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Author Topic: The "OFFICIAL" IHateDialysis.com flyer. Print out and place at your center!  (Read 33551 times)
Cordelia
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« Reply #25 on: January 23, 2011, 05:23:01 PM »

I LOVE that flyer! :cheer: :laugh:
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Hazmat35
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« Reply #26 on: March 22, 2011, 05:18:33 AM »

Do DaVita centers sanction (approve of) this site?  When I went to visit and when I took their classes they help telling me how wonderful and easy it will be.. and yet I read on here how hard and scary it is.  Were they giving me hype?  Is is somewhere in the middle?  Anyway, I'll ask the doctors next time I go in.  I'm sure they know about you but I will take your flyer just in case...

I don't know if posting this in a DaVita center would be allowed.  My F.A. at my DaVita, is actually a fan of this website and tells everyone about it. 

I think they give you all the "POSITIVE" information they can to keep your spirits uplifted and in the correct frame of mind.  You don't want to go into something like Dialysis all FREAKED out hearing all the horror stories.  They have to be positive.  It is NOT always as bad as it seems! 
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27 on: April 12, 2011, 10:57:43 PM »

 :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
The Noob
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« Reply #28 on: July 02, 2011, 07:27:01 AM »

put these up and handed out at first 2 clinics. tell everyone about this site where we are now. will print main copy, go to print place and have a stack done, put in clinic, hospital, etc, hand out.
we are at a davita clinic. they tell newbies about davita site, info online, but never ask that 80 yr old grandma if she has the internet, a computer or even knows how to use one. i plant to take my little laptop in next time so we can all sit and surf.
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KraigG
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I feel like I'm on the Dark Side of The Moon.

« Reply #29 on: January 10, 2012, 11:39:35 PM »

We'd need one in Spanish at my center.
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First bout on dialysis: June, 1990
Kidney/Pancreas transplant: August, 1990
Pancreas removed (hospital error): January, 2001
Kidney fails: August, 2011
Second round of dialysis: August, 2011
noahvale
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« Reply #30 on: May 31, 2012, 10:37:38 AM »

^

« Last Edit: September 17, 2015, 07:55:49 AM by noahvale » Logged
paris
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« Reply #31 on: June 01, 2012, 12:29:33 PM »

You lose people with too many words or reference sites.   I think they get the info they need from the flyer already in place.    Some members must have more time on their hands than we do!     :rofl;     
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
deniferfer
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My nickname is princess

« Reply #32 on: June 01, 2012, 07:07:54 PM »

I'm going to print out a few of there filers to put around at my Dr office and the hemo center and such. This site has donr so much to help me even thou I just join about a month or so ago. So I hope to pass the word on to others to get them a place they can have not only friends but a family community to turn to.  :2thumbsup;
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #33 on: June 10, 2012, 01:50:29 AM »

You lose people with too many words or reference sites.   I think they get the info they need from the flyer already in place.    Some members must have more time on their hands than we do!     :rofl;   

 :clap;  :thx;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
noahvale
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« Reply #34 on: June 10, 2012, 03:23:43 AM »

^




« Last Edit: September 17, 2015, 02:55:09 AM by noahvale » Logged
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #35 on: June 11, 2012, 04:05:44 PM »

It's not a matter of agreeing or disagreeing with your suggestions, it's a matter of time.
The flyer was created by Epoman in 2005.
Our admin team focuses on the daily forum duties, and have not made a new flyer because it's been working ok.
I read 200 posts a day, approve new members, move threads, ban spammers and answer PM's.
This is all volunteer time, we do not get paid.
I am not able to do any redesign at this time.
Anyone want to volunteer?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KAF454
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It is what it is today.

« Reply #36 on: June 23, 2012, 04:23:15 PM »

 The social worker in my Davita center turned me on to IHD.
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PD catheter inserted 11/2011
CCPD begun 12/2011
Activated on transplant list 01/27/2012
PD efficacy tanked 12/2012. CVC inserted for hemo.
Elected to stay on hemo 01/2013. (10.5 hours per week instead of 8 hours every night? No contest!)

Today I will not worry unless the animals start lining up 2 by 2.
jbeany
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Cattitude

« Reply #37 on: June 23, 2012, 05:34:38 PM »

I promise, it's on my to-do list!  It's just not at the top.   I think it made it to the first page, though.   ;D
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #38 on: June 23, 2012, 08:51:46 PM »

I promise, it's on my to-do list!  It's just not at the top.   I think it made it to the first page, though.   ;D

 :thx; :thx; :thx;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Cattitude

« Reply #39 on: June 24, 2012, 04:38:47 PM »

Okay, the floor is open - thoughts, comments, suggestions on my initial design? 

I know Epo's original flyer was heavily focused on his mission to start a website that wasn't censored by the big D companies, as most support sites were at the time.  It was his frustration at not being able to openly discuss his complaints about the companies, the staff, the standard of care, and the plain misery that D can be that gave him the inspiration to start IHD. 

I shifted focus for this one, though, since with 7000+ members now contributing to an uncensored forum, he's reached that goal and then some!  I focused more on trying to advertise the benefits of joining.  This may just be my retail background coming out, though, so feel free to suggest changes.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

cariad
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« Reply #40 on: June 24, 2012, 07:21:16 PM »

I think it's damn near perfect, jbeany. Well done!
:cheer: :cheer: :cheer: :cheer: :cheer:
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
shutterbug05
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« Reply #41 on: June 24, 2012, 09:54:40 PM »

Looks great....  :bandance;
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Les Wetzel, III.
NxStage HHD March 2012
In-Center HD May2009-June2010, September 2010-March 2012
PD June2010 - September2010
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #42 on: June 26, 2012, 01:44:49 AM »

 :bow;  Well done JB!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe
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« Reply #43 on: June 26, 2012, 05:37:25 AM »

That is a great job JB! Looks fabulous!
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
jbeany
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Cattitude

« Reply #44 on: June 26, 2012, 10:43:16 AM »

We'd need one in Spanish at my center.

Okay, so who can send me some Spanish translations, so I can make the bi-lingual version?
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

jerseyjezebel
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« Reply #45 on: September 15, 2013, 10:14:36 AM »

I printed out one of the flyers and gave it to the social worker at my dialysis center.  I intended for her to hang it up somewhere but she said she was going to make copies of it and give it to some of the patients.  I don't know who she was going to give it to because most of the people at my clinic are really elderly and don't even seem like they're aware of where they are.
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pagandialysis
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« Reply #46 on: March 05, 2014, 02:16:31 PM »

I just found out as the only patient advocate at my clinic that I will be getting my own board in the waiting room! I will be putting this up on it.  :bandance;
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #47 on: March 07, 2014, 07:54:57 PM »

I just found out as the only patient advocate at my clinic that I will be getting my own board in the waiting room! I will be putting this up on it.  :bandance;

 :clap; :clap; :clap;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Heisenburg
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« Reply #48 on: January 16, 2016, 03:43:21 PM »

Could you please make an English language version of the posters
for English speaking countries and remove the reference to God.
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You all know exactly who I am. :)
PatDowns
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Celebrating 60th B'Day. 12/26/15

« Reply #49 on: January 16, 2016, 04:04:35 PM »

Could you please make an English language version of the posters
for English speaking countries and remove the reference to God.


Please help me out here...The two versions of the flyer I see are in English.   What language do you see them in?

Also, why does the reference to G-d need to be removed?  It is part of a quote from an IHD member who has been helped by this web site, not an official endorsement by those who run IHD.
« Last Edit: January 16, 2016, 04:05:55 PM by PatDowns » Logged

Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
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