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kellyt
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« Reply #100 on: August 07, 2008, 01:58:20 PM » |
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Great set-up, funnygarcia. You hubby looks so cute and comfy in his big chair.  |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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paul.karen
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« Reply #101 on: January 28, 2009, 12:55:33 PM » |
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just been looking at the home photos.
All nice set ups. Sadly some member are no longer with us.
But On the bottom of page 4 Meinuk put a question out there. About the tv show she was watching.
I think i know what it is.
Howard Stern. Do i win?
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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Savemeimdtba
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« Reply #102 on: April 20, 2009, 05:11:00 PM » |
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I am getting my liberty cycler tomorrow and I will come post pics for you guys as soon as everything gets settled!
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
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willowtreewren
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« Reply #103 on: April 20, 2009, 07:05:16 PM » |
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Here is our camping set-up. Our sleeping bags are spread out behind the cycler. We move it out of the way after the treatment is over. Otherwise there would be no room to move around. This was our first camping trip and my husband didn't take his big blanket as I advised him. He has a towel around his shoulders trying to stay warm! Live and learn.
Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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Wattle
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« Reply #104 on: April 21, 2009, 05:05:18 AM » |
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I am getting my liberty cycler tomorrow and I will come post pics for you guys as soon as everything gets settled!
That will be great. I have been waiting for someone to post a pic of the Liberty. I am in Australia and have the Sleep Safe. It will be interesting to see if they are similar. |
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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willieandwinnie
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« Reply #105 on: April 21, 2009, 05:11:42 AM » |
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 Aleta. What a great picture. 
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Zach
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« Reply #106 on: April 21, 2009, 08:50:04 AM » |
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Wonderful. Truly independent!  |
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.  I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology." |
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Meinuk
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« Reply #107 on: April 21, 2009, 09:06:18 AM » |
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What a great camping set up. I first learned about NxStage just as it was launched, and had just that kind of set up in mind (I knew that I was going to start dialysis soon, and naively thought I'd be able to buy a NxStage and be on my merry way HAH - did I have a lot to learn!). I never went camping when I was on NxStage, but it is GREAT to know that people are!
Oh, and Paul, you do win. That was my Sat am treat, put on Stern and listen as I puttered around the house - setting up etc. I got rid of my cable last October (three weeks before I got my transplant) and have been happily spending all of the money that I have saved on other things.
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Savemeimdtba
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« Reply #108 on: April 23, 2009, 08:43:19 AM » |
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I'll post the pics of the Liberty here (there is also a post with how my first night went a little farther down):
picture 1: The cycler in the bedroom
picture 2: The drawers/supplies (the two other fluid bags are in the top pull out drawer, and I just hook them up through the basket)
picture 3: boxes in my spare room
picture 4: boxes on the other wall in my spare room
picture 5: Where I do my manual exchanges
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« Last Edit: April 23, 2009, 09:20:12 AM by Savemeimdtba »
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
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David13
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« Reply #109 on: April 23, 2009, 08:52:28 AM » |
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Great setup pictures! It looks as though you are very organized and have everything just where you need it.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
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paul.karen
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« Reply #110 on: April 23, 2009, 09:04:10 AM » |
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Nice setup.
Those boxs. Is that a one month supply?
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Logged
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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Savemeimdtba
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« Reply #111 on: April 23, 2009, 09:16:59 AM » |
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It's one months supply of manual and one months supply of cycler... since I had just had a delivery last week - there was alot of manual still left. If they're still here next time - the driver said he will take some back.
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
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MiSSis
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« Reply #112 on: June 24, 2009, 08:34:19 AM » |
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Just so I understand, the Liberty if from Fresenius? And it's a CCPD machine that you use for multiple exchanges during the night? And you have to provide a stand for it to be on?
Currently I'm using the Fresenius Newton IQ and I know some people have found the stand to be cumbersome but I actually like the fact that I can roll the cycler off to the side and out of my way. (I've posted pictures of my setup earlier in this thread but I'm not smart enough to know how to provide a link to my post!)
What do you do if you travel with the Liberty. Do you take your stand along or do you assume you'll have something in the motel room you can use?
No one at my unit has mentioned anything about switching us to the Liberty but I guess I'm just curious in case they do decide to make us change.
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"Keep your face to the sunshine and you will not see the shadows." Helen Keller
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Savemeimdtba
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« Reply #113 on: July 10, 2009, 08:44:10 AM » |
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It doesn't have to be on a stand, I just wanted it on one because I wanted to be able to move it around. In hotel rooms I usually put it on a table, chair or the window sill... whatever I can find really. It's a little difficult but I like it better than the Newton.
