|
brenda
|
 |
« on: August 14, 2007, 09:20:19 PM » |
|
I am so excited, only a couple more weeks before I start training (Sept 04). Because I have always workled full time I have had to run in the evening. I have not had more than a max of 2 evenings off in a row for 14 years. Now to think I will have seven! what the heck am I going to do with myself??? It's going to be great!!!  |
|
|
|
« Last Edit: August 14, 2007, 09:24:35 PM by brenda »
|
Logged
|
Life is what happens while your making other plans.
|
|
|
|
|
|
KT0930
|
|
« Reply #2 on: August 15, 2007, 03:49:09 AM » |
|
That's great Brenda! Congrats!!
|
|
|
|
|
Logged
|
"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
|
|
|
|
tamara
|
|
« Reply #3 on: August 15, 2007, 04:24:51 AM » |
|
Congratulations Brenda, Hope it's a smooth transition !  |
|
|
|
|
Logged
|
ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
|
|
|
|
Amanda From OZ
|
|
« Reply #4 on: August 15, 2007, 04:37:49 AM » |
|
Thats great news brenda! Can't wait to hear all about it. Amanda xxoo  |
|
|
|
|
Logged
|
|
|
|
|
|
|
Slywalker
|
|
« Reply #6 on: August 15, 2007, 06:51:09 AM » |
|
Congratulations Brenda - you will have marvelous luck with the nocturnal treatment.
Sandyb
|
|
|
|
|
Logged
|
|
|
|
|
brenda
|
|
« Reply #7 on: August 21, 2007, 09:22:34 PM » |
|
I was just reading Rolando's thread about over shooting your target weight. Something I hadn't really thought about is I don't have a target weight and I don't weigh in or out. I totally go by feel. I know personally when I have had enough and then that's enough. I come off feeling fine. I have lower bp's just naturally. I guess I do use bp's as my gauge a little. And I also have always weight ramped. But now doing nocturnal how the heck am I going to determine a dry weight? Haven't had one of those for 10 years. Pretty sure I don't weigh the 42 kilo's I started on dialysis with. Hmmm I need to figure that out I guess.
|
|
|
|
|
Logged
|
Life is what happens while your making other plans.
|
|
|
|
Adam_W
|
|
« Reply #8 on: August 21, 2007, 09:38:00 PM » |
|
Congratulations on getting ready to start nocturnal, Brenda. I'm also going to be switching to nocturnal by the end of the year (I'm on short-daily right now). As soon as my centre starts offering it, I will be one of the first patients to be switched over. It will be SOOOOOOO nice to have my days back, and since I will be doing nocturnal on the NxStage, I won't have to spend too much time setting up the machine in the evening or cleaning it in the morning. Out of curiosity, which machine will you be using?
Adam
|
|
|
|
|
Logged
|
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007 -Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix) -Started in-centre dialysis Feb 6th 2007 (Fres. 2008H) -Started home hemo June 5th 2007 (NxStage/Pureflow) -PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now) -Started CAPD July 4th, 2008 -PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage -Kidney function improved enough to go off dialysis, Feb. 2011!!!!! -Back on dialysis (still NxStage) July 2011  -In-centre self-care dialysis March 2012 (Fresenius 2008K) -Not on transplant list yet. "Don't live for dialysis, use dialysis to LIVE" |
|
|
|
brenda
|
|
« Reply #9 on: August 21, 2007, 09:46:57 PM » |
|
It's called a "Formula" it's the new machine they are converting home patients to rather they do nocturnal or regular. Don't really know much about it yet other than it is a fair bit smaller that my C3 i have had for 14 years. In center they have changed over to a "Phoenix". We don't have the luxury of nxstage here in Canada.
|
|
|
|
|
Logged
|
Life is what happens while your making other plans.
|
|
|
|
Razman
|
|
« Reply #10 on: August 22, 2007, 06:14:39 PM » |
|
Hi Brenda , I used to live in Calgary but I was transfered back to Toronto many years ago. Why did it take 14 years to do nocturnal. I will be on dialysis in 2- 3 years ( or more I hope) and I have already told my doctor that I want home nocturnal from the start. It is obvious that I don't know much about the routine so maybe you can give advise on the steps and what I need to do to convince whoever makes the decision. How long is the training ?
I really like the fact that you work. I do not plan to stop either. Thanks
|
|
|
|
|
Logged
|
|
|
|
|
brenda
|
|
« Reply #11 on: August 23, 2007, 05:56:57 AM » |
|
Being Canadian I guess you know how slow progress is here. Nocturnal has only been available here for about 2 years. Up until a few months ago you had to go to Calgary to train and they wanted you there for about 4 weeks. Working full time didn't allow me to do that. Until I had surgery last Nov my work did not know I was a dialysis patient. Now we can train here in Lethbridge and it only takes about 2 weeks. Also I still have the same C3 I have had from the start and there are no longer parts available for it. I had to train on something new so I figured I'd do it all and go nocturnal. Here in Lethbridge and Calgary it is the Home Training program that got the Nocturnal started.
|
|
|
|
|
Logged
|
Life is what happens while your making other plans.
