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Author Topic: Hello!  (Read 1869 times)
bhall777
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« on: January 31, 2021, 07:05:38 PM »
I'm Brad.

I am on Hemodialysis and have been for close to a year now. I have been the grateful recipient of TWO living donors. The first one was from my dad in 1991 and it lasted close to 10 years. The second was from my mother which lasted 3 months shy of 20 years. I spent a lot of time contemplating on a 3rd kidney transplant but decided it wasn't for me to do that again. So ill just live the rest of my years on Hemodialysis and be thankful for the extra 30 years I had living with a transplant.  I have read that the AVERAGE  life span on Hemodialysis is 3-5 years and I'm ok with that. Desth doesn't scare me because I'm a Christian and believe I'll be in heaven when this life is over..
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PrimeTimer
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« Reply #1 on: February 01, 2021, 06:42:11 PM »
 :welcomesign; Welcome, bhall777! Sounds like you probably have a lot of invaluable experience. It will certainly come in handy here. Oh, as for those stats that say "only 3-5 years", well, probably best to ignore that. That scares everyone. As you find your way around ihd you will see plenty of people that have proven that stat to be wrong/incorrect/inaccurate/made up...I don't know which applies. Take a look around for yourself and you will see.
Being a Christian you will probably understand this..1 Corinthians 13:7 Beareth all things, believeth all things, hopeth all things, ENDURETH all things"


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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
MooseMom
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« Reply #2 on: February 01, 2021, 08:13:32 PM »
You certainly have so much to be thankful for!!  You seem to be quite happy with your decision not to pursue another transplant; I respect that.  I hope hemo keeps you feeling better and helps you live a longer, happy life!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: February 08, 2021, 10:07:36 AM »
Welcome to the site Brad


 :welcomesign;


HD 20+ yrs, Pd 5 yrs  :cheer:
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Hereware
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« Reply #4 on: March 22, 2021, 03:40:00 PM »
Hey Brad! Welcome to the forum.
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iolaire
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« Reply #5 on: March 22, 2021, 06:48:50 PM »
Welcome to the group.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
SooMK
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« Reply #6 on: March 23, 2021, 01:25:56 PM »
Welcome!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Hereware
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« Reply #7 on: March 28, 2021, 11:27:03 PM »
Hello! Welcome to the site. Hope to see you around.
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frugallyzing
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« Reply #8 on: May 06, 2021, 11:20:00 PM »
Hey Brad. Welcome to the forum.
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