Anyone else just freakin' tired all the time?

[okarol]

     Awww Wattle, I am sorry you're feeling bad. It must be tough, wanting to do stuff with you kids and being so tired.
Hang in there my friend. Rest when you can and try to use the energy you have for good times. Love you 

[st789]

Even after kidney transplant, I feel better in term of energy but still some days....
Probably bc my scar liver is the reason.

[twirl]

I feel guilty about being tired all the time and everyone thinks because I go to dialysis I should be full of energy.
Now that I stay home, everyone thinks I should have plenty of energy.
It doesn't work that way.

[devon]

I am right there with ya Twirl and the rest of you!

And about the kids going to school at these ungodly hours! There's no sense in it.  You're right, they are not awake until 10 or 11 am. Asking them to perform at 7:30 is abuse.   I home school my kid and that's one of the reasons.

-Devon

[paddbear0000]

I feel for ya too! Just because I don't look sick and I'm not at the point of needing dialysis yet, people don't believe me when I say I'm tired all the time. It's annoying! My kidneys are only functioning at 20%, I still have some toxins building up. just because you can't see them, doesn't mean I feel spectaculor like you! I sleep about 12-14 hours a day! I hate it! 

[Jill D.]

Even after my transplant, I still have days when I am fatigued. My new kidney just can't put out enough hormones to get my body to produce enough red blood cells, so I get a shot of Aranesp once a month to bring my hemoglobin up. Of course, the fact that I am getting over a virus doesn't help...then of course there's the pms...!

[angela515]

When I have my labs done this Monday (tmr) I am going to be calling the doctor that day for the results because I am tired ALL the time. I do have a cold and the flu right now so that's making me more tired, but even well I still can sleep all day long. I don't know if it's because I cannot go anywhere andd am stuck in this house 24/7 or if it's my Anemia. I need to find out because at this rate, I don't see myself being able to work.

[Sunny]

Yes, I get tired easily. My nephrologist tells me that with my kidneys only fucntioning at 20% I should always remind myself I have about 20% of the energy of a normal person.
I keep telling myself that and try to limit myself accordingly, but sometimes it's so hard.

[kitkatz]

I miss being able to shop the mall all the way through.  Today I got halfway through it and the body just said quit.  I sat down and read my book and waited for my friend to finish her shopping. I have only been halfway through our small mall every time I have been there the past year. "Sigh"

[thegrammalady]

I miss being able to shop the mall all the way through.  Today I got halfway through it and the body just said quit.  I sat down and read my book and waited for my friend to finish her shopping. I have only been halfway through our small mall every time I have been there the past year. "Sigh"

next time try starting at the other end. you'll eventually meet yourself in the middle.

[kidney4traci]

We went to a water park and I climbed so many freakin stairs!  We went back again this morning and I was so wided.  I only did one slide and stopped.  Oh well, I had fun yesterday!  But it wore my *** out!!!!!

[NolaGail]

My family doesn't understand when I either sit on the couch or go lie down in the bed even when it is daylight.  I tell them I am tired and the responsee is "from what?"!!!!!  I count my blessings that I am still predialysis, but I only have 11-13% function.  Sometimes I want to say, "No, I am not really tired, just really really lazy!"    Sometimes I wish they knew how I felt, but then I don't really want them to have to live with this like I do.  Boy, do I sound pitiful. 

I should not complain because last summer a kidney infection sidelined me before it was diagnosed.  My creatinine was almost 7, and I walked around for several months either with a cane or on a walker.  I actualy broke down to go check on disability, but then I learned that I would have to be out of work for at least six months. Like I can afford that.  My creatine went back down to below 4, so I stop my complaining now.    for letting me gripe for a moment!

NolaGail

[Deanne]

I steam cleaned part of my carpeting Saturday morning and I spent the afternoon on the couch to recover. I really, really want a bookcase because I haven't been able to unpack my books since I moved in last October, so I managed to drag myself out to buy one late in the day. I didn't leave the couch until late yesterday afternoon again. I think that morning with the steam cleaner wiped me out for the whole weekend. The bookcase is still in the garage, waiting for me to sand, stain, and assemble it. Maybe next weekend.

[kidney4traci]

We had a fun weekend with the kids and on Saturday I ran all over the water park with the kids.  I like to play with them and act like I am  :sluff;free from kidney disease.  Then Sunday we went back, and
I walked up the 5 flights of stairs again and realized there was no way I could keep up a second day.  When we got home, I did dialysis and went to bed.  Again today, I took a nap during dialysis. 

