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Author Topic: Intro  (Read 3392 times)
Roxy
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« on: May 03, 2007, 08:16:10 PM »

Hey everyone!
     My name is Nika and I am 21 years old. I have been looking on this site for information for a little while now and thought i should finally join and introduce myself, so here i am! I was born with small kidneys. They didn't do much about it when I was really little, because they thought they would grow to a somewhat normal size. However, when I was 15 they realized that they had stopped growing a little bit earlier on. Originally, the doctors thought I would have many years before I needed a transplant, but that wasn't the case. For the past couple of years I lived in Los Angeles, but when they decided I needed dialysis ( my creatinine got to 12); I moved back to Seattle to live with my family. I have a chest catheter and have been on dialysis since the beginning of February. I have such a deep respect for all of you who are on dialysis and especially those who have done this for years. Knowing that you all have dealt with this has helped me realize that I can go through all the struggles that are coming my way. I am also very blessed because my mom is going to donate her kidney to me on Monday May 7th. So far, I have been really calm about everything. My family tends to be extremely concerned a lot, so I pretty much try to blow everything off like it's nothing to balance it all out (even though that's not how I really feel). I just feel like if they see me concerned at all, it will intensify their own concerns for me. I love them all so much and I hate watching them feel pain and hurt because of what they see me go through. I am slowly feeling more nerves as the date gets closer. I know I am very fortunate, but I also know the battle is not nearly over.
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Sluff
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« Reply #1 on: May 03, 2007, 08:25:29 PM »

What an outstanding introduction, Roxy.

I'm glad you finally came out of hiding. Welcome to the family, just so you know that once you become family there is no way out. JK.

We have a lot of information here for every age group and every level in your disease and all kinds of Dialysis type and Transplant stories. Maybe your Mom should think about joining IHD also. Thanks for donating Mom.


Again Welcome to our family.

Sluff/ Admin
« Last Edit: May 03, 2007, 08:27:07 PM by Sluff » Logged
lola
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I can fly!!!

« Reply #2 on: May 03, 2007, 08:28:49 PM »

 :welcomesign;  Good luck on Monday you'll both be in my prayer's. And please keep us posted :clap; :grouphug;
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Jill D.
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« Reply #3 on: May 03, 2007, 08:42:45 PM »

 :welcomesign; Nice to meet you! You are getting an amazing gift on Monday. I can relate to what you're saying about trying to stay calm so your family doesn't get "overly concerned". Just remember that there are two family members having surgery, and they probably feel a bit helpless. I always tried to keep this in mind when my sister donated to me and my family expressed concern or worries...it's a normal feeling!

Hugs to you and your mom...you will be in our prayers. Be sure to update us when you feel up to it!  :grouphug;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
kitkatz
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« Reply #4 on: May 03, 2007, 08:50:18 PM »

Welcome to the site. I hope you find time to read all of the information that is here.  You have found a good site for information on kidney disease and dialysis.





kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
anja
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« Reply #5 on: May 03, 2007, 09:26:55 PM »

 :welcomesign;  Roxy to the community!  We are glad to have you join us!  Sorry for your difficulties at such an early age, but so happy your mom will be donating a kidney to you.  :2thumbsup;   Best of luck and let us hear from you as soon as you are feeling up to it!!!
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Joe Paul
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« Reply #6 on: May 04, 2007, 12:41:26 AM »

Welcome Nika, good to have you aboard. Good luck Monday!
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Rerun
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Going through life tied to a chair!

« Reply #7 on: May 04, 2007, 03:05:10 AM »

Nika you are wise beyond your years.  Prayers to you and your wonderful Mother on Monday.  Please post as soon as you feel up to it.  A transplant is truly a gift beyond words.  The transplant drugs do a number on you, but it is worth it and after a while thing will get decreased.  Just hang in there.

 :welcomesign;

Rerun, Moderator
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bolta72
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my best friend

« Reply #8 on: May 04, 2007, 04:37:35 AM »

Best of luck to you and your Mom, I am sure things will all work out for you.
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gotta do what I gotta do.. 2 yrs in ctr hemo
Laurie
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May 13, 2008

« Reply #9 on: May 04, 2007, 05:01:57 AM »

 :welcomesign; Good Luck on Monday  :grouphug;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #10 on: May 04, 2007, 05:19:07 AM »

Hi Nika,

Great to hear your story.

So excited for you, so close to it all happening.

Good Luck with it all, be thinking of you and your Mum on Monday .

Tamara xxx ooo  :cuddle;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Hawkeye
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« Reply #11 on: May 04, 2007, 07:29:26 AM »

Hello and  :welcomesign;.  Good luck and best wishes for a smooth transplant on the 7th.
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It's not easy being green.
st789
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« Reply #12 on: May 04, 2007, 10:36:16 AM »

Welcome Roxy, this site is very supportive and full info.  You will get to know many wonderful members and their struggling daily with this disease.  I really appreciate this site because this is where I can pose questions and search for helps unlike some people around you may not have  a real understanding what you are actually going through.  By the way I also live in los angeles, I am post 2 yrs anniversary of kidney transplants.  Again Welcome.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #13 on: May 04, 2007, 10:44:07 AM »

  :waving; Thanks for sharing your story Roxy.
I wish you and your Mom all the best and look forward to hearing updates from you!
Take care,
Karol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
donnia
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me and my donor Joyce

« Reply #14 on: May 04, 2007, 10:57:05 AM »

 :welcomesign;

You and your mom will be in my prayers.  Please do let us hear from you as soon as you feel up to it after transplant!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Roxy
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« Reply #15 on: May 04, 2007, 11:06:51 AM »

Thank you everybody for your warm welcome and prayers! It deeply touched my heart. I will definitely keep you posted when I get back.
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Razman
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« Reply #16 on: May 04, 2007, 02:26:27 PM »

Another welcome.  We will be praying for you.  Please keep in touch and let us know  "the rest of the story"!
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boxman55
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« Reply #17 on: May 04, 2007, 07:50:56 PM »

You sound like such a wonderful person I will be praying for you and your Mom-Welcome to IHD...Boxman55
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Duane
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I'm glad to be here.

« Reply #18 on: May 06, 2007, 06:09:28 AM »

 :welcomesign; Much Love,  :clap;
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1 Corinthians 9:24  In a race, everyone runs but only one person gets first prize. So run your race to win.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #19 on: May 06, 2007, 05:07:23 PM »

I read your intro while I was away on the weekend, but just as I was going to welcome you, the electricity went off!  Just want you to know that my prayers and caring thoughts are with you and your mom.  As others have asked, please post as soon as you can and let us know how things went.  Please remember that you have a group of caring people rooting for you.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Sluff
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« Reply #20 on: May 06, 2007, 07:34:08 PM »

Roxy please check in as soon as you are able after the transplant. Good Luck to you and your Mom.
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goofynina
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He is the love of my life......

« Reply #21 on: May 09, 2007, 09:08:42 PM »

Hi Roxy, Welcome to ihatedialysis.com.  OK, here it is, May 9th,  from your intro, you had your transplant on the 7th,  just hoping everything went well and you come and share your experience with us.   Looking forward to hearing more from you.


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
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