|
|
|
|
Razman
|
|
« Reply #12 on: August 23, 2007, 09:31:29 AM » |
|
Until I had surgery last Nov my work did not know I was a dialysis patient........ WOW , they didn't even know ! I've told my company already but they know how I work so I have no concern. Toronto started home hemo many years ago and I met the fellow who was one of the 1st doing nocturnal here. He slept at the hospital every night because it was just a trial. As I said before , please keep us up to date on how things work out. Whats good and whats bad ? Best of luck. |
|
|
|
|
Logged
|
|
|
|
|
del
|
|
« Reply #13 on: August 24, 2007, 06:27:21 AM » |
|
Brenda I am sure you will fine nocturnal wonderful. You're already doing home hemo. Right?? Hubby has ben doing home hemo since last Oct.10 months now and he feels super. At least you will have all days and evenings free. Keep us posted.
|
|
|
|
|
Logged
|
Don't take your organs to heaven. Heaven knows we need them here.
|
|
|
|
brenda
|
|
« Reply #14 on: September 06, 2007, 04:00:31 PM » |
|
Just finished 3rd day of nocturnal training. A little worried here. Anybody here do nocturnal then get up and get ready and go straight to work? I know it's only been a couple of days, but holy cow do I NOT feel like I could go to work right away. My potassium has been very low, like way too low.. less than 2.0. My phosphate has dropped out of sight and my calcium has gone up. Basically I feel like crap! I am sure it will get better. Next week I am working as normal then training after.
|
|
|
|
|
Logged
|
Life is what happens while your making other plans.
|
|
|
|
brenda
|
|
« Reply #15 on: September 19, 2007, 09:30:08 PM » |
|
Tonight was my final night of training and I am exhausted. Still concerned about doing this and going to work after. I will try it for a bit and see how it goes but didn't let the water guys unhook everything downstairs just in case I decide to go back to conventional. They delivered my supplies today for 6 weeks, wow, there is a lot of supplies. My machine comes tomorrow but won't be running tomorrow night. I need to come home after work and sort out all this stuff. Friday night will be my first run here at home, on my own. I'm kind of a control freak and being awake the whole time and in control is how I have been doing this for 14 years. The idea of trying to sleep, and not having the control is making me very nervous. I have managed to work out a "dry weight" which is something I have never had before. Always preferred to go by feel (the control thing again). Guess I'll just wing it.
|
|
|
|
|
Logged
|
Life is what happens while your making other plans.
|
|
|
|
tamara
|
|
« Reply #16 on: September 20, 2007, 02:32:25 AM » |
|
Brenda, about the work thing I find If i finish by about 6.30am it gives me a couple of hours of time so I can slowly get ready for work, I believe you need a recovery period. You will be in control, don't worry, set everything up appropriately no alarms etc, you will be fine.  What pump speed will you be running at ? Have they given you a sensor for bleeding ? I have been given a "bed wetting sensor" that get taped to your arm instead, so if there is any chance of leakage, needle falling out you are woken up.I have attached a pic of the one I have. You'll be right, just have the initial "scared " time like we all do, the best thing someone said to be about the dialysis machine, was treat it like a car, afterall its just another machine.....that got rid of the "scared" factor. With the fourteen years experience you have it will be like you are on holidays! think of all the free time you will have ! |
|
|
|
|
Logged
|
ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
|
|
|
|
del
|
|
« Reply #17 on: September 20, 2007, 05:51:45 PM » |
|
brenda for potassium they can add stuff to your bath if it is going to low' takes a while to get used to sleeping with the machine!! Hubby has been working for the past month. he gets of the machine about 7 a.m and is at work by 8. Brenda pm me anytime if you want info or just to chat. I don't mind!! Been at nocturnal for a year now!!
|
|
|
|
|
Logged
|
Don't take your organs to heaven. Heaven knows we need them here.
|
|
|
|
brenda
|
|
« Reply #18 on: September 23, 2007, 09:38:43 PM » |
|
OK, One night that's all it took for me. Sorry if anyone is disappointed but I am done with that!! I didn't like the feeling during training of the blood going back and forth with the double pump. I definitely don't like it lying down. The RO is so loud and just thunks through all my hardwood floor's. And because I run such low bp's all the time I had to fight to get up get my s**t together and think of how the h*ll to give myself saline. No I need to be in more control with that. Good luck to anybody who does it or wants to do it, it just isn't for me.
|
|
|
|
|
Logged
|
Life is what happens while your making other plans.
|
|
|
|
goofynina
|
|
« Reply #19 on: September 23, 2007, 09:42:32 PM » |
|
Awwww Brenda, sorry it wasnt for you, where do you go now? What is your plan B?  |
|
|
|
|
Logged
|
|
|
|
|
brenda
|
|
« Reply #20 on: September 23, 2007, 09:53:38 PM » |
|
Back to conventional. It's what I've know for 14 years, no big deal for me.
|
|
|
|
|
Logged
|
Life is what happens while your making other plans.
|
|
|
|
goofynina
|
|
« Reply #21 on: September 23, 2007, 09:56:03 PM » |
|
Well, you cant say you didnt try it, i admire you for that. |
|
|
|
|
Logged
|
|
|
|
|
del
|
|
« Reply #22 on: September 24, 2007, 04:12:41 PM » |
|
Do whatever you feel most comfortable with Brenda.
|
|
|
|
|
Logged
|
Don't take your organs to heaven. Heaven knows we need them here.
|
|
|
|
I Hate Dialysis Message Board
Author