[kidney4traci]

My post posted before I was done - hard to type one handed while we have dialysis!!!.... Again today, I took a nap during dialysis.  My husband does not seem to understand...  he can't understand why I sometimes feel great and other so tired.  I too feel lazy.  Or I say I don't feel well like I am ill.  But I am not ill, just tired!!!  Sick and tired of being tired.

[MyssAnne]

Amen, girls. I drove to Indy to see my sister and my son, we went shopping, at Marshalls and at a bookstore, and I was pooped out, and had to drive back to my house. OH man. Sunday was nothing but a day of rest. I got up to clean out the potty box for the kittahs and made some mashed taters, and that was about it.

Most of my family understand it. I just hate having to miss things, because I can only do ONE event
a day, not two or more, as I used to.

[flip]

I'm not tired all the time but I do tire easily. I went thru a 6 week stretch where I was doing both dialysis and radiation treatments. The combination really wiped me out and I'm still struggling to recover my strength and stamina.

[Psim]

Oh I hear you! My GFR went up and bit in December and I had a good few months, but for the past week I've been back in zombieland. This afternoon I looked after my five year old pal while her mom went to town. She's a great kid and we always have lots of fun, but after she left I just dropped in my tracks. My hat is off to all you parents.  How does anyone manage to be a full time mom or dad with kidney disease?

[Sunny]

As for being a full time Mom with kidney disease: My daughter was nine and my son eleven when I first contracted kidney disease. Thank God they weren't any younger, but even that was hard work. I had to ask many friends and family to pitch-in to get me through it. I think my kids are better people because of it. They are very tolerant.

[twirl]

today I feel horrible
I wanted and planned to do a list of chores, some of them I enjoy doing
but no,

I have been in bed almost all day asleep and feeling worthless
I made school lunches for tomorrow and packed a snack for dialysis
I made a roast, gravy, rice and cut fresh carrots to have with ranch dressing

one time my husband said, "I never let sickness get me down." and my son replied, "but dad you have two working kidneys"

I feel like I was mooned , hit in the head and was on. I think I'll try eating a 

[stauffenberg]

In British English 'knacker' refers to what a butcher does to a cow before it appears in the grocery store.  So when a person says he feels 'knackered,' he means that he feels as though he has been processed by a butcher -- i.e., he feels completely taken apart.

The causes for exhaustion are three-fold.  First, neurological damage due to the accumulation of toxins the kidneys should remove can prevent patients from sleeping normally, so lack of sleep at night causes daytime tiredness.

Second, while normal kidneys remove just the right amount of fluid from the body at all times, dialysis does this only clumsily, and patients with insufficient fluid levels will feel exhausted.

Finally, almost all renal patients suffer severe anemia all the time, and this makes people more tired than anything else.  The great tragedy of modern nephrology is that EPO cannot be given safely in the amounts required to bring patients up out of anemia (i.e., to a level of 140 for men and 120 for women), so the anemia of dialysis patients is incurable.

[twirl]

I am not tired or lazy

I am Knackered

love the word and 

spell check does not know the word

[kidney4traci]

As for being a parent, my kids were 5, 7 and 11 when I was diagnosed.  My oldest daughter really matured that year.  She is truly amazing.  I love her so much.  I would not have made it through without her watching the kids and helping out.  I was diagnosed the very week we opened our own clinic, so my husband had to work round the clock to keep us above ground as I couldn't work anymore at the time.  My oldest is still very mature and at 15 she is all that I could have ever wanted and more in a daughter.  OK... can't type ... too many tears.  Sorry, I went to a funeral today of a young friend that died of cancer and am really feeling mushy. 

[mikey07840]

I am tired after hemo and the day after hemo. Then the second day I feel ok and then its time for more hemo.
 

[KT0930]

I have been in stage 5 twice since my son was born. Just before his third birthday I was told to start getting potential donors ready; then again when he was 7-9. When he was younger, of course he had no idea what was going on - I was doing hemo very early in the morning, then going to work from there, so his routine didn't change much.  Plus I was still married to his dad, my mother-in-law was living with us, and we had lots of friends in and out of the house who helped out when they could.

I started showing symptoms again in probably January 2006 this time around and wound up on dialysis in October of that year, and he and I were living on our own at the time. My parents were close by, and my now-husband came over every couple of days, so I had some help, but I still thank goodness I had such a small place to take care of. Even being as tired and worn out as I always was and getting sick daily, I was able to work full-time and keep the place pretty well picked up. The hardest times were when my son decided to throw a fit about bedtime and I just didn't have the energy to deal with that when all I wanted to do was crawl into bed.