Quote from: Black on July 30, 2006, 02:32:45 PM...As far as his liver, we don't know. He may have all of the PKD effects - brain aneurysm, liver cysts, damaged heart valves and diverticulitis -- since we don't have insurance we're waiting until Medicare will pay for all of the testing. You're right about the Nephs not being that interested in the other disorders. His GP did suggest a brain scan once and the Neph did ask if he'd had one done or wanted one done -- but nothing else and nothing since that initial visit. From the expansion of his waistline I suspect both kidneys and his liver are severely enlarged. The rest of his body is not that fat, though he does have edema in his extremeties. He weighed between 205 and 220 for many years; he currently weighs about 270. I suspect the cysts and excess fluid account for almost 50 pounds of the gain. Carrying around that much excess weight has to be tiring.Have you ever had your liver, brain, heart, intestines checked? I would think the more organs involved the worse the symptoms would be, especially the fatigue.Your neph should be able to order the scans and tests. I definitely would be getting them done asap. While nephs specialise in kidneys, they do have a general knowledge of other areas, some more than others. If they suspect something is wrong they can get these tests done and refer you to the appropriate specialist. That is how it works here.
...As far as his liver, we don't know. He may have all of the PKD effects - brain aneurysm, liver cysts, damaged heart valves and diverticulitis -- since we don't have insurance we're waiting until Medicare will pay for all of the testing. You're right about the Nephs not being that interested in the other disorders. His GP did suggest a brain scan once and the Neph did ask if he'd had one done or wanted one done -- but nothing else and nothing since that initial visit. From the expansion of his waistline I suspect both kidneys and his liver are severely enlarged. The rest of his body is not that fat, though he does have edema in his extremeties. He weighed between 205 and 220 for many years; he currently weighs about 270. I suspect the cysts and excess fluid account for almost 50 pounds of the gain. Carrying around that much excess weight has to be tiring.Have you ever had your liver, brain, heart, intestines checked? I would think the more organs involved the worse the symptoms would be, especially the fatigue.
I'm tired too and fortunately not on dialysis, but suffer depression (who doesn't?) and caregiver to my dad who just recently stopped dialysis. Is there a connection here? LOL? Yes, TIRED more often than not and this has been going on for years; not days/weeks.........ugh..........................................
Since I've broke my hand I was having even more trouble sleeping withthe uncomfortable itching cast, my hand and arm being so constricted and all and Ifinally asked for a sleeping aid. I cannot believe the difference. I wake upactually feeling rested and relaxed instead of dragging myself out of bed moretired then when I went to bed. It feels good to get some rest. Tho I amnot working with broken hand so that makes a difference too in the tiredness. dreading when my pills run out... probably will get some tylenol pm or something.I've also noticed that when I switched from the capd to ccpd that I'm not getting thenighttime leg cramps like I used to so that helps also.
I just hate that DaVita site advice to hold onto your job as if all jobs were created equal and it was just a simple choice!! Working with a chronic illness is always hard. Sometimes its impossible! Mom 3
I Hate Dialysis Message Board
I Hate Dialysis Message Board
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