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Author Topic: New From Ohio  (Read 2485 times)
sandlcandles
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« on: June 04, 2007, 05:29:58 AM »
Hi. I have been on dialysis since the end of March. My husband is a perfect match for me because we had him tested about a year ago. Now that I am on dialysis they had him tested again and now they say he is still a perfect match but because of some blood transfusions i had in the hospital they can no longer give me his kidney.  Does anyone know any way around this so that I can still have his kidney. He is the only donor I have and I really dont want to get a fistula so I need to have a transplant in the next 2 months.

Leslie
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keefer51
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« Reply #1 on: June 04, 2007, 06:34:56 AM »
Leslie, Welcome to this wonderful site. I had a transplant too. My brother gave me one of his. In my case they wanted me on dialysis because they wanted me to REALLY want that kidney. I was on for a year till i got the transplant. My brother had to fight for them to do the transplant. We had a big round table meeting just to have them do anything. If they give you any trouble you may have to go else where. Sometimes it's good to have more than one hospital to go to. Don't let them play around it's your live and his.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
kitkatz
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« Reply #2 on: June 04, 2007, 06:38:08 AM »
Welcome to the site.   I am still jumping through hoops just to get listed for a tranplant.


We have a great area to discuss tranplants on this site:

http://ihatedialysis.com/forum/index.php?board=27.0




kitkatz, moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: June 04, 2007, 08:19:28 AM »
 :waving; Hi Leslie,
Welcome to IHD!
My daughter's donor is from Ohio!
Ask if your transplant center does positive crossmatch transplants. If not, there are many that do.
There's lots of good info and support on this forum, glad you could join us!


okarol/moderator
« Last Edit: June 09, 2007, 03:19:08 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
nextnoel
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« Reply #4 on: June 04, 2007, 08:46:06 AM »
Welcome to the IHD Family! :welcomesign;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
Sluff
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« Reply #5 on: June 04, 2007, 09:14:11 AM »
Hello leslie,

Welcome to ihatedialysis.com  :waving;

I hope you and your husband gain knowledge and friendships here. I hope the plans for a transplant are successful.

It's great to have you here.

Sluff/ Admin
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Sara
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« Reply #6 on: June 04, 2007, 09:19:08 AM »
Welcome Leslie, I'm glad you're here.   :2thumbsup;
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
Kathleen
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« Reply #7 on: June 04, 2007, 09:50:45 AM »
Leslie   :welcomesign;
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paris
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« Reply #8 on: June 04, 2007, 10:05:28 AM »
Welcome. Plasmapherisis with a living donor is the way to accept a kidney when you have a high PRA. Your anitbody level probably went high because of receiving a blood transfusions. There is alot of info here, including posts by JillD. who had this procedure done. Mayo, Johns Hopkins, Carolina Med Center, Cedar Sinai and some who do this procedure. I am in the process at Carolina Medical Center. Have been accepted and now the donors are being evaluated. Google plasmapheresis for kidney transplant and you will find a lot of information. I contacted hospitals on my own after UNC Hospital put me on the list, but said they couldn't do anything more because of my antibodies. I don't take "no" for an answer, so I went to the internet.  You already know you have a donor--now you need a hospital that does the right procedure.   Glad you found us --it is a great community. :welcomesign;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Joe Paul
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« Reply #9 on: June 04, 2007, 10:55:53 AM »
Welcome Leslie, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
jedimaster
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Stainboy is....alive!!!
« Reply #10 on: June 04, 2007, 08:43:01 PM »
 :welcomesign;
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Laurie
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May 13, 2008
« Reply #11 on: June 05, 2007, 04:40:24 AM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #12 on: June 09, 2007, 09:58:14 AM »
Welcome to our caring and sharing community.  We have really become a family with all that means - people who care and who UNDERSTAND, a place to vent and rant when necessary, a place for information and even relaxation (chat room and game room).  Take advantage of all this site has to offer.  It was one of the best things that happened when I discovered I had renal failure.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Hawkeye
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« Reply #13 on: June 13, 2007, 01:56:13 PM »
Hello and  :welcomesign;
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It's not easy being green.
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