2007, 10:26:35 PM »

Hey Frankie, just wanted to see how everything's goin?  Is the transplant date still set for the 25th? Only a couple weeks away!!  :clap; Hope everything's going well and the transplant will happen soon!  :cuddle;
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Donnab
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Donna & Frankie

« Reply #10 on: September 18, 2007, 08:54:52 PM »

Hey Frank you know we are 1 Week away Bro :bandance;
Are you ready?
I sure am!
Love you MORE!
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Donna DONOR to my brother/friend/hero Frankie on 9/25/07
okarol
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« Reply #11 on: September 18, 2007, 10:39:11 PM »

 :yahoo; Wow!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Falkenbach
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« Reply #12 on: September 18, 2007, 11:41:07 PM »

Getting exciting!!  :yahoo;
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Donnab
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Donna & Frankie

« Reply #13 on: September 22, 2007, 12:22:45 PM »

1 more dialysis Frank and 3 days till transplant!  :bandance;

cant wait t start drinking the yummy golytely :beer1;

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Donna DONOR to my brother/friend/hero Frankie on 9/25/07
Romona
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« Reply #14 on: September 22, 2007, 01:33:15 PM »

Best wishes to both of you!
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MyssAnne
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« Reply #15 on: September 22, 2007, 03:23:23 PM »

Yay!!! Oh man, I'll praying and thinking of you guys, in THREE days!!!! Countdown, now!!!! :clap;
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charee
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« Reply #16 on: September 22, 2007, 04:55:18 PM »

good luck to both of you :clap;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Sluff
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« Reply #17 on: September 22, 2007, 04:58:01 PM »

Only 3 more days!!  :bandance; Good Luck!! keep us posted as time allows.  :grouphug;
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donnia
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me and my donor Joyce

« Reply #18 on: September 22, 2007, 10:14:03 PM »

2 more days and counting.  I am so excited for both of you.  Positive thoughts and prayers are with yall. :cuddle;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Wattle
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« Reply #19 on: September 23, 2007, 12:19:50 AM »




 :waving;  Good Luck Frankie and Donna    :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
goofynina
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He is the love of my life......

« Reply #20 on: September 23, 2007, 02:22:39 PM »

Ooooh, the time is almost here  :clap;  Sending good thoughts and prayers your way my friends  :2thumbsup;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
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