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
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Restorer
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« Reply #114 on: July 15, 2009, 04:10:36 PM » |
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Where did you get the cart/table/stand thing you put your Liberty on? I just got my Liberty yesterday, and today I drove all around looking for something similar and didn't find anything.
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- Matt - wasabiflux.org- Dialysis Calculators| 3/2007 | Kidney failure diagnosed | | 5/2010 | In-center hemodialysis | | 8/2008 | Peritoneal catheter placed | | 1/2012 | Upper arm fistula created | | 9/2008 | Peritoneal catheter replaced | | 3/2012 | Started using fistula | | 9/2008 | Began CAPD | | 4/2012 | Buttonholes created | | 3/2009 | Switched to CCPD w/ Newton IQ cycler | | 4/2012 | HD catheter removed | | 7/2009 | Switched to Liberty cycler | | 4/2018 | Transplanted at UCLA! |
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kimcanada
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« Reply #115 on: July 15, 2009, 05:23:17 PM » |
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i HAVE read that some people have gotten their carts from IKEA
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twirl
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« Reply #116 on: July 24, 2009, 03:57:37 PM » |
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me too
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Savemeimdtba
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« Reply #117 on: July 30, 2009, 09:56:52 AM » |
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Hey, I'm sorry I didn't see your question 'til now! I got the stand at Lowe's - I believe they have it online as well... let me see if I can find a link for you. If you DO have an Ikea, you would probably be better off going there, price wise (we don't have an Ikea here). Here it is: http://www.lowes.com/lowes/lkn?action=productDetail&productId=82541-362-6241&lpage=noneThey had the little wooden and plastic pieces that go on top beside the cart at the store. I don't see it on the website, but maybe check your local Lowes. Good luck! |
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
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sico
Full Member
 Offline
Gender: 
Posts: 310
wheres my bike gone?
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« Reply #118 on: August 11, 2009, 08:33:39 PM » |
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Here's mine. Would have been handy to see this thread before i started dialysis to get ideas. But this is what i came up with. Use a drum for drainage. The timber bench is not ideal, but was the top half of a tv unit i already owned.
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Brad  "Got myself a one way ticket, going the wrong way" - Bon Scott 6/11/08 diagnosed with ESRF, dialysis that day HD and PD 8th of April 2010 Live kidney transplant from my father. |
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Hanify
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« Reply #119 on: November 17, 2009, 02:34:51 AM » |
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I'm bumping this so GraceP can have a look at some of the machines different people use. They're all pretty small eh? But the reality is that you do have a lot of stuff around your house. You really can only do home haemo of either kind if you have a bit of spare room.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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phyl1215
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« Reply #120 on: January 09, 2010, 02:24:32 PM » |
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I have to start PD soon, getting the cath put in next week or two. Great to see these pictures. Do you have to order a months supply, that is a lot of boxes to store?
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012
Learning To Dance In The Rain
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sico
Full Member
Offline
Gender:
Posts: 310
wheres my bike gone?
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« Reply #121 on: January 09, 2010, 07:23:27 PM » |
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I have to start PD soon, getting the cath put in next week or two. Great to see these pictures. Do you have to order a months supply, that is a lot of boxes to store?
Yeah, i get a delivery once a month. 35 boxes approx. Lucky i have a spare bedroom for these. I have heard in some places you can get fortnightly deliveries. |
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Brad "Got myself a one way ticket, going the wrong way" - Bon Scott 6/11/08 diagnosed with ESRF, dialysis that day HD and PD 8th of April 2010 Live kidney transplant from my father. |
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angela515
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« Reply #122 on: January 11, 2010, 07:16:09 AM » |
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I just had a nightmare the other night about PD boxes trapping me in my bedroom!
I hope I never see another PD box again!
Angie <2
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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sico
Full Member
Offline
Gender:
Posts: 310
wheres my bike gone?
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« Reply #123 on: January 16, 2010, 03:36:42 AM » |
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I just had a nightmare the other night about PD boxes trapping me in my bedroom!
I hope I never see another PD box again!
Angie <2
i can't seem to get rid of the boxes. No nightmares about them yet. |
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Brad "Got myself a one way ticket, going the wrong way" - Bon Scott 6/11/08 diagnosed with ESRF, dialysis that day HD and PD 8th of April 2010 Live kidney transplant from my father. |
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Hanify
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« Reply #124 on: January 16, 2010, 10:39:39 PM » |
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This is our bedroom where my PD cycler lives. Paul made a big sound proof box for it to sit in. You can see Mayweed my 18 year old cat investigating - she never normally does that - she was just skiting for the camera ha ha.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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I Hate Dialysis Message Board
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