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Author Topic: I got extra time on the list...  (Read 2059 times)
RichardMEL
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« on: June 17, 2007, 08:55:50 PM »
This is so minor but I thought I'd post my "news" as little as it is.

I think I explained in the other thread that here THE LIST is sorted after a match is made on the "time on dialysis" on the list, as opposed to the time you were first added to the list.

Well I was reminded yesterday that I had done this trial for my doctor where they started me LATER on dialysis to see about the effect on quality of life, health etc.. so I didn't start until my GRF was around 6% vs. the usual 10% or so you usually start at.

So I asked about this in terms of my "time on dialysis" date on the list given that I would have started much earlier if it wasn't for the trial. They came back and said that YES I get some credit (!) for the trial and they pushed my "dialysis start date" back to 1/2006 (from 4/2006 which was itself an error since I actually started 7/2006). So basically I got a 6 month credit for my trial which was kind of nice.

I don't expect it will make much difference in terms of when I might get a kidney, but every little bit helps hey?
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sluff
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« Reply #1 on: June 17, 2007, 09:01:27 PM »
Well I hope it does make a difference and that you are surprised.  :grouphug;
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #2 on: June 17, 2007, 10:30:57 PM »
Good Luck Richard, any extra tme bumps you up the list.
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Wattle
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« Reply #3 on: June 20, 2007, 05:09:13 AM »



 :cuddle;  Nice to hear you got some good news for a change Richard. I wish you luck. Waiting...waiting...waiting...   
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Sara
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« Reply #4 on: June 20, 2007, 06:31:17 AM »
You're right, every little bit helps.   :thumbup;
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
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