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Author Topic: Post pictures here of your Home Dialysis setup. ***NOW WITH PICS***  (Read 102456 times)
kitkatz
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« Reply #75 on: March 29, 2008, 10:46:45 AM »
The pics are cool. I am hoping I can set up a bedroom up for me.
« Last Edit: March 29, 2008, 11:03:00 AM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Meinuk
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« Reply #76 on: March 29, 2008, 10:52:44 AM »
The first picture is my set up.  (chair $100 delivered from Craigs list!) I used to have a sleeper sofa where my set up is now.  >:(  But I'd rather lose my sofa and be dialyzing in my tiny apt than be in center.  I always joke about "my little crack house" After Vegas, Susie made me send her pictures of my apt, so she could see that I wasn't actually living in a crack house. (it is really just a run down bungalow from the 20's, it has a yard and plenty of sunshine and for NYC it is cheap - what more could a girl ask for?)

I'm expecting a delivery on the 3rd, so I'll include a shot of my wall of boxes then.

The second is my cannulation station/mayo stand (an architect's cart)

The third is the view from my chair. 

« Last Edit: March 29, 2008, 11:39:49 AM by Meinuk » Logged
Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #77 on: March 29, 2008, 11:01:50 AM »
Great set ups! Seems so much better being at home!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bill Peckham
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« Reply #78 on: March 29, 2008, 11:13:41 AM »
Looks like IHD on computer screen but can't tell what you're watching on TV.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Meinuk
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« Reply #79 on: March 29, 2008, 11:19:46 AM »
I'm not telling,  (I should have turned the TV off).  But I am sure that there is someone out there who will recognize the show.  They can "out" me when they figure it out.  I like a little mystery! ;)
« Last Edit: March 29, 2008, 03:03:54 PM by Meinuk » Logged
Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
kidney4traci
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« Reply #80 on: March 30, 2008, 06:04:38 PM »
It is so helpful to see set ups for someone who is not on it yet.   I have posted mt set up a few weeks ago from when we went camping in out trailer, but I can't find the thread!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
annabanana
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« Reply #81 on: March 30, 2008, 07:09:53 PM »
It is wonderful for someone clueless like me to see these pictures. I'm already planning a "clinic" in our spare bdrm!
kidney4traci, I saw your camping picture a few weeks ago...and can't remember where it is, either. Hmmm...
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
kellyt
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« Reply #82 on: March 30, 2008, 07:23:36 PM »
Petey - You two have it together!!!  The chart you have on the wall with the instructions and such is a great idea!   Marvin is one lucky man to have you!   :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jbeany
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« Reply #83 on: March 30, 2008, 08:34:35 PM »
traci - the post title was "Dialysis in our RV".  (Silly girl, if you go to your profile, it lets you look at all your posts in reverse order.  Just click on the link that says "Show the last posts of this person."   ;D)
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
dlady64
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« Reply #84 on: April 02, 2008, 11:48:26 AM »
Here is my home CAPD setup.  Looking forward to the cycler...
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kimcanada
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« Reply #85 on: April 02, 2008, 06:01:23 PM »
Dlady... I am not to sure what I am looking at?  Is your machine there?
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dlady64
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« Reply #86 on: April 03, 2008, 09:53:51 AM »
This is my CAPD (manual) setup.  I just started a week ago.  My dialysis nurse requires 1 month of experience with manual exchanges before we do cycler training.

Basically, what you're looking at is an area of my bedroom with a table that my husband setup with two metal sheets on the top (so I can wipe down with clorox/water solution).  Boxes of yellow and green bags are stored underneath and tape, paper towels, caps, Purell, clamps, and masks are stored on top.  I have a chart hanging from my IV pole to capture pertinent data.  The chair is facing a TV mounted on the wall.  The only thing I lack is a little table to put remote, magazines, phones while exchanging.

Here is how I empty the bags (hubby put hooks under shelf).

We purchased an expensive cart ($279) from Target, but so far, this make shift setup is working just fine--especially if it's only for a month or so.  We'll probably take the cart back or wait and see if it works with the cycler.
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kimcanada
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« Reply #87 on: April 03, 2008, 04:29:09 PM »
Update...
I had an appointment today with the nurse to start my PD stuff...

I made a mistake earlier, its 1 month worth of supplies, not 3 months like I thought!

We are also the same, I have to do the manual dialysis first for a month , and then the cycler
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KT0930
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« Reply #88 on: April 03, 2008, 05:47:14 PM »
Kim, I also had to do manuals for a month before they would consider training me on the cycler. It was actually quite useful to know how to do it, though, when there were occasional problems with the cycler.
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Adam_W
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« Reply #89 on: April 03, 2008, 07:43:02 PM »
Hmmm. Different policies with different centres, I guess. If I switch to PD, I would be able to start out on the cycler. I would be trained to do manuals as well, but I wouldn't have to wait for the cycler. My hemo access is working better now, so for now I'll be staying with NxStage, but it's nice to know what all my other options are before I need to change.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
spacezombie
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Melissa: ESRD since 1992, transplant June 10, 2008
« Reply #90 on: April 18, 2008, 09:08:54 PM »
Here is my PD machine! Back when I was on PD before (in 1992) my machine was a million times larger. =)
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
kimcanada
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« Reply #91 on: April 30, 2008, 06:44:55 PM »
I just got some good news, my friend that works in a kitchen cabnit custom shop is going to build me something for my set-up!  I just have to figure out what I need!
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RCA
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« Reply #92 on: August 01, 2008, 01:13:13 PM »
My very first post!  Been reading the forum for the past few days...very informative!

I was looking at the wonderful pictures everyone provided.  For CCPD, do you go through 3 bags/night?  How do you warm all 3 bags prior to administration?  Do you have to wake up in between bag changes? 
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Ginger
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« Reply #93 on: August 03, 2008, 12:45:08 PM »
The machines used for CCPD have a built in heater to warm the solutions.
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« Reply #94 on: August 04, 2008, 05:21:04 AM »
thanks Ginger.  Is the warmer the flat part of the machine on the top?  I just noticed in the pictures one bag on the top of the machine but the other 2 bags may be sitting out on the side.  How does the machine rotate and warm the other 2 bags?
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Ginger
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« Reply #95 on: August 04, 2008, 08:13:40 AM »
Yes, the warmer is the flat part on top of the machine.  The machines take the warmed solution from the bags on the heater to put in your abdomen and then during each dwell cycle they pump solution from the other bag/s into the heater bag to warm so that it is always warmed solution going into you. If you check out 'www.homedialysis.org' you can see the different machines that are used. 'www.kidneyschool.org' is also a good place to learn more about kidney disease. Kidney school is in modules that are easy to understand and cover labs, diet, living with CKD and more and you can learn at your own pace.
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« Reply #96 on: August 04, 2008, 10:41:08 AM »
thanks again Ginger!  I'll check out the website : )
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funnygarcia
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« Reply #97 on: August 06, 2008, 05:24:13 PM »
Nx Stage:
Daily supplies on a changing table
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funnygarcia
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« Reply #98 on: August 06, 2008, 05:28:43 PM »
We live in a 750 sq ft 2 bedroom apt. We meaning: hubby, me and two teenagers.. and one naughty cat.

Hall closet, first month of supplies
Set up in our bedroom (back side of machine)
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funnygarcia
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« Reply #99 on: August 06, 2008, 05:30:02 PM »
Hubby, first day at home

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